How are you today?

[Kelly Anne]

I don't want to bring anyone else down but if you want me to be totally honest I am having a moment (more like a month) where I feel like I'm done! I'm done with the pain, some new, some familiar. I am done with feeling like my life is limited in certain ways and I have to work around round my pain. I am done with seeing Doctors, Specialists, having scans and x-rays. I am done with when my pain flares up it effects my anxiety and depression and then I have to deal with more medical issues. Basically everything I do in my life revolves around my pain and struggling. I would love a time when I am free from all of it, so that's why I feel like I'm done!

 

[Eff2013]

I totally get you Kelly Anne, I am going through a very rough time at the moment. I have been in and out of hospitals for the past few months with unusual symptoms aside from fibromyalgia. I have now been diagnosed with the autoimmune disease Myasthenia Gravis. My life has been turned up side down. I have been on this forum for a few years now getting support and learning a lot from everyone. Now I have a new hill to battle.
so please stay strong and know that people are here to listen.
I also have to remove my thymus because it’s enlarged but muy condition needs to stabilise a bit with medication before that happens.
not sure if you are new here but welcome.

 

[Kelly Anne]

I totally get you Kelly Anne, I am going through a very rough time at the moment. I have been in and out of hospitals for the past few months with unusual symptoms aside from fibromyalgia. I have now been diagnosed with the autoimmune disease Myasthenia Gravis. My life has been turned up side down. I have been on this forum for a few years now getting support and learning a lot from everyone. Now I have a new hill to battle.
so please stay strong and know that people are here to listen.
I also have to remove my thymus because it’s enlarged but muy condition needs to stabilise a bit with medication before that happens.
not sure if you are new here but welcome.

 

[Kelly Anne]

I am so sorry your going through all that. And I feel like I cant even help because I don't know what Myasthenia Gravis is. Yes I am new and that was my first post. Thank you so much for replying especially with all you have on. Thank you for your kind words and listening. You know you wont be battling that hill alone. You stay strong too.

 

[Auriel]

That's it, @JayCS !!! Sauerkraut is fermented and probiotic, too! (Same category) You know about a few things ,so I figured you'd be good to ask (which you are cos you've answered my kerfiry question "and" told me what it tastes like)

 

[Auriel]

Hi @Kelly Anne, welcome to the forum , it is really annoying when you wanna do things and fibro restricts it, until we find something that can make it better we have to accept it has being the way it is (it's really nit a nice condition) fierce acceptance is the only wat to go right now with it, ps your not bringing us down what your feeling is entirely normal, you come here when you like to talk about anything (that's what I made the thread for)

 

[sunkacola]

I don't want to bring anyone else down but if you want me to be totally honest I am having a moment (more like a month) where I feel like I'm done! I'm done with the pain, some new, some familiar. I am done with feeling like my life is limited in certain ways and I have to work around round my pain. I am done with seeing Doctors, Specialists, having scans and x-rays. I am done with when my pain flares up it effects my anxiety and depression and then I have to deal with more medical issues. Basically everything I do in my life revolves around my pain and struggling. I would love a time when I am free from all of it, so that's why I feel like I'm done!

Boy oh boy do I ever understand what you are saying! I have even used the same phrase: I'm done!
If only feeling and saying that would make it BE done, right?!

But honestly I think it's healthy to, every now and then, just vent about it. I think we earn that with being stoic and uncomplaining and practical and doing all the proper things we can do to take care of ourselves the rest of the time.

Sometimes I even yell the "I'm done", if it won't bother anyone nearby. (My animals have learned that I'm harmless and barely pay attention on the rare occasions when I do that). I sometimes go one farther, and say "F$%& this S%$#!!". It does nothing for the pain but it can do wonders for my state of mind when being accepting and stoic just needs a little bit of a break. It can also end up with me laughing at myself, which of course is always good medicine.

So my recommendation to you: Go somewhere (even if it is a room in your house) where you won't bother anyone (or yell into a pillow) and just yell at it for 5 minutes or so. Cuss and swear if you like, tell it what you think of it. If you can go outside and throw something, all the better. I once many years ago, before fibro and over something different, went to a thrift store and for $5 bought a bunch of really ugly chipped plates and then went and threw them at a wall in a trainyard and smashed them all. The cleanup was tedious, but it was worth it.

 

[Auriel]

HI EVERYONE! I've been a quiet for a bit, I didn't feel like I could be happy (and there's such bubbly members I wanted to join in with but I felt like I couldn't right now) I've been getting some similar symptoms (and pain) to what I had before, (before last operation) but ive been put on the list for some more tests so hopefully it shouldn't be much longer a wait

 

[johnsalmon]

finally got to the rheumatologist all 10 minutes of him - RA he said it was - even thro I have no RA symptoms my liver test shows I have infection and it is increasing each blood test how it does not say what the infection could be - so he picks RA and prescribed me with medication that has side effects that could fill a book - it is basically one of the tabs they use for cancer -take it once a week but have to have folic acid tab 48 hours before and 48 hours after which apparently stops damage to the liver. Takes at least 1 month to take effect but the thing I like about it is it suppress the immune system so the Hashimoto's should decrease somewhat.
See him again in 2 months so if I still have the fibromyalgia type pains then hopefully he stop thinking its RA

 

[Auriel]

I'm not a Dr , J. S (or medically professional) but I don't like the sound of it all (it sounds like a flimsy mess to me) that's just my opinion (I think they should go more in depth with you)

 

[Badger]

HI EVERYONE! I've been a quiet for a bit, I didn't feel like I could be happy (and there's such bubbly members I wanted to join in with but I felt like I couldn't right now) I've been getting some similar symptoms (and pain) to what I had before, (before last operation) but ive been put on the list for some more tests so hopefully it shouldn't be much longer a wait

Fair play to you for posting although you haven't been too well, it's not easy when we're feeling rough, it takes a lot of energy emotionally to bear.

 

[Auriel]

Thanks badger

 

[Auriel]

I wanted to tell you a story, I was going through my play store the other day and found this really pretty anti anxiety game (it looked nice) then I saw a price of £29 49 (after the first few try's free) I thought that's s bit steep, every month just for a game, read it again IT WAS EVERY WEEK!!! if you don't already "have" anxiety I'm sure you would after paying that!

 

[Badger]

Yes that would definitely be a shocker, what were they thinking charging that much, a stress ball is cheaper

 

[Auriel]

I don't know it's crazy