Hi Lemon - I have been having extremely severe side effects from the first jab = vaccination since I had it on Nov 30th... which - probably together with my specific form of fairly severe fibro is debilitating me even more than fibro alone ever did.What are jab-effects?
Unfortunately, the 'good' side effects of the vaccines only mean the immediate light ones that most get... (I read some articles on that.) "Thankfully" there are 5-6 more vaccines already close to being put to use. One recent theory is that not using the whole of the spike protein may diminish the side effects. But these all can't target the rare severe side effects I'm experiencing, it'd be very lucky if it'd improve those...@JayCS ive heard the more s.e. Means it’s working, some with no side effects means they need more jabs, the tests show no antibodies made with no immunity. Still, makes you wonder if they could make better ones for us in the future. Also,you said you’d not take cortisone shots for the pain because of side effects. What is so severe from them that wouldn’t be worth help from pain?
You are right, Lemon. We are detectives in our own bodies, and that is a good way to put it. It always comes down to us as individuals to determine what actually works for us and what doesn't...and then be ready to change that completely when that effect changes. The general research is wonderful and will in time and with luck help all of us, but the most important research is what each of us does with out own bodies.Hey besties, I’ve been on steroids again now, which I asked about side effects. The doctors said it is the worse side efx when you’re on them daily for many months to years, without breaks. I take them off and on as rx. However I am injured as well as my FM, which I suspect is not uncommon. Pain amplified by life and our symptoms whichever are the most severe often made worse as side efx of our meds or pollution or chemicals or something in our immediate environments. I feel like we are detectives of our own body, more educated on our own skin than the biggest research yet to be thought upon. I’m in so much pain, and the brain fog, and other things. I don’t like some people telling others what works for them CANT work for others. That since it didn’t 9/10 times it’s impossible they are not that one person. How about giving people and options a try and listening that we all aren’t the same and that’s a good thing, to be respected- best wishes you guys feel better soon too
thank you for putting that so well, that’s exactly what I was trying to sayYou are right, Lemon. We are detectives in our own bodies, and that is a good way to put it. It always comes down to us as individuals to determine what actually works for us and what doesn't...and then be ready to change that completely when that effect changes. The general research is wonderful and will in time and with luck help all of us, but the most important research is what each of us does with out own bodies.
I have one but am in too much pain to get there, the drive hurtsGet a scrip from primary for OT.
I’ve heard of people dying from tampered with drugs ordered online, so I must agree that there is serious Caution here. I’d agree with a doctors orders or find second opinions when you must but don’t buy poison because you can’t from rite aidJust because I feel it is important, I want to caution everyone, as I have done in the past, about taking steroids. Steroids do nothing to address any problem the body has, and instead they over-stimulate the adrenal glands and that makes you feel better for a while but it does nothing that is actually helpful and they have terrible long-term effects.
Used regularly, your own system of adrenal functioning will become dependent on the steroids and will cease to be able to function without them.
Using steroids can, among many other things, increase the risk of heart disease, cause gastro-intestinal bleeding, blurred vision, and increased muscle weakness, stimulate the growth of certain cancers, and worsen other medical problems including chronic pain syndromes such as fibromyalgia, as well as significantly lowering the immune system to the point of making a person far more at risk of disease or infection (which is especially unwise in the age of Covid).
Steroids taken orally (by mouth) have also been closely linked to liver disease.
There are so many other things that are safe and effective ways of managing fibromyalgia that I always want to encourage people not even to consider using steroids as a response to FM.
It is in my opinion, and the opinion of many others who know a lot more about the body and its functioning than I do, a very unwise way to manage this or any other condition.
I would especially warn people off from getting steroids against doctor's orders, and/ or secretly imported from places out of the country, on the internet, or through uncertain outlets, which any place secretly sending them or selling them to someone without a valid prescription would be, as all of these are likely to be scams or equally may be selling something even more dangerous than steroids.
Thank you for your input, I hope you continue to feel better. I agree it helps very temporarily so we need something better to feel good long termHello, hope you feel better today. For what it is worth before I was diagnosed I figured out that taking steroids helped me feel a lot better and did this three times. Each time for a week weeks or a month of so. Each time starting at a high dose and gradually taking less. Each time after a few days I would feel better, then feel virtually normal again for quite a while and then as I lowered the dose it would come back, or it would return when I came off them. My doctor is not interested in any of this and just tells me to put up with it all. Hard to do when it';s you and it affects you a lot physically and pain wise. It changes your life. I would have to get prednisolone myself now secretly imported, as cannot get them the usual way. I noticed when taking the steroids that it was a balancing act. And I have read of people on other forums who take them to help with this, sometimes long term eventually with a maintenance dose. But they have to buy them and work it out themselves. Steroid tablets are very cheap to produce so this myth that you must be careful because they might send you fakes makes no sense with cheap tablets. Its cheaper for them to send you the real thing. Every day we have to gauge how we are an d make decisions based on that. Not easy. Especially when the brain fog kicks in.