LunaCinder
New member
- Joined
- Jun 15, 2023
- Messages
- 6
- Reason
- DX FIBRO
- Country
- US
Hello all! I hope you are well, and that the summer is treating you kindly. I'm Luna (they/them, 22) and while I'm not new to fibro, I am new to this forum.
I was unofficially diagnosed awhile back, but they officially put it on my record last year at the rheumatologist. I am worried they are trying to push some non-fibro symptoms as fibro, because "I'm too young to have an autoimmune" (but 6 of them run in my family).
I have the debilitating pain, sensitivity, bruising, nausea, and fatigue of fibro. But since I had covid in 2020 before the vaccines existed I have had new, different symptoms. I have had a butterfly rash, sudden intense vertigo, dull aches that didn't match my former fibro symptoms, weird rashes, and some more I can't remember off the top of my head. Additionally, my white blood count was extremely high and I had blood indicators that correspond with Lupus/Rheumatoid Arthritis. I don't think I have rheum., as I don't have the swelling joints, but I match my best friend's mother's illness symptoms almost exactly and she has both fibromyalgia and Lupus. I was wondering if anyone had any tips for trying to sort this kind of situation out?
I know I have had fibromyalgia symptoms since childhood, but that some of these symptoms are new to me. My fibromyalgia may have just gotten more severe after almost dying from covid, but I'm also concerned they missed an autoimmune diagnosis. I'm asking here because I think I want advice from others with more experience before making decisions on going to a doctor, as I can't afford to go if I'm just being overly suspicious rather than making a valid point.
I was unofficially diagnosed awhile back, but they officially put it on my record last year at the rheumatologist. I am worried they are trying to push some non-fibro symptoms as fibro, because "I'm too young to have an autoimmune" (but 6 of them run in my family).
I have the debilitating pain, sensitivity, bruising, nausea, and fatigue of fibro. But since I had covid in 2020 before the vaccines existed I have had new, different symptoms. I have had a butterfly rash, sudden intense vertigo, dull aches that didn't match my former fibro symptoms, weird rashes, and some more I can't remember off the top of my head. Additionally, my white blood count was extremely high and I had blood indicators that correspond with Lupus/Rheumatoid Arthritis. I don't think I have rheum., as I don't have the swelling joints, but I match my best friend's mother's illness symptoms almost exactly and she has both fibromyalgia and Lupus. I was wondering if anyone had any tips for trying to sort this kind of situation out?
I know I have had fibromyalgia symptoms since childhood, but that some of these symptoms are new to me. My fibromyalgia may have just gotten more severe after almost dying from covid, but I'm also concerned they missed an autoimmune diagnosis. I'm asking here because I think I want advice from others with more experience before making decisions on going to a doctor, as I can't afford to go if I'm just being overly suspicious rather than making a valid point.