Hi all, seems like most people introduce themselves. 👋 I'm 43 and love in Northern NY. I've had chronic pain since I was a teenager, but was finally diagnosed with Fibromyalgia back in November.
I'm still learning about it and discovering that it pretty much means doctors want to just pass me along to the next one.
It's super frustrating, so I'm doing what any other inquiring person would do and joining a forum. Lol I don't have any sort of Fibro community around me, so I'm hoping to find...
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Hi all, I'm new to this site so be gentle with me 🙏😂 I'm Dean and was diagnosed with FM and cfs in 2008 after two strokes and a TIA in three weeks.
The problem is that I have nobody to support me now emotionally - I have no children or living relatives, and only a few friends from my work history as a church administrator before retirement. I am someone who is sometimes termed an "elder orphan."
hello...im new on here, recently diagnosed at the age of 60..although relieved its made sense of everything im feeling very overwhelmed & alone 😔.
Hi I have been looking for a forum for some time now, it’s great to be in touch with people who understand. Diagnosed in 2017, main symptoms neck shoulder and hip pain, fatigue, IBS, and I also suffer with cervical spondylitis which causes balance issues and cervical vertigo. I am retired and try to get out for a walk on my good days, have a very supportive husband but have to say you have to suffer this condition to fully understand it. Nice to meet you all xxx
Hi All,
I'm a newbie and just thought it would be nice to say Hi 👋, to you all. I've joined to connect with others with Fibromyalgia and Chronic fatigue. I have found it very isolating not being able to dicuss issues and feelings around this condition and made the decision to connect because I realise that it has really changed my life and I would appreciate any tips or words of wisdom in dealing with this condition positively! 😀
I have been diagnosed with fibromyalgia since 2010, back when Doctors didn't really believe it was real, and I had a hard time figuring out what was going on with my body? I had just been struck with EB virus the year before and nothing has felt normal since. It will be nice to talk with people who really understand what we go through on a daily basis. People who don't have chronic illnesses just don't get it! God Bless everyone in this forum! Thank you!!
I am a 65 year old woman diagnosed with cfs in 2013 waiting to see a rheumatologist to find out if I also have fibromyalgia. I've actually been waiting to see a rheumatologist for 5 years but seem to be sent to every other clinic but rheumatology. In 1995 I had thyroid cancer and had a complete thyroidectomy. I've been prescribed 175mg of thyroxine ever since and told this cannot be increased for fear of the cancer coming back. I have always needed a lot of sleep but for the past year...
Hi I’m waiting for an ‘emergency’ neurologist appointment, which I’m told will take around 3 months. That’s a bit of a relief as my mum waited over a year for one re neuralgia. Anyway, all indications seem to lean towards fibromyalgia. At the moment I’m just trying to treat/cope with the symptoms as well as I can, which isn’t well at all. I’m finding compression helps a bit, particularly with burning skin. I’m happy to receive any advice for the best way to arrange info for the neurologist...
Hi, My name is Paul and have suffered from Fibromyalgia for about 5 years, diagnosed now for 3 years and struggling, have had to reassess work life, hardest part is the way my brain is wired, leads to more flare ups than not. From my pelvis/hips down on fire/ legs are swollen and heavy, migraines/fibro fog, forgetfulness or just plain staring for ages, no concentration, irritable, sleep insomnia, restless legs at night, needing to nap during the day, but the most scariest symptom I get is...
Hi I’m Dianne 60yrs old. Young at heart. First time ever on a site like this. I live in East Cowes Isle of Wight.just some one, to have a laugh with.
My name is Doris, I am currently 64 years old. I have been diagnosed with Fibromyalgia a while back, in in retrospect I seem to have had it since I was a child. I'm hoping to share experiences and also ways of healing.
It has been getting worse over the years, leading to my world getting really small. My main symptoms are pain, severe fatigue, depression, anxiety, some brain fog.
One of the worst things about it is that I can't trust my body to get me where it's supposed to go. For instance...
Pain,fog and stiffness are getting worse
Is this normal? Whatever normal is. 20 years ago the pain, and stiffness was always in the morning. Now it's morning OK, late afternoon and night almost unbearable. I need help in dealing with the extreme pain, won't take any opeoids I'm allergic to most. Have a good rumatoligest MD. We are at our wits end to help me. Thanks
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I am here after a winding journey...I was diagnosed with fibro 15 years ago, then told it wasn't, went down multiple rabbit holes trying to figure out what it was, and now back to where I started...fibro diagnosis. I have tried almost every drug and they either don't work or the side effects were too bad to continue. Finally settled on IV lidocaine infusions and steroids. I've been on steroids for a while, they make me feel 20 years younger but not great to be on them for too long so Dr just...