Need help describing pain

[kalmen]

Hello

One thing I became aware of, living in pain for the past 14 years, is that I didn't realize I was in pain, and I allowed others to gaslight me to thinking I was just lazy or unwilling to move (especially physio therapists). The two types of pain I'm looking for help is the generalised dull pain and acute pain. Does it have a name?

I don't know what the proper names for the pain is, but in summary it is:
1- General dull pain all around my body, but especially on my right side. This pain is not insanely bad, but forget social life, and work becomes a struggle. Fortunately, Panadol Osteo really helps but only enough manage the day without interacting with people. Does that have a name? Or just dull pain?
2- Chronic inflammation in my lower back, MRIs come back normal (wear and tear that comes with age), so far, we still don't know what's causing the inflammation and the markers are slightly elevated in the bloods. I think this one is clear.
3- General stiffness, that makes everything unpleasant, especially in my lower back, neck and face muscles, I'm guessing that is just muscle stiffness.
4- Acute pain, which is an outcome of the dull pain, inflammation and stiffness when the muscles I stressed (like sleeping on the wrong side). Does this have a different name?
5- Brain fog, which is self explanatory.

I guess I'm just looking for your thoughts, ideas, or shared experiences. I understand this is not to be taken as medical advice.

Cheers

 

[sunkacola]

Hello @kalmen ....I think that you have described the pain quite well in your post above. There aren't really any words that describe pain that you don't probably already know. It's hard to describe it to others, I know. That is something every one of us struggles with at one time or another.

But honestly ---and this is only my opinion --- I don't think having more names for the pain, if there were more names, or better names if there were better names, would help all that much. Because people who have not experienced what fibromyalgia is like will not ever be able to grasp what it is like for us. They just cannot - they don't have any reference for it.

I gave up some time ago on ever having anyone who has not experienced the symptoms of fibromyalgia or something similar, who has never had chronic pain, understand what my life is like. It's much easier on me if I don't expect anyone to understand it, and I only ask that they believe me when I tell them what it is like as best I can.

 

[kalmen]

Thank you @sunkacola, It really helps to hear another perspective. This is also the time to see the types of people that surround you , I really appreciate your time and sharing your experience, thank you!