- Joined
- Sep 5, 2020
- Messages
- 3,161
- Reason
- DX FIBRO
- Diagnosis
- 02/2020
- Country
- DE
I'm trying to get my sleep more effective using 10% CBD oil, since I've got almost all my pains down, and. It's increasing my sleep bouts from 1.5-2h to about 3 hours, but I am sleeping longer and very sleepy/drowsy in the daytime and that's getting a real problem for fun and work.
This is the background:
The only thing that has helped up to now was amitriptyline 4 months last year, but it made me drowsy in the daytime and had 7 further side effects, similarly 2mg of extended release melatonin 5 days last month: drowsy and gut problems. May try melatonin again with a lesser dose if CBD doesn't work out.
First try with the 3 recommended drops of the 10% CBD oil was a problem for my gut and made me very drowsy in the daytime too, so I stopped after 2-3 days. In between I tried once again. Then a week later I started getting so much more tired and exhausted than ever before, so I had to go on sick leave. Hasn't stopped. So I thought I might as well try the CBD oil again, but on a lower dose, so I'm only using 1 drop now.
My questions:
Could the first drowsiness & exhaustion a week after taking the CBD oil have been some kind of delayed effect of it?!?
It's the 9th day now of taking 1 drop, and I am now sleeping 11-13h in 3h stints, with 1-2h of breaks in between. When I sleep less than the 11h I start getting bad mood, sort of depressed, am fairly drowsy in the daytime, and have been losing at (outdoor) table tennis the last few days instead of normally winning almost all games in the last few weeks, due to slower reactions, I even trod on a ball and 2 near misses. All new to me.
Today I tried to get up after 11h, altho I was still tired. That was OK, but it didn't exactly improve my "performance" ;-). Should I still try to get up altho I am dead tired? It's got hard for me to know now when the right time is. I'm taking it quite a bit earlier now, often at 6 or 7pm, 2 or 3h before bed.
BTW I tried and managed to sleep 10h net on avg. in January. That was OK, but too difficult to reach without 'help' to keep the sleep breaks down when working more. Then I started napping in the afternoons that worked quite well, without making the nights worse. All not too much of a problem, until I have to work...
Should I keep going on the CBD oil for a while all the same, so my body can get used to it and if so how long?
My wife and my acupressurist suggest staying at it for at least 2 weeks, if not 4. But I have to go back to work in one week, and I wdn't be able to, the state I'm in at the moment - and I haven't really got much time for anything, sleeping so much. Even tho I'm thankfully now on disability pay, meaning I only have to work about 20h/wk, on one day a week I'd have to get up at 6:30 (unless home office saves me ;-P), which'd mean going to bed something like 6pm or continue sleeping in the afternoon...
I wouldn't call it narcolepsy tho (I've seen the description in the recent thread). My sleep need went up from 7.5h to an avg. of 8.5/9h the years before my full flare, not being able to go to bed late any more, then the sleep breaks got worse, due to many (30) reasons, now I've got them all under control, but I still keep waking up, don't know why. The suggestion of my sleep psychiatrist was to try "Restex" (L-Dopa) even if they hadn't really found RLS, but after reading the side effects I preferred to try melatonin, CBD oil, and next ashwagandha, perhaps GABA. (I don't tolerate meds, & the many other herbs & supps I've tried didn't do anything at all.)
Thanks for any ideas & suggestions, whether you've had similar experiences or just want to try to guess
This is the background:
The only thing that has helped up to now was amitriptyline 4 months last year, but it made me drowsy in the daytime and had 7 further side effects, similarly 2mg of extended release melatonin 5 days last month: drowsy and gut problems. May try melatonin again with a lesser dose if CBD doesn't work out.
First try with the 3 recommended drops of the 10% CBD oil was a problem for my gut and made me very drowsy in the daytime too, so I stopped after 2-3 days. In between I tried once again. Then a week later I started getting so much more tired and exhausted than ever before, so I had to go on sick leave. Hasn't stopped. So I thought I might as well try the CBD oil again, but on a lower dose, so I'm only using 1 drop now.
My questions:
Could the first drowsiness & exhaustion a week after taking the CBD oil have been some kind of delayed effect of it?!?
It's the 9th day now of taking 1 drop, and I am now sleeping 11-13h in 3h stints, with 1-2h of breaks in between. When I sleep less than the 11h I start getting bad mood, sort of depressed, am fairly drowsy in the daytime, and have been losing at (outdoor) table tennis the last few days instead of normally winning almost all games in the last few weeks, due to slower reactions, I even trod on a ball and 2 near misses. All new to me.
Today I tried to get up after 11h, altho I was still tired. That was OK, but it didn't exactly improve my "performance" ;-). Should I still try to get up altho I am dead tired? It's got hard for me to know now when the right time is. I'm taking it quite a bit earlier now, often at 6 or 7pm, 2 or 3h before bed.
BTW I tried and managed to sleep 10h net on avg. in January. That was OK, but too difficult to reach without 'help' to keep the sleep breaks down when working more. Then I started napping in the afternoons that worked quite well, without making the nights worse. All not too much of a problem, until I have to work...
Should I keep going on the CBD oil for a while all the same, so my body can get used to it and if so how long?
My wife and my acupressurist suggest staying at it for at least 2 weeks, if not 4. But I have to go back to work in one week, and I wdn't be able to, the state I'm in at the moment - and I haven't really got much time for anything, sleeping so much. Even tho I'm thankfully now on disability pay, meaning I only have to work about 20h/wk, on one day a week I'd have to get up at 6:30 (unless home office saves me ;-P), which'd mean going to bed something like 6pm or continue sleeping in the afternoon...
I wouldn't call it narcolepsy tho (I've seen the description in the recent thread). My sleep need went up from 7.5h to an avg. of 8.5/9h the years before my full flare, not being able to go to bed late any more, then the sleep breaks got worse, due to many (30) reasons, now I've got them all under control, but I still keep waking up, don't know why. The suggestion of my sleep psychiatrist was to try "Restex" (L-Dopa) even if they hadn't really found RLS, but after reading the side effects I preferred to try melatonin, CBD oil, and next ashwagandha, perhaps GABA. (I don't tolerate meds, & the many other herbs & supps I've tried didn't do anything at all.)
Thanks for any ideas & suggestions, whether you've had similar experiences or just want to try to guess
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