DebMarPir
Active member
- Joined
- Jul 10, 2021
- Messages
- 74
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
I have been diagnosed (sort of) by two doctors, but my internist is still sending me to a neurologist for confirmation. I seem to be the only one I have seen that has spasms all over the body. Feet, hands, arms, inner thighs, back, neck, etc. This is actually the main source of my pain, though I have some without them. I was put on neurontin (gabapentin) which is a lifesaver to me. I know some say they experienced side effects, but not me. In fact, I started at 300mg a day, a very low dose, and since the spasms hit have ended up at 1800mg a day, but one can go over 3,000+ a day. When the pain is bad from the spasms of course I am massaging, I roll on tennis balls, like on he massager, try to break up the spasm with my hands even. It may work for a while but often "Poof!" and the spasms are back an hour or two later. When they told me they thought it was fibro, I thought they were wrong, as I didn't have all over body pain yet. But then the spasms hit 2 weeks ago. Does anyone else have these? I also lie on a heating pad or take a hot bath when desparate for more relief.