Thought I would introduce myself

[SH3]

Its been almost 1.5 years trying to find answers to my mystery aliments. I have been to so many specialist and have had so many tests and still, though I feel better then when it first started I am still in some level of pain. Not daily anymore... it comes and goes, seems to get worse the week before my period or if I over do something. The rheumatologist and Neurologist say I have Fibro but don't treat Fibro...so no help from them. Spine DR (also found out I have osteoarthritis in my neck...yeah me) and Endo think its Long Covid and "maybe" it will go away with time. One can dream I guess. When this all first started my PCP put me on Gabapentin. I had to stop after 8 weeks, the side effects were awful. I couldn't form words or hold a thought in my head to save my life, and that was on a small dose. So anyway, because I wont take that she has pretty much said she wont give me anything else. Whatever, I hate meds anyway. Of course when it flares up I am complaining about Motrin not touching it and am pissed at my Dr..but then it goes away, usually the flare only last a week sometimes less and I am at a low level that I can deal with again, some days no pain at all...oh I love those days.

 

[Carolyn Rhodes]

Hi and Welcome SH3,
Nothing with Fibro is ever easy or cheap. Everyday is always different and some experience more pain and symptoms than others. Be your own advocate and fight for your needs, if that means finding a new doctor then so be it. Hang in there and always know we are here and understand your pain and anguish.
May I suggest you find SunKacola's advice message on the General forum that she has wrote for "beginners". I think you will find it very helpful...

 

[Jemima]

Its been almost 1.5 years trying to find answers to my mystery aliments. I have been to so many specialist and have had so many tests and still, though I feel better then when it first started I am still in some level of pain. Not daily anymore... it comes and goes, seems to get worse the week before my period or if I over do something. The rheumatologist and Neurologist say I have Fibro but don't treat Fibro...so no help from them. Spine DR (also found out I have osteoarthritis in my neck...yeah me) and Endo think its Long Covid and "maybe" it will go away with time. One can dream I guess. When this all first started my PCP put me on Gabapentin. I had to stop after 8 weeks, the side effects were awful. I couldn't form words or hold a thought in my head to save my life, and that was on a small dose. So anyway, because I wont take that she has pretty much said she wont give me anything else. Whatever, I hate meds anyway. Of course when it flares up I am complaining about Motrin not touching it and am pissed at my Dr..but then it goes away, usually the flare only last a week sometimes less and I am at a low level that I can deal with again, some days no pain at all...oh I love those days.

Carolyn is right - we all have to be our own advocates. Of course, finding a great doctor makes a big difference, but because we all experience something unique sometimes we have to put our detective hat on, make ourselves a guinea pig, and try things until we find a way to manage our symptoms! Sunkacola's post is a fantastic place to start, and there are so many insights here in the forum, so it's worth having a poke around to see what other people are doing/trying and how they're getting on. If you do have fibro, don't feel like it's a life sentence - it might not go away, but with the right tools we can make a huge difference to its severity. Good luck SH3

 

[User Requested Deletion 36696]

Welcome @SH3