What is this? Pain in my face

[Hopefullyyours]

Hi again! Sry im still gettin used to this site so sry if im writing in wrong places!! I went to the internist dr today! She said due to my chronic foot problem ive had for 2yrs and me being inactive n not standin much at all in 2yrs, she believes i weakened my legs n arms. She sendin me to physical therapy and its so weird cuz all in here keep sayin bout pt!!!! she said keep up w the neurogolist dr but she feels thats my problem!! When i told her i did 5min on stationary bike and my symptoms were then exacerbated, she told me i shoulda only done 30seconds!! She aslo sendin me to a orthepedic dr for both my soles of my feet, she said that has to get better for my overall health even tho i been to 4 foot specialist who said plantar fasciitis etc and nothing has EVER HELPED THE PAIN N PINS N NEEDLES N SWELLING she did write me a script for merve pain, not lyrica! Somethingelse starts w a c! She said come bak in a month after doin all these things!! Please LET THIS B MY ANSWER TO GET MY LIFE. BACK

Ps she never surmised its FM or anything else with a name. This was my 1st visit w her.

 

[JayCS]

Sounds good for starters!

When i told her i did 5min on stationary bike and my symptoms were then exacerbated, she told me i shoulda only done 30seconds!!

Love that one!

 

[sunkacola]

Exercise is never bad for a person. Being active is what the human body is designed to do. Being inactive is proven over and over again to be very bad for the body in many ways. Exercise doesn't have to mean a long hike or lifting weights. It can mean just moving your body throughout the day. But if a person doesn't stay at least somewhat active, it is guaranteed that whatever the problem is it will get worse. If five minutes is too much of something, by all means to 30 seconds! Or 15 seconds, followed by a walk around your house. Or sweeping or vacuuming your house, even if you have to do it in three sessions broken up by breaks to rest. Whatever. But, do it. Daily.

 

[Hopefullyyours]

Exercise is never bad for a person. Being active is what the human body is designed to do. Being inactive is proven over and over again to be very bad for the body in many ways. Exercise doesn't have to mean a long hike or lifting weights. It can mean just moving your body throughout the day. But if a person doesn't stay at least somewhat active, it is guaranteed that whatever the problem is it will get worse. If five minutes is too much of something, by all means to 30 seconds! Or 15 seconds, followed by a walk around your house. Or sweeping or vacuuming your house, even if you have to do it in three sessions broken up by breaks to rest. Whatever. But, do it. Daily.

Ya i def walk around my house and go out some, its just that bike and my 3 min stretches brought this all on suddenly in july!! I was getin up off the floor for thr first time in a long time and felt so heavy. The dr yesterday pressed hard on my legs ans told me to lift them up against her and the shook! Now lastnite layin down the feel SOOOO MUCH HEAVIER N WEIRD!! IDK IF PPL UNDERSTAND THIS FEELIN EXACTLY N WEAK

 

[Hopefullyyours]

Ya i def walk around my house and go out some, its just that bike and my 3 min stretches brought this all on suddenly in july!! I was getin up off the floor for thr first time in a long time and felt so heavy. The dr yesterday pressed hard on my legs ans told me to lift them up against her and the shook! Now lastnite layin down the feel SOOOO MUCH HEAVIER N WEIRD!! IDK IF PPL UNDERSTAND THIS FEELIN EXACTLY N WEAK

Ps when i got up today they feel almost like big balloons, and im skinny! B4 goin, they didnt yesterday, only weakness weirdness was gettin up off couch.

 

[sunkacola]

Well, Hopefully, just do what you can. that's all any of us can do. And yes, many of us here understand what you are talking about.

Could I respectfully request that maybe you could use fewer capitol letters in your posts? On forums capitol letters are usually reserved for making extreme emphasis on just one or two words, and anything else is considered yelling. thanks.

 

[Hopefullyyours]

Yes sry i didnt know

 

[Hopefullyyours]

I was just wondering, do you ever get pain sitting down on hard surface like bench? I get almost like headache on my butt, sounds weird i know! Its like aching and can almost feel the bones insteada cushioning on hard floor or steps!?!??

 

[Affinity]

I'm so happy for you, hopefullyyours! I hope you begin to start understanding how to manage and heal your symptoms!

I will also say that I spent several years trying to figure out plantar fasciitis and tried everything from steroid shots to orthotic shoe inserts but in the end the thing that worked finally for me was strengthening my feet. I used a rebounder and would go on it barefoot/ I still use a rebounder sometimes but I really do think for me it was weakness in my feet and I have to strengthen them to get rid of the plantar fasciitis, so good luck!

 

[Affinity]

I will also say that my PT has me doing to most ridiculously easy exercises ever but I can tell I am weak even doing those but she promises that with practice I can regain my strength and find sustainable activities that help keep me consistently active!

 

[Hopefullyyours]

I will also say that my PT has me doing to most ridiculously easy exercises ever but I can tell I am weak even doing those but she promises that with practice I can regain my strength and find sustainable activities that help keep me consistently active!

I did work w chiropractor strengthening my feet never ever helped my pain, swelling n pins n needles in soles. Not heel at all. My orthapedic surgeon didnt know what i had and still have burnin when i stand morenthan few min in same spot. My Moms porcelain floor hurts me right away even w cushioned shoes!!!! Did u have any of these things? And are u weak from FM? Does that make u weak long term or just Feel weak but ur really not??

 

[JayCS]

pain sitting down on hard surface like bench?

Oh YESSSSSS! I was confused quite some time, because I definitely can't sit on soft stuff, esp. sofas you sink into, cuz of my back/SI joint (SIJ).
So I always thought I liked harder seats. But squirmed around, couldn't sit anymore, changed position, put one foot under, had to get up.
In concerts, church and stuff I always sit where I can get up without disturbing anyone (or prefer services where people can get up for singing).
Then a doc-pain-questionnaire asked if I can sit for 30 or 60 mins. on a hard chair and that make me realise I can only sit there for max. 5 mins.
Now I know that, I am even more wary. In the talks about fibro & pain management in the rheum. clinic there were only hard chairs for all of us.
I used a jacket or top for sitting on for 3-4 mins. at a piece, the rest of the time I stood up or leant against a wall. And wondered how all the other fibro-patients managed. Only 1-2 others got up part of the time. But once they all complained at the end and the lecturing psychologist told us to put it in the feedback, so we all did. But I am still so surprised that they complained, but remained seated, even amongst ourselves...
In each PT-treatment, whether osteopathy, acupressure, exercises or local cold, I always get my SIJ treated, I wonder if it'll ever get better.
It also pains around at night, making sleeping esp. on my back "hard", even when cushioned. And even if that's not the reason I wake up, I often do back exercises or shower cold to get it back down. At daytime I control it better whilst lying on ma back. It can drive me so mad that I wish I could burn it out somehow. Or makes me want to run away from myself. That's the hard seats again. Avoiding those prevents the extreme.

 

[JayCS]

feet ... swelling n pins n needles in soles... when i stand morenthan few min in same spot. Did u have any of these things?

I have had this, but not primarily. Orthopedic soles didn't help, but didn't harm. More importantly I need shoes without heels for my back, esp. the kyphosis.

And are u weak from FM? Does that make u weak long term or just Feel weak but ur really not??

I call my 'weakness': 'quick exhaustibility', which already shows that my muscles are not really weak, I have almost the same strength as 5 years ago, but they lose their strength quickly when I do more than just stints of activity, esp. in my arms. I can do 20 push-ups, just tried: managed even 33 (in about 1 minute)! But as soon as I have to do more than 1-3 mins. over my head, esp. cleaning windows, their power seems to crumble, I pant like I've been running from a mad dog, much more than now after the push-ups. So I break all these things down to 1min. stints, or 2 or 3, doing something easier in between. I call this "bursts of power" or "straw fire energy". I don't know if it's normal for fibro, cuz I haven't read it or heard it anywhere, and the docs just write it down wide-eyed and shrugging. Might have to do with autoimmune, I sometimes think, I seem to have Hashimoto and praps Sjögren's.

 

[Affinity]

I did work w chiropractor strengthening my feet never ever helped my pain, swelling n pins n needles in soles. Not heel at all. My orthapedic surgeon didnt know what i had and still have burnin when i stand morenthan few min in same spot. My Moms porcelain floor hurts me right away even w cushioned shoes!!!! Did u have any of these things? And are u weak from FM? Does that make u weak long term or just Feel weak but ur really not??

I do get these other symptoms you talked about but for me it was mostly plantar fasciitis and I think this occurred before my fibro diagnosis or around the same time, honestly I don't remember. But a ton of people who don't have fibro get plantar fasciitis and so I don't think I considered it a fibro issue at the time. As far as weakness and pins and needles and swelling goes I have found that zero shoes are best for me and I also do foot exercises even now, mostly spreading my toes and crunching them up, if that makes sense. But the pins and needles also happen in my hands and I don't think they are a muscle issue, more likely a nerve issue for me. I used to get a lot of pain standing in my feet and on different surfaces it is different levels of pain but that has kind of been helped by doing these other things. For me my pain tends to happen standing still but isn't so bad when I walk so I try to keep moving instead of standing still.

 

[Hopefullyyours]

I have had this, but not primarily. Orthopedic soles didn't help, but didn't harm. More importantly I need shoes without heels for my back, esp. the kyphosis.

I call my 'weakness': 'quick exhaustibility', which already shows that my muscles are not really weak, I have almost the same strength as 5 years ago, but they lose their strength quickly when I do more than just stints of activity, esp. in my arms. I can do 20 push-ups, just tried: managed even 33 (in about 1 minute)! But as soon as I have to do more than 1-3 mins. over my head, esp. cleaning windows, their power seems to crumble, I pant like I've been running from a mad dog, much more than now after the push-ups. So I break all these things down to 1min. stints, or 2 or 3, doing something easier in between. I call this "bursts of power" or "straw fire energy". I don't know if it's normal for fibro, cuz I haven't read it or heard it anywhere, and the docs just write it down wide-eyed and shrugging. Might have to do with autoimmune, I sometimes think, I seem to have Hashimoto and praps Sjögren's.

Ohhh thx 4 sharing. For me just today all i did was cut a potato and my arms in seconds is weaker just like that!!