research

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    Protomyxozoa Rheumatica

    Protomyxozoa Rheumatica is a parasite discovered by hemotologist, Dr Steven Fry. He believes the organism may cause numerous neurological diseases, including ALS. The following is Part I of the transcript of a recent interview with Steven Fry, MD. Please do not expect your physician or other...
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    A Miraculous Misdiagnosis!

    Initially I was despondent upon being diagnosed with an inexplicable genetic variant of juvenile amyotrophic lateral sclerosis. Being only 18 I assumed there was little if anything to remain living for. This all persisted until I stumbled upon an article regarding chemical neurotoxins and a...
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    Advice on Fibromyalgia

    It's entirely possible that muscle strain from stress is causing forehead stiffness. It could actually be a headache you're experiencing--instead of, for instance, the back of your head, it's in the forehead. Eye strain, believe it or not, could be the cause, too. I doubt it's any...
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    Fibromyalgia or ALS?

    trfogey has given you very good answers. He HAS ALS--he knows what he's talking about. Please--for your sake--stay with your GP and let them figure out what is going on. ALS just wouldn't take years. Just because you 'read' it doesn't make it so. People can come and post anything on the...
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    Alone and lost

    Let me begin by apologizing. My thoughts have a tendency to jump all over, making it difficult to follow my thought patterns. Please be patient with me. I'm a 44 yr old single mother of 2 wonderful young men aged 23 and 18, both live at home with me. I stopped working almost 4 years ago, and...
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    Re: A few major concerns

    Re: A few major concerns Does anyone here know, from their journey to diagnosis--if atrophy is possible with MS? I keep thinking that if I had ALS, I'd be worse than I am after a year of atrophy in my hands. Is that a valid assumption? I know the neurosurgeon was concerned--but do EMG/NCVs...
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