You are all Superheroes

[sunkacola]

I was in a group of people a while back, and part of the "introduction exercise", which was mostly just in fun, was that we were each supposed to state what our "superpower" is. Well, I said mine was that I can communicate with dogs, which is true. But what I (kind of) wanted to say was, "I get up every morning no matter how much pain I am in, and I do what I need to do for the day no matter how depressed I am, and I keep going no matter how discouraged I feel, and I keep moving no matter how hard it is, and I live every day even when I would rather be still asleep in bed!"

All of you here are superheroes in my eyes.

You all live with a condition and health issues that most people do not even understand, cannot even imagine, and you do it every day.
You all keep going no matter how hard life is for you.
You all keep coming here to this forum, giving your time and energy to other people who also suffer with these conditions, and do your best to help and support each other on a daily basis.
When I recently asked for support from you folks, you poured out your caring and support to me and helped me to put things into perspective and move forward in a way that anyone who doesn't know what it's like to live every day with fibromyalgia would probably not have been able to do; not because they wouldn't have wanted to, but because they just wouldn't have gotten it the way you all do.

I am so grateful to and for all of you.
As far as I am concerned, you are all superheroes.
Just wanted to say that to all of you.

 

[30 plus years]

 

[JamieMarc]

Thank you so much @sunkacola !
You are a superhero too. In fact, you are one of my own personal superheroes. I don't know how you do all that you do here in this forum, but I am and will forever be grateful for your superpower that has changed my life.
Thank you!

 

[Mary Alice Long]

I was in a group of people a while back, and part of the "introduction exercise", which was mostly just in fun, was that we were each supposed to state what our "superpower" is. Well, I said mine was that I can communicate with dogs, which is true. But what I (kind of) wanted to say was, "I get up every morning no matter how much pain I am in, and I do what I need to do for the day no matter how depressed I am, and I keep going no matter how discouraged I feel, and I keep moving no matter how hard it is, and I live every day even when I would rather be still asleep in bed!"

All of you here are superheroes in my eyes.

You all live with a condition and health issues that most people do not even understand, cannot even imagine, and you do it every day.
You all keep going no matter how hard life is for you.
You all keep coming here to this forum, giving your time and energy to other people who also suffer with these conditions, and do your best to help and support each other on a daily basis.
When I recently asked for support from you folks, you poured out your caring and support to me and helped me to put things into perspective and move forward in a way that anyone who doesn't know what it's like to live every day with fibromyalgia would probably not have been able to do; not because they wouldn't have wanted to, but because they just wouldn't have gotten it the way you all do.

I am so grateful to and for all of you.
As far as I am concerned, you are all superheroes.
Just wanted to say that to all of you.

Thank you for your praise - I have had fibro for over 40 years. At 75 years old, I'm dealing with several other health issues now, and there
are days it is difficult to function in even the smallest routine tasks. God bless you and know that you are, too, a superhero.

 

[Kitkat57]

Thank you
What, a great post, and yes you are a super hero and do what you have to do,

I personally have taken a leaf from your book, and tried to accomplish something each day.

Today was my kitchen, slowly but surely I got there and worked through the pain doing everything gently, and got it done, I now feel I have accomplished something for the day.

This forum has been a life saver for me to speak to people who know what that horrible pain is like and so debilitating sometimes,

My Hubby is great but I feel like I have made him sad, because he is so concerned the way I am now and to what I was,

Everything is an effort now, and no matter what we all do on a daily basis, it all hurts, but yes I will take super heroes as I think it is very apt for all of us lol
Take care everyone

 

[sunkacola]

@Kitkat57 ....I am so happy to hear that this forum is helping you! That's the whole reason it exists, and I am devoted to trying my best to be one of the helpful people here.

About your husband: try not to allow yourself to feel guilty. Feeling bad about this can only make things worse for you, and you have plenty enough to deal with already.
Rather than thinking of this as something that you are doing to your husband (if that is what you sometimes think), t hink instead of this as something that has happened to the two of you. While the disability is yours, it has happened to him as well, just in a different way. It's not your fault, and you are not responsible for having made him sad. Rather, think of this as something that has come from the outside, and has made you both sad. This is something the two of you can face and deal with together.

You are incredibly fortunate to have a partner who cares and who wants to help. I suggest that the two of you try to focus on being glad and grateful you are together, you have each other no matter what happens, and can face this as a team, and neither one of you has to go it alone. I think that might help you not to feel bad about it.
Take care.

 

[SBee]

@sunkacola and @Kitkat57 couldnt agree more. I have suffered a lot of guilt thinking I was letting my husband down by not being able to do many of the chores I could, or that we could no longer enjoy a day out because of chronic fatigue. And yes, my poor health worries him and that saddens me too.

Sunkacola is right - having fibromyalgia is not a choice we made. And I think if we are in a caring loving relationship, we try to share a pretty equal division of labour in all things - thats a mark of respect I think. I mean personally I wouldnt go near anything he tried to cook unless it was a slice of toast, and I have never chopped a log in my life. We each work to our strengths, even if health means my strengths have altered.

And when he came out of intensive care and rehab after a serious accident a few years ago. I helped him in even basic tasks. It was a no brainer, of course I would, even when he felt guilt. Why would I not? Now our positions have switched. And he has taken the reins on many things I now need help with or simply cannot do anymore. Thats a partnership.

It takes me a lot longer to accept my limitations than him - he is far better at asking me if I really should be doing something that will probably cause pain.

My guilt has lessened,now its more of a pang of slight pain as to what we had ,but on the positive, we really appreciate what we can do instead. In some ways, once I had accepted my health,( whilst trying to find ways to be the best I can) , it appears what we now share has made us even closer. Its me who gets frustrated rather than him!

be grateful for your husbands support, you know if positions were reverse I am sure would do the same for him if you could.