Muscle Twitching

[JayCS]

places like Mayo Clinic, Cleveland clinic (in the US) and I am sure there are similar places in Europe that are highly regarded sources.

Oops, I was gonna say: I haven't yet found a German site of similar repute, but haven't really looked to be honest. The German forum I'm on doesn't up at all come to any of my English ones, so also isn't a resource for pointing me to good resources. FMA UK is a basic resource site in the UK, but they also often measure things by what Mayo Clinic says. The English "equivalent" would be the site of the NHS, the National Health Service. FMA UK does point me to a German equivalent of itself, a fairly large charity, but without a forum. I've tried contacting them, let's see if they answer this year. The new UK fibromyalgia guidelines are on rcplondon.ac.uk (Royal College of Physicians). These are all reputable, but all only help for basics. For the nitty gritty of getting realistic ideas for our everyday life healthline, verywellhealth and healthrising have good ideas, but of these especially healthrising does occasionally seem to tout or sell certain things. I have a few basic German go to sites, but not for fibro, one is brilliant for all supps, with enormous detail, and one generally naturopathic, but lots missing there.
OK, now I know why I made a second post of this.... it was going to be 2 lines. That's how I always start .

 

[Looby69]

Hi @nicolecozzi thanks for your post and I'm glad that my post brought you a little relief, even if it has been short lived.
I can totally relate to how your neuro left you feeling. The first one I saw said it was muscle tension through anxiety. Its so dismissive if them and feels like they can't be bothered to dig deeper and explore our symptoms further. Do let me know how your EMG goes and do reach out if you'd like to chat further. I still believe my symptoms are more than the neuros have diagnosed. My husband said that ALS is a rare disease, the specialists have rules it out and that I have to accept my diagnosis. With so many worrying symptoms though it's just not that easy. I started taking an anti depressant earlier this year and it has really helped with my anxiety but it hasn't fixed any if my symptoms. Here to listen and share if you want to

 

[nicolecozzi]

Thank you so much for your reply. I’ve been trying to stay calm but until I get this EMG I think it’s impossible. I have burning pain in both arms that comes and goes. Joints popping all day. Lump in my throat with difficulty swallowing and I’m so fatigued. I can’t walk as long as I used to. My muscles ache when going up stairs or even folding laundry. I lost both parents this year within 4 months of each other, my daughter was in the hospital for a week and diagnosed with ulcerative colitis and my husband just started a business that has him living an hour away right now. So the first neurologist just said it was stress. My GP suggested fibro but said she wanted more testing. My EMG isn’t for another week so it’s been tough.

 

[JayCS]

I’ve been trying to stay calm but until I get this EMG I think it’s impossible.

Not sure if that one test will really make a difference - for me it wouldn't, whether negative or positive outcome. So what have been using to stay calm, have you tried all the kinds of relaxation exercises yet?

Lump in my throat with difficulty swallowing and I’m so fatigued. I can’t walk as long as I used to. My muscles ache

Have you checked your throat for actual lumps? Or had it checked? It's not that common in fibro and similar, but if there is no lump ('globus sensation') then it might be from muscle tension, stress, as well as acid reflux and postnasal drip, which are things you could explore. With tension, stress and maybe reflux we'd be back to all the different relaxation exercises.
Your fatigue and ache would be typical for fibro and whether it is or not you would probably have success by pacing better to recover: More task-switching (e.g. laundry with something else), more breaks (e.g. after going up stairs and even in between), reducing the length and intensity of activity. And at the same time keeping up a more "passive activity" with stretches and exercises.

Examples for laundry plus stairs, cos laundry is an extremely tough one for me, especially overhead:
a) Hanging laundry out on low lines instead of high,
b) not using pegs by putting it across two lines,
c) first laying it on a pile whilst folding later, or folding it immediately but with breaks.
d) So I don't have to take several piles up the stairs I pile the whole lot up right up to my chin. There are much cleverer ways, but not as spectacular, especially when I have to unlock the flat door if I haven't left it open . Yep, imagine it: Holding that 2 foot pile in one hand/arm, fumbling my key out of my pocket with the other - best possible by reducing the strain by leaning backwards, preferably against the door frame... If we were smart, we'd use our laundry tubs. But that wouldn't be a challenge now, would it?
e) To distract as well as for breaks I like doing it with phone and headphones on, whether phoning or music, or laptop.
After that usually an hour "break" from anything using my arms (housework, kitchen work). Or if necessary with elbows or forearms resting on something.

 

[Looby69]

Thank you so much for your reply. I’ve been trying to stay calm but until I get this EMG I think it’s impossible. I have burning pain in both arms that comes and goes. Joints popping all day. Lump in my throat with difficulty swallowing and I’m so fatigued. I can’t walk as long as I used to. My muscles ache when going up stairs or even folding laundry. I lost both parents this year within 4 months of each other, my daughter was in the hospital for a week and diagnosed with ulcerative colitis and my husband just started a business that has him living an hour away right now. So the first neurologist just said it was stress. My GP suggested fibro but said she wanted more testing. My EMG isn’t for another week so it’s been tough.

Hey @nicolecozzi I can relate 100% to all of this. I had my EMG earlier this year (April) all clear, but still the symptoms persist. I'm okay with walking, that actually helps take my mind off things. You do sound like you have a lot going on and I'm so sorry to hear you lost both of your parents this year, that must have been the most difficult time. I can perhaps understand why your neurologist may think anxiety, as much as it sounds like a brush off. 1st neuro I saw said mine was. Its does feel like a cop out and so dismissive. However, the logical side of me says, he is a qualified neurologist, he knows the red flags.
What do you think is happening? We know out own bodies and we know when things don't feel right. Your EMG will hopefully rule a lot of things out.
As well as Fibromyalgia, I was diagnosed with Esophageal Dismotility. That was after a Barium Swallow. Still experiencing a clunk like sensation when swallowing and getting more reflux, especially with soft foods.
My twitching has calmed down but at its worst it is just awful. Full body twitches, still get the jerks and prickling. And yes I have the popping joints, muscles, tendons, cracking neck and wrists. I'm recovering from Frozen Shoulder, still haven't got full ROM back, and that's from last year. Are you in the UK?
@JayCS thanks for your input. You've always got an abundance of kindness and ideas to help others. Your presence on this forum is invaluable

 

[cermckinney781]

Hello, I also have been dealing with the same thing but in both arms and legs mostly at night though. So my muscles hurt all day. My doctor prescribed restless leg medication for it but it doesn’t seem to help any more. I found that my heating blanket helps me with the pain and relaxes my muscles

 

[sarahloudobby]

I have muscle twitches on and off, mainly in my legs but also in my eye lid sometimes!

 

[Auriel]

Is it just one eye that gets affected @sarahloudobby? (cos the left side of
me always seems the worse effected for "some" reason??? my left eye and side of my face and sometimes by mouth, this fibro is such a strange condition

 

[Con]

Is it just one eye that gets affected @sarahloudobby? (cos the left side of
me always seems the worse effected for "some" reason??? my left eye and side of my face and sometimes by mouth, this fibro is such a strange condition

Is it twitching by mouth or slight shake (tremor)? When I smile sometimes my corner of mouth shakes. Right side - for me. Sorry Auriel

 

[sarahloudobby]

It’s only my right eye and it’s like the lid is being pulled up

 

[JayCS]

It’s only my right eye and it’s like the lid is being pulled up

Just wondering if youtube has any exercises for twitchy eyelids, and it has at least 7.
Not sure about legs, cos either with "twitchy leg muscles" it comes up with a certain muscle group that's apparently called "fast twitch muscle fibres". And "twitchy legs" comes up with restless legs. I think I'd try the eyelid versions first, then try to adapt those for the leg muscles. And if that doesn't work try restless leg exercises/yoga.

 

[Auriel]

It’s only my right eye and it’s like the lid is being pulled up

Quirky fibro, (definatly an odd bean of a condition)

 

[cookiebaker]

for me the eye twitch is right at the outer corner... like it is being pulled back. Usually right eye, but sometimes left.. major stresses seem to bring on the eye twitch - does not happen as often there as the twitching in other places.. most active area is in the hip/gluts area.

 

[Auriel]

It's like a tiny little movement @Con it's calmed down since I stopped drinking regular coffee, maybe i was short circuiting

 

[Shel]

Wow! I’m sorry you are experiencing these. And, I am comforted to hear you describe the bone aching and hot poking. Both are words I have used and I feel like people have no idea what I’m talking about. Hugs to you!