G’day, new here
- Thread starter Harpy
- Start date
, Thanks harpy, 
Harpy
Very helpful member
- Joined
- Oct 12, 2022
- Messages
- 538
- Reason
- DX FIBRO
- Diagnosis
- 11/2004
- Country
- AU
- State
- WA
How did you go with your scan Auriel? Hope you got through it ok 
when do you get your results?
I had a totally crappy night last night. I’ve no idea what was happening, I’ve had my fair share of major surgeries and procedures and never once been worried or scared , but last night I was scared I’d die .
Started all of a sudden, was just after 10 pm I’d been watching telly while crocheting. When this weird feeling come over me, I felt sick and then thought I was going to pass out. I couldn’t move my limbs or talk. I tried to lean over so if I fainted I wouldn’t hit the floor. It come and half of the dizzy/woozy feeling went and when I could kinda shuffle I left lights and tv on ( I never doo that, I hate wasting power) and headed directly to bed. ( my bedroom is opposite my recliner.
When I laid down it made it worse , I actually think I faded in and out of consciousness. I couldn’t even ask my H for help. This is when I thought I’d die in my sleep. My little dog was laying up near my head, she always gets under the doona. After 2am I felt woozy but needed the loo and could walk to loo holing onto furniture and the walls , got back in bed and slept till 7 am. Something isn’t right, I got into a gp and because I’d lost consciousness and had numbness on the left thigh and both cheeks, I am having a MRI of my brain on Monday just as a precaution.
I have been very slow today, brain has a pressure and feels like too big for my skull and just feels slow, if that makes sense.
when do you get your results? I had a totally crappy night last night. I’ve no idea what was happening, I’ve had my fair share of major surgeries and procedures and never once been worried or scared , but last night I was scared I’d die .
Started all of a sudden, was just after 10 pm I’d been watching telly while crocheting. When this weird feeling come over me, I felt sick and then thought I was going to pass out. I couldn’t move my limbs or talk. I tried to lean over so if I fainted I wouldn’t hit the floor. It come and half of the dizzy/woozy feeling went and when I could kinda shuffle I left lights and tv on ( I never doo that, I hate wasting power) and headed directly to bed. ( my bedroom is opposite my recliner.
When I laid down it made it worse , I actually think I faded in and out of consciousness. I couldn’t even ask my H for help. This is when I thought I’d die in my sleep. My little dog was laying up near my head, she always gets under the doona. After 2am I felt woozy but needed the loo and could walk to loo holing onto furniture and the walls , got back in bed and slept till 7 am. Something isn’t right, I got into a gp and because I’d lost consciousness and had numbness on the left thigh and both cheeks, I am having a MRI of my brain on Monday just as a precaution.
I have been very slow today, brain has a pressure and feels like too big for my skull and just feels slow, if that makes sense.
- Joined
- Jun 8, 2021
- Messages
- 1,902
- Reason
- DX FIBRO
- Diagnosis
- 08/2006
- Country
- UK
- State
- UK
I cancelled it, (I've been getting headaches though the day) I'm going in later this afternoon) take it easy harpy, hope they get to the bottom of what's going on and fast 
Harpy
Very helpful member
- Joined
- Oct 12, 2022
- Messages
- 538
- Reason
- DX FIBRO
- Diagnosis
- 11/2004
- Country
- AU
- State
- WA
Good that you can still get in and get it done. No good about the headache though 
there rotten things.
As usual I know they won’t find anything
it’s just a precaution 
but as long as nothing untoward is going on in my head .
I originally just thought it come from my neck as I was looking down a lot crocheting. I got the imaging app on my phone so will get images and report when they’re done. So won’t have to wait long.
there rotten things. As usual I know they won’t find anything
it’s just a precaution but as long as nothing untoward is going on in my head . I originally just thought it come from my neck as I was looking down a lot crocheting. I got the imaging app on my phone so will get images and report when they’re done. So won’t have to wait long.
- Joined
- Jun 8, 2021
- Messages
- 1,902
- Reason
- DX FIBRO
- Diagnosis
- 08/2006
- Country
- UK
- State
- UK
Whats an imaging app? (I haven't heard of one of those before) do the hospital send you the actual results as images!? yes it's better to be safe cos it doesn't sound right at all
Harpy
Very helpful member
- Joined
- Oct 12, 2022
- Messages
- 538
- Reason
- DX FIBRO
- Diagnosis
- 11/2004
- Country
- AU
- State
- WA
Yes I have the apps from the both imaging departments I use on my phone and they send all images and the reports done to app.Whats an imaging app? (I haven't heard of one of those before) do the hospital send you the actual results as images!? yes it's better to be safe cos it doesn't sound right at all
Once only dr could access. Then I just sign in and have them at the ready. It’s great as I love seeing them , X-rays, scans extra have always interested me.
- Joined
- Sep 5, 2020
- Messages
- 3,161
- Reason
- DX FIBRO
- Diagnosis
- 02/2020
- Country
- DE
Reminds me of the occasion as a teen where I laid down with severe costochondritis pain and couldn't move my ribcage anymore, so couldn't breathe, and thought I'd die, but then managed to move up again.
Sure hope you find out some kind of origin, praps trigger. From you description it does sound like brain, but of course everything's related. Any idea of any trigger, anything you did different in the hours before or that day? Meds? Foods? Or external triggers like weather?
(The so beautiful sun now is already nauseating me when I get too much heat and light at the same time, that today was at 10am, another reason for me to get up earlier for gardening. Something I'd never thought possible half a year ago.)
Harpy
Very helpful member
- Joined
- Oct 12, 2022
- Messages
- 538
- Reason
- DX FIBRO
- Diagnosis
- 11/2004
- Country
- AU
- State
- WA
I do get bad rib pain and struggle to breath in at times but mine is from DISH.
Only thing I did out of the ordinary was dig a trench. It’s as wide as the shovel head and about 40cm deep. Got 10 metres dug and hit a gum tree root. Oh god it jarred my neck, so put shovel down and organised an excavator to do it.
That’s why I initially thought it come from my neck but knew it’s probably because I crochet too much in one sitting.
But am awake and feeling better this morning. Will get up and enjoy my breaky.
What causes the sun to make you ill, think you’ve said before, just can’t remember what it was.
I love sitting in the sun to warm up this time of year.
- Joined
- Sep 5, 2020
- Messages
- 3,161
- Reason
- DX FIBRO
- Diagnosis
- 02/2020
- Country
- DE
- Joined
- Sep 5, 2020
- Messages
- 3,161
- Reason
- DX FIBRO
- Diagnosis
- 02/2020
- Country
- DE
Thanks for asking, this is making me put my thinking cap on what to do about it.
Doing a search for it here, I had it last year, but hadn't mentioned it before.
I'm pretty sure it came after the CoV jabs, after which I had nausea from moving for a few months (first 2) to weeks (3rd). That would make it appear a mast cell issue. But not sure how that works.
Explanations like sun poisoning or hyperthermia or allergy don't fit, cos I don't have a skin reaction, and it's not dehydration (a headache from that recently in the evenings making me drink 4 rather than 3 litres). It takes less than 5 minutes if the sun is strong enough and if I'm only in it for short, it stops when I go into the shade, if I'm in it long the nausea can remain for hours(?)
I'm wondering if my cure-all cold showers can alleviate or prevent/reduce the reaction, otherwise I doubt anyone has an idea how else to try to improve it?
