G’day, new here

[cookiebaker]

not sure about pine nuts, but a lot of the anti-inflammatory diets say nuts are a good thing.. might be worth checking into that angle?

 

[Harpy]

Thanks cookie, will do as it sounds all so positive. I eat a lot of nuts beans, chick peas and lentil, I fill up my slow cooker with then before the meat and veg goes in.

 

[Harpy]

Well what a week I have had. I am knackered.
Yesterday with gastroenterologist went well. First up I got weighed and hight got measured. My bmi is 25. I asked the nurse where did my height go? Lol I am now just 160cm, even with my shoes on Used to be 164cm tall.
Well dr is quite concerned about the severity of my reflux. She asked about when it started in January? The date on referral. I said no it started around April 2019 and had just gotten worse and worse. I said January was the last updated referral saying my symptoms were worsening as I started to choke on food. She Has booked me into hospital on 12th next month for gastroscope. So not long to wait. So looking forward to that. Atleast one problem may get sorted.
How is everyone? Hopefully doing ok.

 

[Auriel]

That sounds awful, harpy! (You're choking on your food). Is it some kind of oesophagus issue? or gerd's or something? Also, is the gastroscope the same as an endoscopy (I had 2 endoscopy's), the 1st didn't go well,I got scared and couldn't breath, starting choking during it, now I found a way to deal with them (I just breathe slowly through my mouth?) I'm glad you're back on, (I did notice you were missing, I do notice when members go missing)

 

[Harpy]

That sounds awful, harpy! (You're choking on your food). Is it some kind of oesophagus issue? or gerd's or something?

Yes Auriel it’s pretty scary. Gets to the stage you dread to eat. Been happening since January . My gp said it’s cause from the reflux. I always drink while I eat.
I thought it was a by my extra dry mouth caused by sjogrens.
On a positive note my reflux has helped me lose another 6 kg. As I don’t eat after 3/4 pm.

Also, is the gastroscope the same as an endoscopy (I had 2 endoscopy's), the 1st didn't go well,I got scared and couldn't breath, starting choking during it, now I found a way to deal with them (I just breathe slowly through my mouth?)

Yes they’re the same , this gastroenterologist has that printed on my admission form.
Oh that sounded scary Auriel. Glad you have worked away through it ok.
I had one many years ago when I got diagnosed with coeliac. I was luckily out with it so don’t remember anything.
I'm glad you're back on, (I did notice you were missing, I do notice when members go missing)
Naw that’s so nice

 

[Auriel]

It wasn't very nice, but 2nd time around was much better, and they gave me a cup of tea and a biscuit after it (that's always welcome ) they make us stay awake during ours, do you have gluten free things? or do you just cut wheat and gluten out altogether?
️

 

[Harpy]

It wasn't very nice, but 2nd time around was much better, and they gave me a cup of tea and a biscuit after it (that's always welcome )

Haha bring on the bickies,

they make us stay awake during ours,

The one I had, I was well not fully under, think it’s called “ twilight “ under but not under lol

do you have gluten free things? or do you just cut wheat and gluten out altogether?
️

Totally GF, no wheat oats, barley or rye. I have my own foods even my own toaster ect, even separate peanut butter ect. I get so sick if I get glutened. Even after all these years I cannot get used to gf bread. Yukky

 

[JayCS]

is the gastroscope the same as an endoscopy

Yes they’re the same

gastro- is stomach, endo- is looking "in", but not saying how far in or which end....

Haha bring on the bickies,

Absolute poison for my GERD and stomach burning... takes a day to recover from a single one.
I don't "choke" on food, I don't think, can't even imagine how that would work. Closest is night reflux.
But I have my esophagus blocks from the Schatzki ring, yesterday I ate a little bit of chocolate first thing after my 25 evening supp pillls, that stopped any further eating for 20 minutes. Luckily massager helped. Need to take more care with chocolate now, like with carrots, has to be chewed till liquid before swallowing....

I was well not fully under, think it’s called “ twilight “

Yeah, I need this, staying awake first time made me feel I was being tortured and killed.
I first thought I didn't tolerate the Propofol they use for twilight, but now I make sure they keep me warm, because lying there naked makes me ill (severe sore throat not from the treatment, but the cold)

Even after all these years I cannot get used to gf bread.

There's one sort I like(-d), oat based. Since losing my appetite from my not-CoV I can't stand any bread, gf or not, but I've now gone over to buns. But only 100% wholemeal, can't stand anything less. Got 3 yesterday on the hunch and actually managed two. But not gf, no way, I know what you mean.

 

[Harpy]

Absolute poison for my GERD and stomach burning... takes a day to recover from a single one.

Yes same , I have very little choice in nice gf bickies I like.

I don't "choke" on food, I don't think, can't even imagine how that would work. Closest is night reflux.

It’s dang scary eating, got to concentrate so hard , chew into pulp and swallow with water. It’s helping. The night reflux is a rotter too, if I have a good night and get to sleep, you get woken up with reflux coming out your nose, it’s totally disgusting

Yeah, I need this, staying awake first time made me feel I was being tortured and killed.

You did it awake, cricky that’s nuts.

I first thought I didn't tolerate the Propofol they use for twilight, but now I make sure they keep me warm, because lying there naked makes me ill (severe sore throat not from the treatment, but the cold)

Naked, don’t they put a gown on you? I had a gown first time.

There's one sort I like(-d), oat based. Since losing my appetite from my not-CoV I can't stand any bread, gf or not, but I've now gone over to buns. But only 100% wholemeal, can't stand anything less. Got 3 yesterday on the hunch and actually managed two. But not gf, no way, I know what you mean.

Yes oat based bread would be nice . I do miss a good Vegemite, lettuce and cheese sandwich

 

[Auriel]

I've never tried Vegemite (though I don't think we can get it in the uk?). I'd like to try it

 

[johnsalmon]

I've never tried Vegemite (though I don't think we can get it in the uk?). I'd like to try it

vegemite cures every thing - take a cow add a lot of salt and what's left over in the vat from making beer and you have vegemite

 

[Auriel]

That's how you make it!? From a cow!? Why does it start with vege if there's a cow involved?

 

[johnsalmon]

That's how you make it!? From a cow!? Why does it start with vege if there's a cow involved?

millions of aussie kids have been brought up on vegemite
Australians spread about 1.2 billion serves of Vegemite on toast, bread or biscuits every year. If this was all placed end to end, it would go around the world three times.
- 235 jars of Vegemite can be produced every minute at Kraft Foods' Port Melbourne manufacturing facility. That's 338,400 jars a day.

- Over 22 million jars of Vegemite are sold every year.
- 30 jars of Vegemite are sold in Australia for every one that is exported.

the cow is a common vegemite joke actually its brewers yeast with a mix of Vergie's and malt and some spice. it is high in B9 B2 B3 and B1 and it is high in salt and most aussies eat it for the taste

 

[Auriel]

Harpy! This came up on my news feed. Have you ever seen one of these? Golden trapdoor spider (sorry, any arachnophob's), it looks HUGE! it looks like a crab with really long legs! It's a supermodel spider!!!)

 

[JayCS]

Yes same , I have very little choice in nice gf bickies I like.

Ah, gf bickies, that might work for me too!

It’s dang scary eating, got to concentrate so hard , chew into pulp and swallow with water. It’s helping.

What happens if you don't? I'm not scared of my blocks. I try to massage it down, if that doesn't work inside of 15 mins. I use my fingers and start over, no problem.

The night reflux is a rotter too, if I have a good night and get to sleep, you get woken up with reflux coming out your nose, it’s totally disgusting

Hmm, never had that. For me the acid fire in my throat is the difficulty, esp. now I know it'd increase my Schatzki ring. Luckily I've got it fully under control - elimination tons of foods.

You did it awake, cricky that’s nuts.

I used to do without most anaesthesia too. Got a bit whimsy now, cos I know pushing thru is harming.

Naked, don’t they put a gown on you? I had a gown first time.

Gown? I now wear 5 pairs of socks and long john's most of the year, even before Raynaud's my feet always needed to be warm. A gown is for me naked. Last time I spoke with my doc beforehand and we sorted out a strategy with an additional thick duvet and keeping on my long johns etc.

Yes oat based bread would be nice . I do miss a good Vegemite, lettuce and cheese sandwich

I've never tried Vegemite (though I don't think we can get it in the uk?). I'd like to try it

Auriel, Auriel, Auriel, don't get fogged over by "those Aussies" , Vegemite is MARMITE! Really! Well, not quite, it's got a bit different veggies in it. But both no cow. I've always wanted to try it, we've actually got an Aussie shop in our town. And I love marmite! But with MCAS yeast being fermented is a problem, and the salt also, I think something else. And I used to use similar yeast products, milder, not so salty. Or are you saying you don't have marmite in Wales? Look at the bottles, almost the same, the name vegemite is actually pinched from marmite.
And it's originally actually invented by .... a very important German scientist. But we don't have it here, our main milder sort is called Vitam-R. Lots of variations worldwide, but I think UK marmite may be the most popular....? There's also an Australian version of "Marmite", whilst the UK version is called "Our Mate"!!!! in Australia, as well as "NZ-mite" in NZ....