Does anyone post down here anymore? I have made post here before on the do I have ALS portion of forum and I seen my neuro a few weeks ago I was looking at my report to take to front desk. she markd Fibro. She never said anything to me, but for now I would be considerd in this group.
This is...
What a nightmare you're going through. It's more than obvious that something major is going on. Are you eating and still losing weight or are you not eating? If you are eating--something isn't letting you absorb nutrients. With my daughter, her issue was her intestines--she absorbed nothing...
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Hi everyone.
I am new to the Forum and am wondering about whether extreme fatigue is normal in PALS. My husband was Dx in 9/08 (Bulbar Onset), and he has been on Rilutek ever since. His decline has been slow and steady...with increasing fatigue, muscle soreness, etc. However, beginning only a...
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Hello everyone.
I'm 35 male.
6 feet.
150 lbs
Had always considered myself the model of perfect health. Never smoked, never drank. And vegetarian for 15 years.
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I have had symptoms for almost 2...
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CB,
Forgive me if I can't remember all the details of your ordeal.
The pain along your jaw and neck - this could be myofascial pain syndrome. This can go hand in hand with Fibromyalgia.
Have you been to a pain clinic? They can give you an injection at the trigger point on your neck that...
Hi all - I am so impressed with everyone's genuine concern and interest in all who visit this site. I have been avidly reading everyone's histories for some time now, but hiding in the background thinking about replying, then putting it off. Loved the thread about bra snapping, gave me a laugh...
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well, I am not sure where to begin. I have had some minor things on and off for along time. Quickly-epstien barr virus at 20. That lasted for a year or so, there was no twitching, just tired and achey. Then 8 yrs ago mis-diagnoised with MS. I was having tingling and numbness, had MRI, came back...
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jattd,
I am not a doctor, and don't know of one on this forum that specializes in Neurological symptoms. But, what you describe does not sound like ALS.
Your doctor mentioned Fibromyalgia. Have you pursued that avenue of thinking? Have you gone to a pain clinic for evaluation? There are...
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I joined this group in October and have been reading your posts, almost daily, since then. This is my first post. Due to the fact that the medical community seems to have so few answers I find the antecdotal information on this site very helpful.
This is my story:
In the middle of August, 2006...
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