Muscle Twitching

[Auriel]

@Fibrotortoise, that’s where i get my muscle twitches (in my thigh + top of my leg) it drove me crackers last night and through early hours (I’m speaking to my dr tomorrow cos pains gotten worse) I’m still curious why I’ve not been tested for m.e m.s, no mri’s now the forum’s is talking about a.l.s and other initial things, I’m so tired and hurting today I was gonna go on the venting thread but I can’t find it. I’m the equivalent of a grumbly bumbly adult toddler today, I’ve had my grumble now (I dont have many) hope everyone’s ok today anyway ️

 

[Deano]

@Auriel my twitches in my calves and thighs feel like popcorn popping every so often!! How long have you had the muscle twitching for and is it just in your legs? As long as you are not having any weakness or atrophy I assume the twitches are harmless and just another irritating symptom of Fibro. Have you looked up Benign Fasciculation Syndrome? Very similar symptoms to Fibro.
Take care.

 

[Auriel]

Few years Deano ] usually after some form of exercise, just lately it’s been bothering me while I’ve been trying to sleep, I swear if fibro was a person I’d paintball it every colour of the rainbow for a least 2 hours , I’ll take a look at bfs in a bit, take care too

 

[Deano]

Yes, my twitches seem to happen after exercise or anything strenuous. Especially my arm twitches. Trying to do less with that arm now to see if it helps? Also stress is a key factor too I think?
Take care.

 

[sunkacola]

@Fibrotortoise, that’s where i get my muscle twitches (in my thigh + top of my leg) it drove me crackers last night and through early hours (I’m speaking to my dr tomorrow cos pains gotten worse) I’m still curious why I’ve not been tested for m.e m.s, no mri’s now the forum’s is talking about a.l.s and other initial things, I’m so tired and hurting today I was gonna go on the venting thread but I can’t find it. I’m the equivalent of a grumbly bumbly adult toddler today, I’ve had my grumble now (I dont have many) hope everyone’s ok today anyway ️

I am sorry you are feeling so punky these days, Auriel, and I am sending you a warm smile and a hug.
I know what days like that are like and I completely empathize with you. I am not generally a complainer at all (it doesn't help, after all) but some days I truly want to rant and rave, just to get it out. And sometimes doing that actually does help because it lets off some steam so to speak.

Just want to say that if you ever have the need to moan, vent, or complain and you are too tired to find the "right" forum in which to do that, you are welcome to do so wherever you find yourself here. We are not going to mind if it's not in the "proper" forum sometimes!
I wish for you to feel better very soon.

 

[sunkacola]

Yes, my twitches seem to happen after exercise or anything strenuous. Especially my arm twitches. Trying to do less with that arm now to see if it helps? Also stress is a key factor too I think?
Take care.

Stress is definitely a key factor to this. It's key to every single thing that ails sentient creatures of all sorts. Stress can be a killer, even for something like a flatworm, let alone for far more complex organisms like mammals and birds. But with fibro, of course, we really never know what is causing this particular thing on this particular day because it seems at times pretty random. This is why I always advocate for doing whatever you can do on a daily basis to support physical and mental health and strength. I think it's our best defense. Unfortunately, even the best defense is not a cure for us.

I think if the twitches are coming after exercise, doing some experimenting with the kind and length of exercise that you are doing would be informative, perhaps. Try doing less, or for less time, or do a small amount and then a break, then another small amount, and so on. There may be a way that you can regulate what you do to avoid the unpleasant results.

By doing a lot of experimentation I have learned to listen keenly to my body and I know the smallest little subtle warning sign that I need to stop to avoid bad consequences.

Of course, what I still need to work on is actually stopping every time when I get that tiny warning! Even now, too often I say to myself, "I know I should stop but just one more thing here....."

 

[Auriel]

Thanks sunakola yeah I thought there was a venting thread on here somewhere? I think it was under need to vent, oh i dunno I can’t think tidy Yeah just the last few days I’ve been hurting a lot more than usual + bit sleep deprived, it might calm down, I’ll just wait and see

 

[Jemima]

Hey Auriel,

I'm sorry you're having a hard time today, and that your pain is still worse. I can relate so much to the adult toddler vibe - I think my fella would agree, that was me yesterday too!

I’m still curious why I’ve not been tested for m.e m.s, no mri’s now the forum’s is talking about a.l.s and other initial things,

Lovely, I'm worried you read this in my post last night where I was talking about the positive of fibromyalgia not being progressive like some other conditions - although, of course, it is very prone to variation, and goes through ups and downs. I didn't mean to make you worry by mentioning those health issues!

ME (myalgic encephalomyelitis) is just another name for CFS (chronic fatigue syndrome), which I think you've had diagnosed - if I remember? It's a condition that - just like fibromyalgia - is not progressive, and is diagnosed based on exclusion and symptoms, so there isn't a test for it. Its presentation is quite similar to fibromyalgia, but with much more emphasis on extreme fatigue, and not so much on pain (I know you know that - just explaining for other readers!)

Both MS (multiple sclerosis) and ALS (amyotrophic lateral sclerosis) have signs and symptoms that differ from fibromyalgia - such as slurred speech and loss of limb mobility. These are not conditions that a doctor would necessarily test for unless they saw the right indications. Of course, if you have any concerns, definitely discuss them with your doctor and push for further investigation! But I think that so many of us - particularly on bad days - can fall into the trap of medical catastrophizing, and that can be really triggering. I really hope you're OK, and if you're going through strange symptoms, I'm here for you

 

[Jemima]

I didn't mean to make you worry by mentioning those health issues!

I just read another post about it Need to keep up, don't I! But still, my message stands - sending big bear hugs!

 

[Auriel]

Thanks jemima, it’s settled a little now, I think i just need a higher dose gabapentin, I’ll see what doc said

 

[Jemima]

Thanks jemima, it’s settled a little now, I think i just need a higher dose gabapentin, I’ll see what doc said

You're amazing and badass. Good luck

 

[Auriel]

 

[JayCS]

Just out of interest what dose magnesium do you take? I am currently supplementing with 375mg per day and wonder wether that is enough?

Can't see that this has been answered yet(?)
375mg is about the max., if it's the net magnesium fraction, that'd be about 3000mg altogether, depending on which type.
(If I take more I get loose stool, even from malate & glycinate.)

10mg of Amtriptyline which I've never taken.

Good on ya, if possible, most have a lot of side effects, some get better, some worse. I had 8-9 sfx after 4 months, so stopped.

 

[LadyPenguin]

Hello I am brand new on here but not new to chronic illnesses and constant pain. I noticed your post and want to say that I also have had muscle twitching. It is definitely scary. Reading your post made me feel not so alone. I don't know why it happens. It happens at any time for no apparent reason. I also noticed slight stuttering when I talk which is a new one.

 

[Jemima]

Hello I am brand new on here but not new to chronic illnesses and constant pain. I noticed your post and want to say that I also have had muscle twitching. It is definitely scary. Reading your post made me feel not so alone. I don't know why it happens. It happens at any time for no apparent reason. I also noticed slight stuttering when I talk which is a new one.

Hi LadyPenguin,

Welcome here

I'm sorry to hear you've been dealing with all this for some time - but glad that reading here feels helpful. Do you have a sense of what might have triggered a change in your symptoms, and have you discussed it with your doctor? Might be worth getting checked out, just in case there's something else going on!