- Joined
- Jul 30, 2020
- Messages
- 829
- Reason
- DX FIBRO
- Diagnosis
- 11/2019
- Country
- PT
Wow, you're doing so well. I hope you give yourself credit for that!Being a full-time Carer, as well as having my 4 grandchildren most weekends, being functional is essential!
I'll second what Sunkacola said; medication was a no-go for me, but for others it's absolutely the right thing to do. I think we have to feel our way as best we can with these things. Getting informed and knowing what might be going on can help us weigh up whether to reduce/switch/stop with something. But there is nothing wrong with funding pharma if it allows you to feel better and get on with your life! I feel as if I've seen quite a lot of people here in the forum have trouble with heart palpitations as a drug side effect, but as Sunkacola said, those side effects don't impact everyone. What you're doing - looking for others with similar experiences - is a very wise approach. There are such a weird array of ways in which this condition can manifest; it's hard to know where to look when we experience something new. I wish you every luck in figuring it out, and if you wind up back with the doctors, I hope it's not too grim!