How are you today?

[fimi]

I'm so sorry harpy. My thoughts and prayers are with you and your mom. Remember we are here for you

 

[Dahlia308]

I don't come here often, but saw this thread and decided to put in my two cents. I donate blood regularly and I'm doing that this afternoon. I'm afraid I'll be rejected because I'm so tired and may be low on iron. I've struggled with awful fatigue since the "powers that be" decided to change the rules on TSH testing. I have hypothyroid and take Armour daily. My test results are always at the low end. My PCP refuses to increase my meds, so I'm tempted to do it myself. I hate being so tired all the time! It could be fibro, thyroid, dehydration, prediabetes, etc. I feel like I'm living a multiple choice question.

 

[johnsalmon]

I have hypothyroid and take Armour daily. My test results are always at the low end.

maybe you need to change to say levothyroxine

 

[Auriel]

Hi Dalia, I'm hypothyroid also, if your feeling so poorly, maybe giving blood right now might not be a good idea, we don't want you in the hospital from collapse, it is soooo kind that you give blood but we have to have to put ourselves first sometimes, (glad you've come on the thread, I started this 1 for a little bit of everything thing) also maybe you actually need some bloods to be tested (If your feeling that way) if your low in iron they should treat it with supplements (or have a look at your diet, I don't eat meat so sometimes I'll take supplements too) nice to see you on the thread

 

[Harpy]

Well it’s midnight here and I am wide awake. But I do have good news, they found out what caused the sepsis? Mom has a UTI infection, so they hit her hard with antibiotics. Mom even fed herself lunch yesterday. Was good to see her smile. I am a person who loves to make people smile or laugh, especially my mom
Thank guys so much for you thoughts
On the flip side, my MM Doctors appointment earlier went ok. After she asked me how I was? I said “not good, I can’t do the night pain anymore and started crying”.
Well after a chat she is writing to my gp and requesting I get put on Cymbalta, she said “ I have PTSD, caused from the death of my 4 week old baby grandson who’s death that I blame myself for. He would be 4 next week. Also for living with chronic pain as such I do. I told her I don’t want to take meds for depression as a few friends I know that are on it are worse than before taking meds and when they stop taking them it’s not nice to be around them. She said “ she takes them and knows she wouldn’t be working if she wasn’t”.
She has prescribed two different types of MM. one with THC for night and one without the THC for morning.

 

[MNP]

Hi Harpy,
I am so thankful that your mom is on the mend! Whew! Such a wicked stressor!

I am sorry your night pain is so awful. I know we all hear lots of stories pro and con re: various meds…so I just want you to know as you evaluate what works for you…I have been on Cymbalta for 10 years with no side effects that I am aware of. Prior to Cymbalta I took Lexapro which worked well but did cause weight gain. Again….this is just my story and I know various treatments work for different people.

I am hoping your new MM treatments give you lots of relief!! Prayers for your well-being! You are a strong compassionate woman!

 

[Auriel]

I'm so glad your mums getting better harpy, as for anti depressants I went back on them a while ago and they made me feel sooo much worse than before I started (but different people different things ect); I don't know the situation with your little baby grandson but i know that you would never intentionally cause a situation for that to be the result, I carried the guilt of My fathers death when i was 17, for years after (also my nan blamed me too) as I was meant to visit him the day he died, I know now I could never have prevented it and would have also been a witness to it as he lived a sedentary lifestyle, ate to much bad food no exercise smoking 40-60 cigarettes a fortnight and died at 56 of a massive heart attack as a result, I carried the guilt for years later ( till lately), but either way
I'm glad they found your mams cause for the solution

 

[cookiebaker]

But I do have good news, they found out what caused the sepsis? Mom has a UTI infection, so they hit her hard with antibiotics. Mom even fed herself lunch yesterday. Was good to see her smile.

That is great news, and I am so very happy to hear she is on the mend!
Will continue keeping her, and you, in my prayers.

I've struggled with awful fatigue since the "powers that be" decided to change the rules on TSH testing. I have hypothyroid and take Armour daily. My test results are always at the low end. My PCP refuses to increase my meds, so I'm tempted to do it myself.

Very sorry to hear all this.. mayhaps time to try to find a more reasonable GP?

my last PCP also refused to increase my meds after my last TSH came back "in range", albeit high in that range - she doesnt understand the difference between "in range" and "optimal" either... I bumped up my Levo by half a tablet myself, and after meeting with the new primary, she was fine with that, and wants to test again in a few more weeks.. and she is very willing to work with me to get optimal. Finally! At long last, a primary that gets it!

maybe you need to change to say levothyroxine

Levo is synthetic and T4 only, Armor is natural and has both T3 and T4 in natural ratios.. of the two, many prefer, and do better, on the natural, but have a hard time getting docs to prescribe it.
It is very possible that the dose just needs to be increased slightly to get the desired results.
It is also possible that a change in med brand/type could improve things, but honestly..
If Dahlia was doing well before, but had her dose decreased by her GP, for whatever reason, and now is suffering, then I would think it just needs to be increased again to the previous levels.

These docs need to stop relying on test results alone for this stuff... they should also be looking at the patient, and how the patient is feeling before changing meds - up or down - but far too many dont.. they look at lab tests, and only lab tests - how the patient feels be damned.

 

[cookiebaker]

gee, since things got shuffled around recently, this thread seems to have faded away..

so, I am going to kickstart it again.

had a very rough night last night.. could not get comfortable at all to even try to sleep... so rather than toss and turn & disturb my partner, I got up.
Needless to say, very tired... dozed off a couple of times today, waking up with either a numb arm, or a kink in the neck.. ugh.. i hate nights like that.

 

[Auriel]

Aw, sweet cookie, self sacrificing your sleep for your partner to have theirs , hope you have a nice sleep catch up of your own, cookie (or a better sleep tonight)

 

[Harpy]

Yeh the recliner pretty much is my main bed, in it more than bed of a night.
But can say the last 5 nights I have averaged out 5 hours a night sleep, be it broken sleep. I get up and move around the house to calm the night pain and when I get back to bed I sleep. Think the new MM OIL is helping in the sleep department and a little day pain but am trying to take it as prescribed and not forget the morning or lunch time dose.

 

[cookiebaker]

Aw, sweet cookie, self sacrificing your sleep for your partner to have theirs , hope you have a nice sleep catch up of your own, cookie (or a better sleep tonight)

thank you Auriel - i usually do sleep the following night.. sometimes well, somethings not so well, but still sleep

 

[Auriel]

Is it comfy sleeping in the recliner harpy?

 

[cookiebaker]

Think the new MM OIL

i wish our state would get off it's hypocritical high horse and legalize it.. every state around us has (and is booming budget wise thanks to taxes on it).. but those in power here cant seem to realize the financial gain for the state, and health benefits for those in pain.. If it doesnt help them directly (financially) they wont consider it.

Best we are allowed here is CBD, and while sometimes helpful, not nearly as much as MM would be

 

[Harpy]

Much more comfortable than bed Auriel, more back friendly.