How are you today?

[Harpy]

Please look after yourself and get better we need your input and great advice to help us
I have good news, I got a text from the hospital and I have an gastroenterologist appointment at 3 pm on the 23rd March. Whoo just off 4 years wait. Hopefully I can get a start on relieving this reflux

 

[cookiebaker]

Take care of yourself Auriel!

Great News, @Harpy !!

I am just plain tired lately.. not been sleeping well. other than that, I am hanging in there.
Labs on Wed, and chat with the spine surgeon on Thurs...

 

[Harpy]

Yes it will be a relief it the gastro dr can find a reason for this reflux .
Will be two less pills to pop.
Hope all goes well with your appointment. Our lack of sleep should be the number one thing our docs should be able to help with. It makes things a whole lot worse.
Yeh that’s all we seem to do, hang in there, maybe next dr appointment will help us, oh no wait maybe the one after that.

 

[JayCS]

Yeah, @Auriel, hope you don't need to stay away too long, your loving way makes a lot of difference to us here!

The T4 (thanks to you, @cookiebaker, hope you're better soon, too)
seems to slowly be increasing my "slow" energy, so I can do lots all day with much less breaks, just have to keep it all slow, including table tennis.
I'm still only taking ?3% of a tablet, so haven't even finished half of my first one, after taking these specks since Feb 24th. At this rate one 25µg tablet will last one month. Increasing the speck causes more insomnia, it's doing that more than enough as it is.

To adapt @hope23's "pain preference" question to an "energy preference" angle - I'm preferring to use this new T4-energy slowly without needing breaks, rather than quick ("cat") energy and then need breaks.
This also illustrates the importance of hope23's idea in watching out how to distinguish the types of pain by asking the preference question. This is of course only relevant to people who are interested in getting a handle on their symptoms themselves.

I hadn't up to now been able to distinguish and influence my energy types this clearly. Although praps the way for that has been cleared by distinguishing 15 fatigue types.
The 3rd jab stopped the energy bursts I'd always had, and now the T4 has praps brought them back, however they feel different to before, plus I have to use them differently. Originally I could use them for 2 minutes and then immediately slow down, without backlash. Now I do get a calculable backlash. Unlike the previous energy bursts they don't feel "normal", they're somehow subdued, something like "slower bursts", not exuberant, like they used to be. Distinguishing them helps me see if/how to use them, a really important help in my daily life, contributing greatly to its quality.
Sleep is still effective, "but" reduced from 9h to 5-8h, and still restorative, even when short. I'd started the T4 whilst stopping my antihistamine, around 2 weeks ago. I hadn't up to now had a look if the suddenly effective sleep is from the jab (Nov 7th) or the antihistamine which I started at the same time to curb its histamine effects. Stopping the antihistamine at the same time as taking the T4 now greatly increased sleep breaks to 1-3h, so I tried half (5mg) and am now back to one (10mg).

To tie that energy vs. insomnia dilemma back to hope23's "pain preference" question: This like all treatments is always a question of "symptom preference". Unless we're lucky to find a treatment with no downsides. Some treatments don't have downsides, some are a matter of balance (esp. GABA) and some are a question of weighing upsides (main effects) and downsides (side effects).

 

[Badger]

Take care Auriel, we'll all be wishing you well.

 

[johnsalmon]

I just noticed that I am now a Distinguished member. I have never been called Distinguished in all my life .I will have to let my Facebook followers know!!

Really made my day!!

 

[Harpy]

I noticed I am a senior member lol . First time I been called a senior . Get out my walker and and a glass of water on bedside table for my false teeth
Ps
Don’t really have false teeth lol

 

[johnsalmon]

I noticed I am a senior

been a senior for many years now - don't mine getting old its just all the problems that come with it that drives me up that tree. we should have a beer together meet you half way (well further for me then you) at Cook the Queen city of the Nullarbor got a good pub and the fishing is great

 

[cookiebaker]

congrats on your new distinction, @johnsalmon! LOL

 

[JayCS]

My wife's got CoV since yesterday. Radical acceptance is stopping me from worrying what could happen. We're distancing and disinfecting all the time. Que sera sera.
Maybe my usual anti-viral treatments help (gargling with calendula essence and pelargonium).

It'd be ironic if it did get me in this moment, cos my T4-energy's increased a bit more....

Finding music gems by listening to my decade old tapes and getting shazam to unravel mysteries.

My cardio said no worry about forgetting my appt. today, they like me cos I always have such a good mood despite being sicker than most, and they should apologize that I often have to wait quite a bit.
Reason I forgot apart from distraction was my downsides of T4 atm: more insomnia and headaches.

 

[hope23]

Ok so im having a poor me day(which i really dont like, and its not generally who i am, there are so many who are sicker than i am and have worse long term outlook)
The last 2/3 weeks have been f$#$ing brutal(scuse the language). My pain meds needs have almost doubled, and all the while im still trying to keep them as low as i possibly can(to avoid/minimise opioid induced hyperalgesia(more pain is sooooo not what i need right now)), im stretching nearly constantly in some way or another as this helps relieve certain symptoms, im using my magnesium cream like its going out of fashion, im using my zostrix strictly to keep on top of it. Im watching what i eat and avoiding foods i know raise my pain levels. It honestly feels like nothing im doing is helping(even though in the logic part of my brain i know id be worse if i wasn't doing all those things)
And tomorrow is my 29th birthday which i know has kind of sent me to this poor me place, but to put it bluntly im just miserable my pain is so bad i cant think straight let alone achieve anything and then on top of that one of my employers is a dick and not very flexible when it comes to my need to work in different ways at times(and dont get me started on the comments when god forbid i take a sick day).

Sorry guys just needed to get it out or I'll spend the whole day fighting back tears

 

[JayCS]

needed to get it out

Yeah, hope, get it out, in the way you need! (Crying usually makes my pains worse for hours, so I occasionally try it, if I know it's a few drops, but generally try to avoid it, like I try to avoid seizures.)

So, my energy is still OK, still testing negative, but pain is up from 1 the past few days to 4-7, fever feeling, feeling generally sick as in real flu rather than fibro flu, nausea increasing.
To all accounts this is now just the exciting matter of how my body will cope, don't need external tests... Best now see what the next supps and eating do. Maybe it'll vanish... My wife's lost some taste.

 

[hope23]

Yeah, hope, get it out, in the way you need! (Crying usually makes my pains worse for hours, so I occasionally try it, if I know it's a few drops, but generally try to avoid it, like I try to avoid seizures.)

So, my energy is still OK, still testing negative, but pain is up from 1 the past few days to 4-7, fever feeling, feeling generally sick as in real flu rather than fibro flu, nausea increasing.
To all accounts this is now just the exciting matter of how my body will cope, don't need external tests... Best now see what the next supps and eating do. Maybe it'll vanish... My wife's lost some taste.

Oh thats awful, im hoping it passes quickly for you, and isnt too damaging or draining.
Sending healing thoughts

 

[cookiebaker]

so im having a poor me day.... ....just needed to get it out

no need to apologize, i think we have all been there at least once... and it is good to get it out, get it off the chest, and hopefully things improve, even if just a little bit.

i had my spine surgeon consult today - kind of depressing, really... I am looking at a fusion of C6-7.. BUT, that cannot happen until I have quit smoking completely, and test negative for any nicotine byproducts at least 6 weeks in advance of any surgery... which means, no gums, no patches, no nicotine of any kind for at least a month prior to the test.. and this is all dictated by the insurance companies..

So... somebody please lock me in a room with no access to cigs for at least a month, please?

 

[hope23]

need to apologize, i think we have all been there at least once... and it is good to get it out, get it off the chest, and hopefully things improve, even if just a little bit.

It those weeks where no matter how much you do to try and improve things it just feels like its just getting worse and worse

i had my spine surgeon consult today - kind of depressing, really... I am looking at a fusion of C6-7.. BUT, that cannot happen until I have quit smoking completely, and test negative for any nicotine byproducts at least 6 weeks in advance of any surgery... which means, no gums, no patches, no nicotine of any kind for at least a month prior to the test.. and this is all dictated by the insurance companies..

So... somebody please lock me in a room with no access to cigs for at least a month, please?

oh no!!! Hopefully it will go smoothly, and the giving up smoking isnt too taxing, none of us need extra stress on our bodies