Morbid Greetings from GTA Ontario, Canada

[sunkacola]

I really thought I couldn't live without bread! But gluten was causing a serious problem in my digestive system, so I stopped eating bread entirely. Craved it for a whole year before I got used ti it, but you do what ya gotta do. Now, I feel lucky because since that time there have been many options in bread items that are gluten free being offered, and some of them are really good, so I have bread again in my life.

When there is no hope, there is no fight.

There is hope with fibromyalgia. Not for it to be cured, necessarily. But it is completely possible to learn to accept it and live with in in a way that makes life well worth living.
Seriously, I didn't think there was hope either at first. But one day I somehow got a thing in my mind that told me I had to take charge of my medical treatment and not rely on doctors who seemed to know very little or nothing about my problems, and who only pushed pills. That's when my life started turning around because I went on a 2 year journey trying everything non-medication that might help, and finding things that did help. The whole project became very interesting to me and the more I focused on that the less I focused on the pain and the despair I had felt before.

These days my life is not what it used to be pre-fibro, for sure. But it's my life, and I have found ways to work with my body and to enjoy what I have. And I have lots of hope of all different kinds in my life now.

 

[AhZo]

I really thought I couldn't live without bread! But gluten was causing a serious problem in my digestive system, so I stopped eating bread entirely. Craved it for a whole year before I got used ti it, but you do what ya gotta do. Now, I feel lucky because since that time there have been many options in bread items that are gluten free being offered, and some of them are really good, so I have bread again in my life.

I think I might be able to make gluten free bread. Some bread makers have that option, such as Zojirushi.
Sorry, I am not sure if I am thinking (typing out loud) as I had poor sleep last night and kind of on a pain thing.
Researching rheumatologists now.

There is hope with fibromyalgia. Not for it to be cured, necessarily. But it is completely possible to learn to accept it and live with in in a way that makes life well worth living.
Seriously, I didn't think there was hope either at first. But one day I somehow got a thing in my mind that told me I had to take charge of my medical treatment and not rely on doctors who seemed to know very little or nothing about my problems, and who only pushed pills. That's when my life started turning around because I went on a 2 year journey trying everything non-medication that might help, and finding things that did help. The whole project became very interesting to me and the more I focused on that the less I focused on the pain and the despair I had felt before.

These days my life is not what it used to be pre-fibro, for sure. But it's my life, and I have found ways to work with my body and to enjoy what I have. And I have lots of hope of all different kinds in my life now.

I have lived with pain and severe medical conditions for most of my life.
The pain I am in on a regular basis is excrutiating, as I am sure most everyone has experienced. I am not saying that I cannot rise. I am saying I am not sure I have fight left. I amy trying and this board has already helped me with a modicum of hope. I will post a non-reply post on this thread because everyone here has helped me. THank you. Or - maybe not 'thank' you, when I am feeling hopeless again and will be cursing that I got suckered into that pestilence that is "hope"! LOL (Sorry, my humour is morbid on bad pain days and today is one of those - hope you can read that for the tongue in cheek morbidity that it is - that is me trying)

 

[AhZo]

Thank you everyone for your warm welcomes and helpful information.
These pains came on rather quickly (over the last 4 or 5 years or so). I deal with other health issues and have my 'affairs in order', so to speak. I was just expecting things to happen differently.
If I get to deal with yetanotherdebilitatinghealthissue, I get very down, wich as everyone knows will help trigger all the other stuff.
Also, I am sure everyone knows the feeling of nearly screaming about symptoms and members of the medical communities not necessarily paying attention. That might be a bit worse for thos of us who cannot communicate due to other issues such as language barriers or autism (or both, in my case).

I have taken a few steps forward:
- Off the duloxetine after giving it a HEALTHY try
- Made a new appointment with my pain doctor to discuss other medications between trying duloxetine and going into something extremely terrifying like lidocaine infusions (such as pregabalin/Lyrica)
- Made an appointment with a massage therapist to work on relaxation
- Working down a list of acupuncturists and will probably call one of them this week to book an appointment
- Tracked down a rheumatologist who works with fibro and going to call my GP this week to try to get a referral to get on their waitlist
- Poindering modifying my painlog systems to try to determine possible triggers (hey, I am autistic: "systems" and pattern recognition is like the only ting we do that does not annoy the eff out of allistics. Well, sometimes.)

Getting off the duloxetine was HUGE for me because it interfered with two other meds. Not taking those severely increased my stress and ruined any chances of decent sleep.

Even though no one can bleed forever, I feel like I have a tiny ember of hope, which may be setting on moist kindling and I am gingerly trying to foster it to a small flame without a clear udnerstanding of combustion or the proper tools.

 

[cookiebaker]

Or - maybe not 'thank' you, when I am feeling hopeless again and will be cursing that I got suckered into that pestilence that is "hope"! LOL (Sorry, my humour is morbid on bad pain days and today is one of those - hope you can read that for the tongue in cheek morbidity that it is - that is me trying)

Sorry you are feeling so poorly, @AhZo but I get it. Some days are just too tough to even consider hope.

I am saying I am not sure I have fight left.

I would say that yes, you do have fight left, or you wouldnt be here. There is strength in numbers, even if they are more or less anonymous numbers. Hang in there! We are here for you!

 

[AhZo]

Sorry you are feeling so poorly, @AhZo but I get it. Some days are just too tough to even consider hope.


I would say that yes, you do have fight left, or you wouldnt be here. There is strength in numbers, even if they are more or less anonymous numbers. Hang in there! We are here for you!

Thank you @cookiebaker !
I am trying!
I even purchased some new eyeliner to make me feel gorge to be delivered shortly. Might put on some new (more like rarely worn) earrings and then park it on the sofa with some chamomile tea and possibly a CBD treat. If I get the energy and/or relief later today, I will make a batch of lavender soy candles.

Mantra: I am going to focus on self care this week.

 

[sunkacola]

Good thing to focus on. Maybe even look it up online to see what things you could do that you might not have thought of. Can you get CBD/THC gummies or other things where you live? If so, I recommend it. The combination works better for many people, including myself, than just the CBD alone.

Wishing you well.

 

[AhZo]

I can go down to the local store and buy buds, gummies, drinks, edibles, etc.thanks

 

[AhZo]

after searching many older posts and trying to educate, I have determined this board is not for me
good luck to you all

 

[cookiebaker]

after searching many older posts and trying to educate, I have determined this board is not for me
good luck to you all

Sorry to hear, but know you are welcome back any time.

I hope you can find the answers you are looking for. Take care of yourself.