For those of you who have Myalgic Encephalomyelitis (M.E.), also known as Chronic Fatigue Syndrome (C.F.S.), Ms. Brea's TED Talk is finally available for viewing on the TED Talk website.
Since I can't post URLs, please point your browser to:
Jennifer Brea: What happens when you have a disease...
I have chronic pain in most of my joints (but very severe in my neck & lower back) and in the soft tissues or muscles near my joints (both forearms & shoulders, both calves & achilles heals).
My first symptom, almost 2 years ago when I was 57, was mainly fatigue. I couldn't understand why I...
Hello from Scotland. I was diagnosed with Fibro in August this year, however, although I do get pain and various strange symptoms, my main complaint is sleepiness. I was also diagnosed with Sleep Apnea in March this year and now use a CPAP mask, but the overwhelming sleepiness continues so I...
So, today I went to doctor because I had severe pain in whole body. Especially both legs and arms. Guess what? The doctor said, she cannot diagnose me. I asked her to just send me to the rheumatologist. But she said my symptoms not strong enough to be sent there. Another pain killer received...
Hi...I am new to all of this, having only had a confirmed diagnosis of Fibromyalgia a few weeks ago. I don't know anyone else with the condition, and I feel a little bit insecure about it all. I also suffer from bi polar disorder...I am worried that people will feel that my pain, burning skin...
Hi. I was recently diagnosed with Fibromyalgia (July 18th).
I'm mostly just processing at the moment. I'm 21 years old, so it's a long road ahead. I'm trying to remain optimistic about treatment. But it's hard when I can barely make it through my work day. I put so much of my identity into...
Hello, I've been sick for a very long time and it took years for them to diagnose anything. So I got fibromyalgia as a diagnosis and from reading your stories it seems accurate. Also I think my pain is alot higher than average. It will be good to know some people who share my symptoms and...
Though I've been having increasing pain (and other symptoms) over the last couple of years, I was only diagnosed with fibromyalgia last week. My rheumatologist also thinks I have Sjorgren's syndrome or some other autoimmune condition (maybe lupus). I just had blood work done today.
On one hand...
Hi Everyone. I'm new. I guess I have fibro. I feel terrible and I don't know what to do. I'm very tired and weak. My family doesn't understand y I'm not doing everything I used to. Most of the time they look at me like they think I'm lazy. My husband gets upset if I stay in bed to long. I'm 45...
Hi,
I don't know where to start looking for a doctor who can diagnose and treat FMS. My husband wants me to get a second opinion. We live in the Beaumont/Houston, Texas area. Could anyone recommend someone??
Thanks.