I feel both the opioid discussion on the one hand, and on the other whether short summaries are positive or negative is getting a bit out of proportion.
Any pain medication incl. opioids may help some people, but chances are a lot less, that's from study evidence, from many doc and guideline recommendations worldwide and also forum experiences. So I'm not totally wrong and went into self-chastising mode too quickly.
Doing that was influenced by being reminded to respect other people's experience, which on second thoughts wasn't relevant, as I didn't notice, it was a misunderstanding.
If you are trying to make a big point not really directed at me, I can't see anyone else that needs to be told that either.
The pain clinic I used to go to regularly prescribed opioid medication for people with fibromyalgia, and clearly they wouldn't do that if it generally did nothing for fibromyalgia pain.
Mine did too, but they I think simply do so because they're used to trying it for all kinds of pain. Mine did cos nothing else they could come up with helped, not cos they're anywhere one of the first in line, it was last, except MMJ which was more difficult as it was necessary to apply for it.
But "generally" means the majority of the time, or for the majority of people, or the majority of cases, and this is not true in this case.
I don't know if you've misunderstood
@johnsalmon here. I agree at least with him saying that opioids in the majority of fibro cases do not seem to help much, because that's what I read. You may disagree. Then we will disagree.
Sure, here are some other pain relief options for fibromyalgia:
@ayassresearch , I think everyone here knows about these medications.
Tramadol is addictive. Gabapentin often has serious side effects.
None of these medications are actually good options for most people with fibromyalgia.
I want to ask you, why are you here?
If you are not a person who has fibromyalgia, and have come here to try to give information to those of us who do, it would benefit you to read a good deal of the posts in this forum before you make posts like the above that offer advice, because all of these things have already been discussed at length in many posts.
All this I find unnecessary.
Ayass' introductory post remains a bit mysterious, yes. But in line with an 'interested researcher',
all post contents have been perfect bits of information, put refreshingly concise.
These meds named are a good summary of most important ones that are most often considered, and all fully in line with our experiences too. They are also not just a list of "any", I find them carefully selected, just amitriptyline/Elavil is missing, whilst I think it makes sense to omit milnacipran/Savella altho FDA-approved, both considering recent research. A reminder, even if everyone knew, which I thoroughly doubt, and even if they had been mentioned before on the thread, scattered about, which they haven't.
I found it a neat "sight" for good readability, like paragraphs.
I would have chosen a different order, but that wasn't claimed.
It also wasn't said that these are
good options without side effects.
I don't see it as necessary for newcomers to read so many posts just because things have already been discussed. We answer about things that have already been discussed all the time, and in no previous post were things listed this concisely, so it was definitely put in a new way. I've been one to offer this kind of information in more detail. But I think this short list invaluable as an impulse and to me comes across as positive, not negative. I can't see any implication that we don't know this already. I also don't see such an impulse putting anyone's experience in question, even if it maybe wasn't asked for. We had agreed on it being no problem to answer with information that wasn't asked for.
Above all, the wording is friendly, neutral and the content knowledgeable.
I for one would be unhappy if Ayass went off the forum rather than continue in this vein.
I can see no reason for them to leave. Some aspects may seem unnecessary to be said, but it's all short and nothing wrong.
Everyone needs to get a hang of how to write, esp. someone coming with an understanding helping outside perspective that can contribute with good knowledgeable summaries and maybe a lot more, rather than personal experience. Newcomer verve can have its own charm. And I feel it's good to encourage newcomers unless they hurt others.
