G
Guest
Guest
Hi Sean, so sorry to hear about your PLS diagnosis and pain. I agree with LouLou that you'll find tons of help here - there are many wonderful folks participating on this forum.
I'm still working - I now teach full-time - but I do so on-line - and completely from home. If I had to go to an office, stand for 8 hours, or anything more restrictive, I'd be in some pretty serious trouble.
I have a lot of bilateral leg pain - mostly calf and feet - but often upper legs as well. Consistent with what others have said, neither is my pain possible to describe. In fact, on another post, I mentioned that I was very recently referred to another neuro who asked me to describe my leg pain. I told him I could not do so - his heavily clip and sarcastic response to me was: "But you are the only one who CAN describe your pain!" His sarcasm really put me off - I have not gone back. Not a huge loss either, because he was simply too arrogant to understand what I was saying. In contrast, my present neuro (who - surprisingly - had referred me) has recognized how odd this disease really is - I once told him that my symptoms were "strange" - his amused response was: "But EVERYTHING about your condition is strange!"
The problem is that the pain is sometimes a very severe tightness sprinkled with pain - which moves about - and which varies in frequency....uh, forget it, because I just can't describe it. Nope, can't describe it. :?
Wish you well!
Mike
I'm still working - I now teach full-time - but I do so on-line - and completely from home. If I had to go to an office, stand for 8 hours, or anything more restrictive, I'd be in some pretty serious trouble.
I have a lot of bilateral leg pain - mostly calf and feet - but often upper legs as well. Consistent with what others have said, neither is my pain possible to describe. In fact, on another post, I mentioned that I was very recently referred to another neuro who asked me to describe my leg pain. I told him I could not do so - his heavily clip and sarcastic response to me was: "But you are the only one who CAN describe your pain!" His sarcasm really put me off - I have not gone back. Not a huge loss either, because he was simply too arrogant to understand what I was saying. In contrast, my present neuro (who - surprisingly - had referred me) has recognized how odd this disease really is - I once told him that my symptoms were "strange" - his amused response was: "But EVERYTHING about your condition is strange!"
The problem is that the pain is sometimes a very severe tightness sprinkled with pain - which moves about - and which varies in frequency....uh, forget it, because I just can't describe it. Nope, can't describe it. :?
Wish you well!
Mike