Is this doctor correct???

[Firo30]

I have an appointment with a Lyme specialist and got names of which physicians from the website Ilads I have appointment Feb 6. My daughter said when searching Lyme can mimic Fibromyalgia also. After tons of reading and talking thru IG with someone who had same symptoms and has Lyme. She explained to use only a Lyme specialist. So I will wait to see one. Seems like basic protocol is some ELISA test but it gives such high false negatives. I will find out more during my appointment. After reading sure sounds like anyone with Fibromyalgia should rule out Lyme and not just with ELISA test

Yes ELISA Tests for Lyme disease is not always accurate , it has to be repeated many times before getting an accurate diagnosis , anyway hope you don’t have Lyme disease but better to be sure

 

[james192]

That's good advice @Firo30; I'm looking for an affordable physiotherapist and will inquire when I do find one. I'll let you know what I find out.

 

[james192]

I did the physio for years. it is not a cure, and physio can actually do some harm, if the physio doesn't know about the points of pain, or microtears in the muscle. we lack restorative sleep, so our bodies do not repair during sleep.< I got tired of going through physio repeatedly without doing much good. < whatever works for you, but I find stretching properly is as good.

 

[james192]

I asked for a referral to a neurologist to make some newer symptoms are not MS. Which she did give me. My appointment is Dec 18th. I think I will research see if I can find a physician who may also have Fibromyalgia. Or at least someone who understands better. I don’t believe the philosophy that walking further and exercising makes it better from what I have read from others that if that was the option to get rid of the pain etc we would all be tri athletes and in serious training. Im not saying not to exercise but when you are in pain there is no way I can hardly walk.

 

[james192]

the FM routine getting sent to every specialist to be told its FM. FM has so many symptoms similar to many medical health problems. I started out saying, "it can't be FM causing all this", and walked the FM path through numerous doctors. frustrating

 

[Schuyler Levoe]

If you've been in the woods or been bitten by a tick this might be necessary. It could be Fibromyalgia with myofascial trigger points which are extremely painful and until these trigger points are taken care of walking is not good, it could cause lameness. Which I can attest to, I did it. I pushed to hard and now I am suffering.

 

[sunkacola]

If you've been in the woods or been bitten by a tick this might be necessary. It could be Fibromyalgia with myofascial trigger points which are extremely painful and until these trigger points are taken care of walking is not good, it could cause lameness. Which I can attest to, I did it. I pushed to hard and now I am suffering.

Hi there,
It is definitely true that over doing anything, whether it is in what you eat or drink, or in physical activity, can make your Fibro symptoms and especially pain, much worse.

But I have to disagree with your statement that "walking is not good", because it is definitely good. You just need to be aware of your body and not overdo it, and if you have been sedentary for a long time you have to work up slowly.

the truth is, walking - to the degree that you can, and this takes some experimentation, - is one of the very best things that most people with Fibro can do for themselves. It gets you outdoors, especially if you are able to be in nature and not just a city street, and it gives your body much needed exercise and keeps your muscles working and your blood flowing as it should.

I would hate to see anyone discouraged from walking because of this post. It may not be the right exercise for one person, but it is very good for most.
Just sayin'