Struggle with FMS/CFS

[maryliz]

Hello!

My name is Mary, I am a young adult in the process of being diagnosed with FMS/CFS. I signed up here for support because I don't have people in my life who truly understand what I struggle with everyday. It's really hard to be young and barely be able to get out of bed sometimes. I am ready to try anything to get better!

I hope to make friends with some of you and hear your stories!

Mary

 

[kris]

Re: Hello, my name is Mary

Hi Mary Im glad you joined. And yes you will make a lot of friends here.

 

[KNH55]

Re: Hello, my name is Mary

Hi Mary, nice to have you here! It really is a shame that people don't understand what you are going through That is why we all have each other though! Welcome

 

[Janet L]

Re: Hello, my name is Mary

Hi Mary, welcome to the group. I know what you mean about people in your family that don't understand, for me, that was the most difficult. For me it was my sister and one of my very close friends. My sister's learned and turned around but my friend made things too uncomfortable. How about you?

 

[scattybaker]

Re: Hello, my name is Mary

Hello!

My name is Mary, I am a young adult in the process of being diagnosed with FMS/CFS. I signed up here for support because I don't have people in my life who truly understand what I struggle with everyday. It's really hard to be young and barely be able to get out of bed sometimes. I am ready to try anything to get better!

I hope to make friends with some of you and hear your stories!

Mary

Hi Mary my name is Sarah I am not sure how old you are now but I was diagnosed with FMS 16 years ago when I was 23. I find the best way to deal with things is to rest when your body is telling you its had enough and on the days when you do feel up to doing anything then push yourself just that little bit harder than you should so you don't feel like your not able to do anything. I won't say it gets easier cos it doesn't but there can be more settled days if you can find your happy medium. Gl. x

 

[maryliz]

Re: Hello, my name is Mary

wow!

So many replies, thank you so much. Yeh, I am 23...pretty young for fibro :S Today I was sent home sick at work...not the best day.

 

[maryliz]

Re: Hello, my name is Mary

Hi Mary, welcome to the group. I know what you mean about people in your family that don't understand, for me, that was the most difficult. For me it was my sister and one of my very close friends. My sister's learned and turned around but my friend made things too uncomfortable. How about you?

Hello Janet!

I'm glad you have your sister, what happened with your friend?

I do feel uncomfortable with my best friend as well. She is a very busy person so I have actually backed off a lot because I feel like when I talk to her I am just creating more stress in her life. I guess that is how all my relationships are right now.

My mother is very supportive and my husband tries his best.

 

[maryliz]

Re: Hello, my name is Mary

Hi Mary my name is Sarah I am not sure how old you are now but I was diagnosed with FMS 16 years ago when I was 23. I find the best way to deal with things is to rest when your body is telling you its had enough and on the days when you do feel up to doing anything then push yourself just that little bit harder than you should so you don't feel like your not able to do anything. I won't say it gets easier cos it doesn't but there can be more settled days if you can find your happy medium. Gl. x

Hi Sarah!

I am 23. For the last 16 years do you feel like your health has improved or gotten worse. I'm hoping that I feel better soon.

I do try to rest , I feel like it is all I do because my body kind of shuts down.

Definitely understand about finding a happy medium. For me I have to stick with what keeps me motivated because once I fall away from that I get very depressed which makes me feel worse and it's extremely hard to get back on track,

My mum and I had a long conversation today on how we can 'get back on track' and what we can do to stay motivated so I think I'm going to write a blog about it so that it's helpful for others.

 

[Janet L]

Wellbutrin and Fibromyalgia

Definitely understand about finding a happy medium. For me I have to stick with what keeps me motivated because once I fall away from that I get very depressed which makes me feel worse and it's extremely hard to get back on track

I can relate to this so much. I have such good weeks of a healthy routine, I might not feel the best, but the routine helps keep me positive, which keeps me motivated, conversely, being motivated helps keep my positive. It's like a circle of goodness if you will, lol.

The problem is, once I'm thrown off it's a cycle of badness, I feel unmotivated, which makes me unhappy, the unhappiness turns to depression which makes it impossible to get anything done (or it seems impossible I should say, I know it's not actually), then it's hard to get back on track, or out of the house, and the vicious cycle continues.

I think it's this cycle that so many of us have, and I think it's what has some people look at us and think we're lazy or just "not trying".

To keep it positive I've found that for me, antidepressants (Wellbutrin) have worked really well to take the nasty edge off my lows and makes it easier to cope and to maintain a positive routine.

 

[GulfWarVet71]

I too understand what you are going through. There are days where mentally it's really hard to do anything and harder yet for those around me to understand it. Things do get better with treatment and just plain getting sick and tired of being limited to the things I could and couldn't do. It's vital to keep a positive outlook on things, there are days when the pain seems to be getting better to deal with and like a chocolate cake, you look forward too and strive for those days. Above all else though, support is the biggest thing in getting through this life speed bump.

 

[maryliz]

I too understand what you are going through. There are days where mentally it's really hard to do anything and harder yet for those around me to understand it. Things do get better with treatment and just plain getting sick and tired of being limited to the things I could and couldn't do. It's vital to keep a positive outlook on things, there are days when the pain seems to be getting better to deal with and like a chocolate cake, you look forward too and strive for those days. Above all else though, support is the biggest thing in getting through this life speed bump.

That's a really good way of putting things, a positive outlook is definitely vital! What kind of treatment have you received?
I really can't remember my last good day. I'm just feeling so worn down that one day is running into the next. I don't have any energy...starting to get a little scared! I want to have a positive attitude but I am so worn down.

 

[maryliz]

Re: Wellbutrin and Fibromyalgia

I can relate to this so much. I have such good weeks of a healthy routine, I might not feel the best, but the routine helps keep me positive, which keeps me motivated, conversely, being motivated helps keep my positive. It's like a circle of goodness if you will, lol.

The problem is, once I'm thrown off it's a cycle of badness, I feel unmotivated, which makes me unhappy, the unhappiness turns to depression which makes it impossible to get anything done (or it seems impossible I should say, I know it's not actually), then it's hard to get back on track, or out of the house, and the vicious cycle continues.

I think it's this cycle that so many of us have, and I think it's what has some people look at us and think we're lazy or just "not trying".

To keep it positive I've found that for me, antidepressants (Wellbutrin) have worked really well to take the nasty edge off my lows and makes it easier to cope and to maintain a positive routine.

This is exactly what I am talking about! Definitely need to get back into that positive routine. I guess the biggest thing is to not beat ourselves up when we crash! What kind of things do you do to keep a positive routine?

I will look up that medication, I'm taking cymbalta for the pain and it's also an anti depressant. I'm starting to think that it may not be the best thing out there for me.

 

[maryliz]

I too understand what you are going through. There are days where mentally it's really hard to do anything and harder yet for those around me to understand it. Things do get better with treatment and just plain getting sick and tired of being limited to the things I could and couldn't do. It's vital to keep a positive outlook on things, there are days when the pain seems to be getting better to deal with and like a chocolate cake, you look forward too and strive for those days. Above all else though, support is the biggest thing in getting through this life speed bump.

I replied to this but it didn't show up...

What kind of treatment do you do?

 

[1sweed]

Welcome Mary, glad you have joined. I think a lot of us here started out with no support, whether it was family members or doctors that did not believe in our symptoms or our pain it can leave you feeling very much alone. I was in my thirties when I first started having all types of strange feelings and weird symptoms that no one I talked to about them could explain. My friends said "we only talk about non-personal things," and so that left me feeling so very alone and sad, and lost. So the point I am trying to make is most of us understand where you are coming from and we will do our best to hold your hand during the tough times and cheer you up and make you smile in good times. Looking forward to reading your posts and seeing you around the forum.