Fibro and being sick?

[judy2learn]

I would love to be able to go for walks. My husband and I used to do that until the first time my fibromyalgia flared in Sept 2019. I had pain in my knees so bad that I went from walking fine on Monday morning to using a cane by noon that day and using a walker by Wednesday morning.

I've seen two orthopedic surgeons, neither of which could tell me why I'm experiencing so much pain. (That was before the fibro diagnosis.) I can walk about 50 feet with my husband beside me but then must stop and rest before returning to my starting point. The only grocery stores I shop in MUST have electric scooters available.

It's very discouraging. My mind tells me that more physical activity would help to tire my body and help me sleep better, but I no longer have the stamina or ability to do much physical activity.

 

[sunkacola]

It's very discouraging. My mind tells me that more physical activity would help to tire my body and help me sleep better, but I no longer have the stamina or ability to do much physical activity.

I think it's really a matter of finding what works for you.
If it is not walking, then maybe it's something else. Stretching is good, yoga, pilates. You can even do exercises in a chair or lying down. Anything at all that involves using your body counts, and is better than nothing.

If you do a search on the internet, you will find a whole lot of different options, many of which have free YouTube videos to follow. Try them out until you find one that works for you. I want to encourage you not to give up and believe there's nothing you can do. If you really want to find something, I think you can.

 

[judy2learn]

Thank you for the encouragement! I admit that I record every episode of an OPB (Oregon Public Broadcasting) program that shows chair exercises for seniors. My fatigue, lack of energy, and lack of motivation leave me doing nothing. I think when I get up tomorrow morning, I will bring a chair out of the kitchen and do a 30-minute set of chair exercises. (Now that I've said it "aloud", I have to follow through. Wish me luck!)

 

[sunkacola]

@judy2learn , good for you! Let us know how it goes.

 

[Moose]

I wake up nauseous and with a headache at least 25 days of the month.

 

[Mary Alice Long]

Yes, I have the extreme exhaustion, chronic nausea, loss of appetite, muscle weakness, soreness,
cramps....."fibro on steroids". Been getting worse the last 2 years, after being diagnosed over 35 years ago.
Be sure to have your blood calcium level checked - all my symptoms coincide with hyperparathyroidism.
That is worth looking into......

 

[Ian waxman]

Hello everyone from this newbie with so many questions. I have had fibro for many years on and off but this time it isn’t going at all. I usually go down with the extreme tiredness , being sick, and diarrhoea being main symptoms. I recently had a good heath check because I was having so many symptoms. I had an endoscopy, a CT body scan and a full blood count.. I have gastritis but I knew this, all bloods were fine. I also have IBS and some divicular disease…again I knew about these……….So they found nothing knew to explain why I feel so ill. Does anyone else get the extreme tiredness with bad nausea plus all the usual fibromyalgia symptoms??

Hi!sorry to hear of your ongoing symptoms.i’ve had fybromyalgia for 30 years and it doesn’t go away.the symptoms may ease but you will then get a flare up which is terrible,it can last days,weeks,months.nausea,violent headaches,extreme fatigue are amongst the many symptoms but everybody’s different but I do suffer badly with these.ibs is nearly constant with me,very awkward at times.the nausea and stomach cramps are horrendous.i’ve tried every med and numerous tests and all the doctor says is it’s fybro.i’m currently on fentanyl patch 75 mcg but i am trying to wean off them and believe me it’s hell!!never go on them.i’m moving on to duloxetine so hopefully i will be rid of the fentanyl.i’ve suffered with horrendous pain all down my neck to my feet for 30 years and it’s come back with lowering the patches.do look on the forum it will give you a great insight and you will find you’re not alone.i hope you get to the bottom of your symptoms,don’t take no for a answer,demand to be reassessed!!take care xx

 

[Ian waxman]

@Ian waxman

I feel for you, I truly do.

I am one of those that don't really get the pain, I feel almost guilty or even fake at times because of that.

You are very fortunate to have a wife who sticks by you, that is a rare depth of relationship indeed

No wonder fibro has been quickly deposited in the 'too hard basket' all these generations. The medical profession prefers to ignore or downplay if they cannot answer the questions that face them.

Being so world wide, I wonder if the 'older countries" like Europe and Asia have remedies, but not known as fibromyalgia? Asians especially seem to have remedies for almost everything.

You’re probably right but the drug companies wouldn’t like it my doctor said that when I asked her if there was any herbal remedies.she said the drug companies are pushing us.fancy that.so basically they want us zombied out and hooked on meds.they won’t legalise cannabis because the drug companies wouldn’t go bust.money talks!!