Problem or being over dramatic?

[BlueBells]

@Sharkman

I believe you are on the wrong site. This site is for people who genuinely have Fibromyalgia or are in the process of diagnoses.

Some of what you say may be correct, but it does not belong here.

The "flu shot" has not been commonplace until very recently, and many have had this for 40 plus years.

Scaremongering is not acceptable on here.

Thank you.

 

[sunkacola]

Its a shame you have a blanket policy on this because there is important Myalgia recovery protocols within that website. NO advertising on it. They are impact statements compiled by a law firm for litigation. So you are doing a disservice to the injured here. Well done.

Maybe the readers here, if they could be bothered, might look up jabinjuriesglobal and see what comes up now that YOU have made it harder for them to recover. What a PC joke this "forum" is.

Thank you.

Sharkman,
Every forum has rules, and the rules are there for good reasons.
If you are unhappy with this forum or with the rules that exist, and you think this forum is a joke, you do not have to come here!

Many people find this forum very helpful and informative...it's a shame you do not.
However.....
Your making unpleasant or insulting comments will not change the rules, so please refrain from doing that any further.

If you want to tell people about a site you are recommending, you can do so just the way you did in your last post, by telling people what to look up rather than posting a link which is not permitted. Then people can look it up for themselves.
Thanks.

 

[sunkacola]

Its designed to snap you all out of the spell big pharma has created. Wake up sheep (slaves)..

Actually, your comment was rude.
And so is this one.
We are not sheep or slaves.
Please refrain from making rude comments to other members.
We all have enough to deal with, without getting rudeness from each other.

Additionally, if you would like to tell people about something and you want them to actually listen to you, starting out by making harsh or insulting comments is definitely not the best way to approach things.
Most people who are grown-up know that if you insult people, they will not want to listen to what you have to say.

 

[SueG]

Fibromyalgia isn't always easy to diagnose. And as others have said, some doctors don't believe it's an actual condition!
For me personally, my primary doctor at that time, told me that my lab work was fine, and that I should just take Tylenol when I have pain! At that time my medical insurance required a referral to a specialist, but my primary doctor said I didn't need to see a rheumatologist! Needless to say, I got rid of that primary doctor!
I was very fortunate to find a very good rheumatologist. He listened and documented my issues /concerns. He ran several tests over the course of almost 1 year. Finally, he diagnosed me with Fibromyalgia after he used a test for inflammation markers.
There is also a blood test called the FM/a test that may be a diagnostic tool for fibromyalgia. The FM/a test measures the concentration of cytokines in a blood sample, and a score greater than 50 is considered positive for fibromyalgia.
While I was not glad for the diagnosis, I was relieved in knowing that I had a name for the misery I was experiencing!
It's been about 10 years since I was first diagnosed. I have had to learn what my limitations are, and also explain it to my husband and family. It's a difficult condition, because most people look fine on the outside, but the constant pains, fatigue, exhaustion, lack of sleep, etc takes it's toll.
I have learned that balanced exercise helps! I also have osteoarthritis and inflammatory arthritis and raynards, so I try to keep active as much as I can.
Hang in there. Answers and solutions will come!

 

[BlueBells]

@SueG

Welcome to the forums

I think that's a big thing for most of us. Once there is a name to it, it becomes both real and manageable, as in, it isn't some intangible unknown anymore.

Might not actually 'feel' any better, but for me, it's taken away the continual search for "I know there is something wrong" and with a name, well, for a start, I've found these forums.

 

[sunkacola]

@SueG , welcome to the forum, and I hope you find this a good place to get support and information and simply to connect with others who understand what it is like to live with fibromyalgia.

 

[Edit]

I am so sorry for your pain, I know the feeling. I am lucky because I don't have to go to work, if I feel I can stay in bed. I like to rest in morning time it helps (not all the time) for me ready to the daily routine. I have fibro a long time, with lot of similar symptoms you have. I just started to exercise on bike (exercise bike) and that is good feeling help my mobility. If you can walk that much you are in good shape I think. Sunkacola is right you have to diagnose by doctor, just have to know exactly what is your sickness. Good luck and we are her to talk if you need that.

 

[ckahern]

I get it. When my doctor asks where does it hurt I say touch me anywhere and it hurts. Most doctors have no clue what to do with that. I have been having injections in my neck and lower back and that has helped with that but I still have pain in my legs and arm's. Stress brings on the pain the most!! I started meditating and avoiding stress as much as possible. I hope this is helpful.

 

[oliv988]

what techniques do you use to meditate? What is your routine?

 

[Klickkat]

Fibro pain is strange, it's achy, sore, electrical, burning, and stabbing, and pin pricky like Never all at once and it seems to concentrate in one area from day to day mornings to night. Sometimes it's trapeze, or hip, or a migraine, low back, leg area. It is daunting. Take care everyone.

 

[oliv988]

I think that's the point of the whole health Industry

Take care everyone.

 

[Altered life]

I'm sure the fact that you have kept so active has helped a lot. I also was very active & I credit that as the reason I've been able to handle this level of pain for so long. Have to say, it's been a real challenge to give up my independence. The list of symptoms you wrote out are the same symptoms I have. ( you print that out for your doctor so he can put it in your file) It seems the joint areas, including the shoulder blades, are being attacked. Also, my arm muscles feel like they've been pelted with a bee-bee gun for a while. They often feel swollen & weak. Now, I have about 20% of the strength I used to have. Adjusting to the change in lifestyle is difficult. I don't have a firm diagnosis yet. For now, I say: I have a Chronic Pain condition with fibromyalgia-like symptoms. And I believe my pain is nerve pain. I am waiting for admission to the Chronic Pain Management Program in March. Hopefully, they'll give me a real diagnosis. The push for a 'real' diagnosis is frustrating but necessary for medical practitioners.

 

[Ian waxman]

Just about everything hurts, knee, hip, elbow, wrist, shoulder, fingers, toes

Elbow feels like funny bone is constantly being pushed on

Shoulders feels loose, like my arms are too heavy for them

Occasionally knee pain will radiate up or down leg bone, elbows will do the same

Pain gets worse right at bedtime

Numbness and tingling in legs when sitting down, only a few positions don’t cause the tingling and those sometimes hurt my knees too much, it started a few days before the pain set in

Pain in my upper left arm, felt like when you get a flu shot, still hurts now but it’s gotten better

This has happened before, been happening for years, but this is the first time I’ve been hit by all of them at the same time. The tingling is new as well.

I feel like shit, this isn’t the first time I’ve wondered if I had some sort of chronic illness, but at that time I wasn’t in the best shape so I dismissed it. But I walk 3-6 miles a day, 9 miles if I walk down to town that day, I don’t feel like being out of shape is the reason anymore.

I honestly just want confirmation that this isn’t normal, I can’t afford to do all the testing narrow down what (if anything) is wrong.

 

[Ian waxman]

I'm sure the fact that you have kept so active has helped a lot. I also was very active & I credit that as the reason I've been able to handle this level of pain for so long. Have to say, it's been a real challenge to give up my independence. The list of symptoms you wrote out are the same symptoms I have. ( you print that out for your doctor so he can put it in your file) It seems the joint areas, including the shoulder blades, are being attacked. Also, my arm muscles feel like they've been pelted with a bee-bee gun for a while. They often feel swollen & weak. Now, I have about 20% of the strength I used to have. Adjusting to the change in lifestyle is difficult. I don't have a firm diagnosis yet. For now, I say: I have a Chronic Pain condition with fibromyalgia-like symptoms. And I believe my pain is nerve pain. I am waiting for admission to the Chronic Pain Management Program in March. Hopefully, they'll give me a real diagnosis. The push for a 'real' diagnosis is frustrating but necessary for medical practitioners.

How old are u?walking a tremendous distance regular will give you multiple pain points.you may feel fit but it’s still gonna hammer your system.talk to the pain team see if you can get any solutions.good luck

 

[ckahern]

I use an app.and I will use it when I start to feel the stress and the pain comes on.