Lainee
Member
- Joined
- Jan 5, 2015
- Messages
- 18
- Reason
- DX FIBRO
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
:? Hi I'm new to this support group Forum. Unfortunately not to Fybro:-(.
As a teacher I struggled with Fybro for almost 5 years before I just couldn't do it any more. It was the constant pain at the end of the day; the stiffness of being in one position and having to get students help me move; and the brain fog that kept easily distracted and off track of the lessons that finally pushed me to stop. I had developed depression in the early year and I just couldn't make myself work anymore. I think I stopped as much for them as I did for me. I was no longer as affective as I knew they deserved.
The biggest frustrations I feel is from the amount of time it takes to become diagnosed and then receive disability from a plan that I paid into for 17 years. First the Sleep Study - it took 1.5 years for the results. Then the rheumatologists 3 visits to be diagnosed with nothing in between visits but waiting, and then a refusal to confirm on paper other than to my general practitioner and told not to come back because I was "to much work". Then my GP sent me to a Neurologist - 6 month wait to be told that I first had to see a Geriatric Specialist. A 3 month wait was followed by discussion and 2 more visits, each with a 3 month wait and discussions to be finally told "I don't think its dementia". I finally call back and am waiting to go back to the Neurologist. Almost 2 years to see a Psychiatrist, (at this point I am beside my self and my depression is to the point that I would rather die than continue with life). Our city has very few and at one point while I was on the waiting list they ALL quit, left the city and were not taking any new patients. I had to finally see someone from out of town who could only see me once and referred me to the CBT classes at the hospital. While I was going it was great, I was eager to find a way to get better.
But as soon as the 3 month session was over — there was no backup. It was easy to slip back to the point at which I started. The Depression grew and I finally could take no more, I tried to end it all with a bottle of pills. My husband saved my life, and has since been much more active in my rehabilitation. The Psychiatrist at the hospital continues to see me every 2 months. Although this is great for my depression, there is no focus on finding a way to deal with the Fybro - the root of my problem.
As you all know this is a very short glimpse at my struggle, there are so many little avenues of the journey that I think of it like an old oak tree each trunk and branch a permanent reminder and a constant growth of my life.
How big is your tree?
Lainee
As a teacher I struggled with Fybro for almost 5 years before I just couldn't do it any more. It was the constant pain at the end of the day; the stiffness of being in one position and having to get students help me move; and the brain fog that kept easily distracted and off track of the lessons that finally pushed me to stop. I had developed depression in the early year and I just couldn't make myself work anymore. I think I stopped as much for them as I did for me. I was no longer as affective as I knew they deserved.
The biggest frustrations I feel is from the amount of time it takes to become diagnosed and then receive disability from a plan that I paid into for 17 years. First the Sleep Study - it took 1.5 years for the results. Then the rheumatologists 3 visits to be diagnosed with nothing in between visits but waiting, and then a refusal to confirm on paper other than to my general practitioner and told not to come back because I was "to much work". Then my GP sent me to a Neurologist - 6 month wait to be told that I first had to see a Geriatric Specialist. A 3 month wait was followed by discussion and 2 more visits, each with a 3 month wait and discussions to be finally told "I don't think its dementia". I finally call back and am waiting to go back to the Neurologist. Almost 2 years to see a Psychiatrist, (at this point I am beside my self and my depression is to the point that I would rather die than continue with life). Our city has very few and at one point while I was on the waiting list they ALL quit, left the city and were not taking any new patients. I had to finally see someone from out of town who could only see me once and referred me to the CBT classes at the hospital. While I was going it was great, I was eager to find a way to get better.
But as soon as the 3 month session was over — there was no backup. It was easy to slip back to the point at which I started. The Depression grew and I finally could take no more, I tried to end it all with a bottle of pills. My husband saved my life, and has since been much more active in my rehabilitation. The Psychiatrist at the hospital continues to see me every 2 months. Although this is great for my depression, there is no focus on finding a way to deal with the Fybro - the root of my problem.
As you all know this is a very short glimpse at my struggle, there are so many little avenues of the journey that I think of it like an old oak tree each trunk and branch a permanent reminder and a constant growth of my life.
How big is your tree?
Lainee