So many questions

[Jemima]

Where can you find them I've been looking

It's on a site called "livingwithfibro", and you can Google that with "JayCS" to find his fibro blog xx

 

[Auriel]

Hello Tamzinann I joined the forum a couple of days ago and I’m really glad that I did My symptoms started when I was about 27. Doctors didnt recognise what is was then. I got my diagnosis by a rheumatologist.they will probably try you on different medications to see what will work best for you.the people on this forum are really nice too which helps.

 

[Tamzinann]

Hello,

Thank you for commenting I have been referred to rheumatology they declined me saying that want me to see a specialist physio before they see me as they think it might be hypertension (even though I have no symptoms of that) then they will see me fully. I have started walking with a stick now as walking further then my garden sets pain off specially in my legs. I'm hoping to get it all sorted soon. But that doesn't look like the case

 

[Jemima]

Hello,

Thank you for commenting I have been referred to rheumatology they declined me saying that want me to see a specialist physio before they see me as they think it might be hypertension (even though I have no symptoms of that) then they will see me fully. I have started walking with a stick now as walking further then my garden sets pain off specially in my legs. I'm hoping to get it all sorted soon. But that doesn't look like the case

Ughhh, I'm sorry, Tamzinann. That sucks! I hope the process goes quickly...

 

[Auriel]

Oh my goodness you must be in so much pain ,have you been put on a waiting list to see someone?where we are our physio’s is certain times like walk in one, I don’t know if you appointments are on hold due to the outbreak .have they said how long it will take to see them?

 

[JayCS]

hypertension (even though I have no symptoms of that)

Hi - Do you know Trudy Scott's antianxiety blog (and book)? I found it looking for similar positive GABA-experiences to mine and help how to adjust further. I may be the low GABA (& low serotonin) anxiety type.

 

[Tamzinann]

No idea but something amazing happened last Monday!!
A doctor called me and I explained that this is stopping every aspect of my life and she gave me an official digonses and started me on a pain management plan I am so happy so trying out this plan and hoping it works so I can go back to work.

I think with the specialist it's a case of waiting now she said she could see alot of action on my file but if that was a lie who knows.

 

[Tamzinann]

Hi - Do you know Trudy Scott's antianxiety blog (and book)?

Noo but I'll definitely have a look. Thank you.

P.s sorry for slow reply . Its been a very mad week with me getting a digonses.

 

[Auriel]

Hello tazminann, do you know what type of pain care they’re going to give you i was put on lyrica ,then amitriptiline they mixed mine with co codamol that had a bad effect on me had palpitations and lost the use of my legs for a bit now I’m on gabapentin 1,200 mgs they are better for me I want the dosage upped a bit though, I hope they find something that works for you this is not a nice thing to have.

 

[Tamzinann]

Hey Auriel

Yeah I've been put on 10mg of amatripline and 60mg of codine. They only starting me on a low does of amatripline as I'm on alot of medication for my ages already as I have migraines and other complications. The amatripline is messing with my migraine medication though even though its meant to help but it didn't when I was on it for them anyway.

Also I started doing yoga when I can, it's the fatigue that kills me at the moment though, I cannot stay awake for a full day for the life of me.
X

 

[Auriel]

I hate the pain but I’d take the pain anyday over the fatigue that comes with it .i know some of the members (me included) get migraines too. see how you go with things,hope you stay on the forum +let us know how your getting along

 

[Tamzinann]

Yeah I think its common, my partner is brilliant with me but gets annoyed with me sleeping all the time.
Same with you! Course I'll stay been really helpful so far !

 

[Auriel]

Yeah I’m staying, it’s my support system + it’s fun too , ok take care speak soon bye for now x x x

 

[sunkacola]

Hey Auriel

Yeah I've been put on 10mg of amatripline and 60mg of codine. They only starting me on a low does of amatripline as I'm on alot of medication for my ages already as I have migraines and other complications. The amatripline is messing with my migraine medication though even though its meant to help but it didn't when I was on it for them anyway.

Also I started doing yoga when I can, it's the fatigue that kills me at the moment though, I cannot stay awake for a full day for the life of me.
X

Hi there Tanzinann
Just a word of caution. Codeine is highly addictive. Like other opiates, it will work well for a time, then won't work so well and you would have to take more of it...then more...and so on. It also has some bad potential side effects. I would personally caution against using it, or at least against using it daily. No opiate should be used every day.

If you have not yet tried alternative ways of managing your pain, I recommend that you start trying them now, even if you continue for a short time with the codeine, because you may very well find that you won't need it as often if you do.

And if the amytriptiline is not helping, let your doctor know and stop taking it. the fewer chemicals that you put into your body the better when you have fibro, so my advice is to take only the ones that are absolutely necessary.

Fir info on things you can do to manage fibro without drugs, see my advice post at the top of the General forum.

 

[Tamzinann]

Hey,

Thank you for your concern. Yes I do know all the cautions with drugs, I don't take them everyday.
I am a nurse and understand what to do, I will read up on what you have suggested it sounds really helpful