MissNeverWell
Distinguished member
- Joined
- Oct 15, 2022
- Messages
- 115
- Reason
- DX FIBRO
- Diagnosis
- 03/1992
- Country
- CA
- State
- ON
Good morning, everyone; I hope you had a restful night.
I'm feeling alone in sorting out my symptoms, although I do have a referral to an eye doctor, which is sending my anxiety soaring through the roof.
I continue to have the head pain, which fluctuates in intensity and is intermttent, not there all the time. It is triggered by sudden movement, position and pressure, I think. What is scaring me most is the visual quirks.
This on top of an ongoing pattern that was commented on by my new GP during a review of my blood tests. I have always been surprised/concerned about the hemoglobin A1C results (it measured the sugar molecule that binds to the hemoglobin over a 2-3 month period and is an indicator of diabetes. Mine level was 5.9 (non fasting, or random as they call it). Previous results when fasting usually sat at 5.5, which I considered surprisingly high given that I don't eat processed foods or much sweets. The "at risk for diabetes" category is 6, so I'm nervous. That combined with a high creatinine/albumin ratio despite improved glomeruler filtration rate (kidneys), high magnesium level, and high level of the liver enzyme alanine aminotransferase. There isn't much room to make amendments to my diet. I eat fresh fruit and vegetables, eggs, fish, meat, chicken, so my iron levels is high, but my B12 could do with some improvement, she said. I got the doctor to weigh me after my sister belaboured the point of my weight loss - it was 71.1 lbs, which included the heavy jeans I was wearing, lol.
To complicate matters, the cap fell off my tooth last week. I geared up the courage to go to a dentist. They cemented the cap and took an x-ray, which revealed that it was unrestorative and had to come out. (I had trouble with the tooth for years - cracked, root canal, cauterized gum to make the cap fit). Of all places, it's right in the front. I'm not generally a vain person, but this is very upsetting, and another loss for me. In a way it will be a relief to have it out; I'll just have to add that tooth to the partial denture.
However, I can't deal with dentistry - neither awake or asleep: the chemicals, an extra small mouth, smells, and, in this situation, blood loss. I'm wondering if the toxic overload (or whatever is impairing the liver/kidneys) might be from the cavity over the years, and I was wondering, since I think it's the eye tooth, if that's what has been causing my vision problems. They are consulting with the senior dentist to determine whether or not to refer me to a specialist.
On the other hand, the doctor refuses to further investigate the co-existing neck, head, vision and balance symptoms, which even my audiologist told me were interconnected, and recommended referral for balance testing. She insists that the fall from a movers transport truck in 2022 would have no bearing on symptoms now, but I have had these symptoms before (minus the vision). She passes it off as fibromyalgia.
I have to trust my instincts on what my body is trying to tell me, and stand up for myself in terms of refusing certain chemicals (e.g. dilating drops instead of a more human x-ray of the back of the eye, both of which will trigger symptoms and extreme anxiety) even if I come across as noncompliant. Sometimes diagnostic procedures are more injurious than the condition they are trying to diagnose.
If, on the other hand, it is fibromyalgia related and I can hope that once the flareup subsides, my visual disturbances will settle down, then that will give me much peace of mind and I'll be able to manage the symptoms better. As it is now, I'm even anxious and avoidant of going outside, not good.
I'm feeling alone in sorting out my symptoms, although I do have a referral to an eye doctor, which is sending my anxiety soaring through the roof.
I continue to have the head pain, which fluctuates in intensity and is intermttent, not there all the time. It is triggered by sudden movement, position and pressure, I think. What is scaring me most is the visual quirks.
This on top of an ongoing pattern that was commented on by my new GP during a review of my blood tests. I have always been surprised/concerned about the hemoglobin A1C results (it measured the sugar molecule that binds to the hemoglobin over a 2-3 month period and is an indicator of diabetes. Mine level was 5.9 (non fasting, or random as they call it). Previous results when fasting usually sat at 5.5, which I considered surprisingly high given that I don't eat processed foods or much sweets. The "at risk for diabetes" category is 6, so I'm nervous. That combined with a high creatinine/albumin ratio despite improved glomeruler filtration rate (kidneys), high magnesium level, and high level of the liver enzyme alanine aminotransferase. There isn't much room to make amendments to my diet. I eat fresh fruit and vegetables, eggs, fish, meat, chicken, so my iron levels is high, but my B12 could do with some improvement, she said. I got the doctor to weigh me after my sister belaboured the point of my weight loss - it was 71.1 lbs, which included the heavy jeans I was wearing, lol.
To complicate matters, the cap fell off my tooth last week. I geared up the courage to go to a dentist. They cemented the cap and took an x-ray, which revealed that it was unrestorative and had to come out. (I had trouble with the tooth for years - cracked, root canal, cauterized gum to make the cap fit). Of all places, it's right in the front. I'm not generally a vain person, but this is very upsetting, and another loss for me. In a way it will be a relief to have it out; I'll just have to add that tooth to the partial denture.
However, I can't deal with dentistry - neither awake or asleep: the chemicals, an extra small mouth, smells, and, in this situation, blood loss. I'm wondering if the toxic overload (or whatever is impairing the liver/kidneys) might be from the cavity over the years, and I was wondering, since I think it's the eye tooth, if that's what has been causing my vision problems. They are consulting with the senior dentist to determine whether or not to refer me to a specialist.
On the other hand, the doctor refuses to further investigate the co-existing neck, head, vision and balance symptoms, which even my audiologist told me were interconnected, and recommended referral for balance testing. She insists that the fall from a movers transport truck in 2022 would have no bearing on symptoms now, but I have had these symptoms before (minus the vision). She passes it off as fibromyalgia.
I have to trust my instincts on what my body is trying to tell me, and stand up for myself in terms of refusing certain chemicals (e.g. dilating drops instead of a more human x-ray of the back of the eye, both of which will trigger symptoms and extreme anxiety) even if I come across as noncompliant. Sometimes diagnostic procedures are more injurious than the condition they are trying to diagnose.
If, on the other hand, it is fibromyalgia related and I can hope that once the flareup subsides, my visual disturbances will settle down, then that will give me much peace of mind and I'll be able to manage the symptoms better. As it is now, I'm even anxious and avoidant of going outside, not good.