research

  1. C

    Newly diagnosed with fibro -- Agoraphobic with PTSD

    The title seems a little silly but I didn't know what to write... haha Hi! I'm 28 years old and was just diagnosed with fibro by my rheumatologist on Monday. The pain has been around for a long time but recently got much more noticeable a few months ago. (As a possible point of reference as...
    • CrazyCatLady
    • Thread
    • back bed chronic pain comfortable diagnosed diagnosis early exercise eye health lost men mental health mri muscle neurologist newly diagnosed pain research rheumatologist scared story stress symptoms tattoo testing timeline vision wrong
    • Replies: 2
    • Forum: Recently diagnosed
  2. T

    Hello all....angy and maybe even in denial

    Hello everyone, I haven't been officially diagnosed yet and quite frankly I'm hoping like heck that I don't have Fibro but it seems as if I pretty much have every symptom but 2 (as well as the allodnia, although I did panic a bit when I had 2 mesquito bites and the next day they felt as if...
    • tracyferrell
    • Thread
    • anger angry arm back burning chair denial disbelief doctor early emg fibro fog flare gabapentin heart mad mri pain research shaking shoulder sounds story surgery symptom symptoms wanted
    • Replies: 3
    • Forum: Welcome new members
  3. D

    Research paper about patient perspective on fibromyalgia

    I was surprised to run across a good research paper that was focused on uunderstanding how fibromyalgia patients view their condition. Many times this kind of research seems to be focused on identifying ways that the patients are making their symptoms worse by having a bad attitude (which...
  4. T

    Sleep

    My understanding is insomnia is a common symptom of this. Personally, I had both sleep onset as well as sleep maintenance insomnia (meaning I didn't sleep at all for close to 3 years). So ... I had to research and experiment with just about every drug out there on my journy to getting better...
  5. Y

    Deal with overwhelming thoughts and feelings due to FM

    Hi I'm a PhD student at King's College London doing research in chronic pain. Our team developed an interesting online study testing a therapeutical process (technique) that helps us deal with our undesirable (such as painful) thoughts and feelings which often occur and can be overwhelming for...
  6. H

    ME/CFS Phone Support Group

    ME/CFS weekly phone support group starting Saturdays at 8pm EST. This is a peer to peer Chronic Fatigue Syndrome/ME support group. This call is designed to support one another through the hardships of this illness by listening and sharing experiences. Join us from the comfort of your own bed...
    • Horizon
    • Thread
    • bed cfs chronic chronic fatigue syndrome diet emotions fatigue free helpful isolation men questions research sharing support symptoms treatments
    • Replies: 2
    • Forum: Chronic fatigue
  7. C

    A "fibro in the news" section?

    I think ever since my husband's diagnosis I've been all over any news articles about fibro management, about new research and so forth. I was wondering if we could maybe have a "fibro in the news" section so we could discuss current news pieces about it? Thanks for your consideration!
  8. C

    Famous people with fibro

    In my research to help hubby with his diagnosis, I've learned a bit about celebrities or famous names that are battling fibro. The biggest name to me was Morgan Freeman - and this helped my husband a lot, as many of the support things we had seen thus far had been women-oriented. The actress...
  9. S

    GABA Deficient Anxiety

    Since the clinic wants to prescribe me a medication that is normally for depression and anxiety, I though it best to research some supplements as alternatives. So without posting a link, if you do a search for "Balancing Brain Chemistry with Peter Smith" you will come to his website. He cuts...
  10. R

    Need Good Doctor in Baltimore Maryland

    My wife's coward of a GP just told her she "can't" prescribe her meds anymore. I think from my research it's more like "won't". She said my wife needs to get them from a Pain Management doctor. My wife has been on the same meds, oxycodone and fleceril, and the same dosage for 10 years. It's...
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