Hi,
I am new to this site but reading the posts has helped me feel like I am not alone.
My journey started in Aug 2009. I had generic symptoms, starting with swelling in my hands and fatigue. I have been to several specialists each time a "new" symptom would appear and every test would come...
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To clear up a few things the psych said that seem to have you concerned:
"can take time to diagnose" -- let me explain briefly why. First, the EMG shows abnormalities. The "time" is to be sure that those abnormalities aren't something ELSE. (Remember, many things affect nerves and muscles)...
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Hello, just a note on previous health issues.. Have had L4-5 surgery with drop foot and chronic pain after Co2 poisoning from broken heating systems and GERD..BUT 2 months ago thought I reherniated disk as had same symptoms of atrophy and spasms in same calf and twitching all over .
. Full...
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I have never posted on any forums before but have been reading this one for a month or so and have learned a lot
I was just diagnosed Jan, after a year of testing and watching the progression of symptoms. Looking back symptoms may have started in 1995, when diagnosed with "tendenitis in a...
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Protomyxozoa Rheumatica is a parasite discovered by hemotologist, Dr Steven Fry. He believes the organism may cause numerous neurological diseases, including ALS.
The following is Part I of the transcript of a recent interview with Steven Fry, MD.
Please do not expect your physician or other...
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It's been about three weeks since I posted. Thanks for everyone's support to this point.
My symptoms of weakness, heaviness, atrophy, loss of muscle tone continue.
Since my last post, my arms and hands seem more effected. Stiffness in a few fingers, wrist, and the muscle between the thumb and...
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Could really use your insight and direction...
Knowing the ravages of ALS, I would much rather be diagnosed with Myasthenia Gravis any day (even though that DX is terrible but it is at least somewhat manageable compared to ALS). I had to go into the ER today with difficulty breathing and...
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been a while for diagnosed i thought it was MS never heard of ALS untill a posting on MS site lady said possible MS.. but wait and see, ive had twitching since aug or earlier of 10* and has gotton worst, alsoo had lower back spasms which thught i hurt at wrk blew EVRYTHING OFF.. i mean what...
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Re: Update and not a good one
Hi Becky
LOL, I can't press the buttons on my Ford to unlock the doors--or the hairspray can to fix my hair. The weakness is definitely not 'perceived' it's all too real. My fingers just collapse. I can hold things in my arms, though. The neurosurgeon is the...
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Allweneedislove, I love the name by the way.
Please let me tell you that you have got to stop the strength testing. Whether you have Fibro, or BFS (I lean real strongly on the BFS) but which ever it is, your muscles are going to be screaming at you if you keep up the strength testing. They are...
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