research

  1. S

    I don't know who's crazy

    I just had an appointment with an internist, someone supposedly "more experienced" than the doctors I've been seeing at my local clinic. I just brought up the possibility that I could have mitochondrial toxicity from a study drug I had been receiving. She got nasty, belligerent and said "There...
  2. H

    Two weeks after diagnosis.

    I was diagnosed a couple of weeks ago. Having done some research, I realize I've probably had this for several years. Now in my mid fifties, I've finally gotten to where I need some support with this. Fortunately, my doctor is on board. I look forward to "meeting" you all & interacting. Hsmommy
  3. S

    Nicotinamide riboside you make me feel so young

    Just found this interesting article regarding research done with Nicotinamide riboside. While I have not found any medical papers regarding use for fibromyalgia directly, I did find a recent one describing it as an effective treatment for mitochondrial myopathies. If you are seeing a...
  4. W

    Interesting Older Study re: Pain and Fatigue

    I was looking around for news about Fibromyalgia, and I stumbled upon this older article from 2008. I've always wondered why it seems that specific ailments target one gender more than others. The first time I encountered the situation was when I finally found a name for my bladder condition...
  5. B

    Yoga Classes for Fibromyalgia

    What kind of yoga classes should I take for my FM? I just read a research article recommending 75-minute classes, but most only go for 60 minutes, including a 15-minute nap at the end. My friends say that it should be easy enough to do a beginner Hatha yoga class, to just go slow and breathe...
  6. R

    Do you read the Bible

    In this world, wonders on top of wonders are happening. Ditto with problems. The world is stumbling from one crisis to another and even the best brains are mystified by the flux and unpredictability of events. During my quiet moments I research on the Bible and have come to learn alot, much more...
  7. D

    Advances for migraine - might apply to fibromyalgia?

    I listened to a pod cast about recent advances in treatment of migraines the other day. The older theory for how migraines are caused is that the blood vessels dialate then contract, causing pain. The newest research indicates that migraine is actually a central nervous system sensitization...
  8. K

    Desperate for help!

    I am a 22 year old female with no prior health conditions or troubles. On December 1st 2015 I woke up during the middle of the night with the left side of my chest and left arm numb.. Also some mild pain but mostly a very numb uncomfortable feeling. After waking up and moving around the pain...
  9. G

    What worked for us

    I have no financial ties to any products mentioned here, and no association other than being a member, with any websites that I may mention. If I mention them, it is only because I, as a mother of a child diagnosed with Fibromyalgia, CRPS and CFS/ME, have found them to be helpful. My...
  10. G

    Raising a Child Who Has Primary Juvenile Fibro?

    I am sharing my own experience with raising a child who has Primary Juvenile Fibro. Is anyone else raising a Fibro Child? What have you learned? What's working for you? My child has Primary Juvenile Fibromyalgia and ME/CFS. She beat a round with CRPS that still sort of tries to flare...
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