just a whine

[bstu]

new to this forum and not diagnosed, but honestly i really think i have it and i have had it suggested a few years ago. i just need to complain because no one understands how i feel

i'm not even 20 yet and i feel like some days i just can't function. i'll have a week or more where it's hard to get myself out of bed because everything aches, but laying in bed makes everything ache... so i get up and maybe take a short walk, which just makes me feel worse again. it's been years now of trying to find a balance but eveyrhing is so exhausting because it just feels like absolutely nothing works. some days it's great, others i just don't want to wake up the next day.....it's seriously to the point where i'm suicidal again.

i can't get my thoughts straight, i struggle remembering people's names and street names etc. things that were sharp and quick to come to my mind, but now it feels like i can't even reach for the words or the ability to make sense sometimes. i wake up every day feeling like i never slept, my head already a mess, aches in my body that make me think i can't walk... no chance for me to start the day off well.

year after year it just keeps getting worse and worse. it's getting so tiring that no one gets how painful and exhausting it feels. it just gets shrugged off, that i'm young and i'm just lazy, that my parents are in more pain than me so i should keep it to myself. all this on top of family arguments, being treated like a therapist for my parents and trying to manage my own struggles with being bipolar and autism + adhd it's just all too much. doctors won't listen, they think i'm fine because i look fine, friends don't understand, parents just seem to not care, and i don't have a clue what to do for myself.

 

[Buckle]

Hello bstu. I too, am new to this forum. I was misdiagnosed for 6 years. Most FMer's are misdiagnosed for quite a while. Finally, I went to a rheumatologist, and received the diagnosis the first visit. FM mimics a number of other disorders. Example: hypothyroidism, to name just one. I have several diagnosis's other than fibro. Most FMer's do. FM usually doesn't travel alone. If your doctor doesn't listen; fire him/her. Keep doing your research. You know your body better than anyone. Hang in there. Hopefully, it won't be fibro, but something that can be cured!

 

[bstu]

thank you for that, it makes me feel a bit less crazy. i definitely think i should see a new doctor, they can be quite dismissive, or just want to keep doing bloods (which come up negative for any issues) and it isn't getting anywhere. perhaps i should see a rheumatologist as well, my mum has suggested i see hers now i'm over 18 and able to.

on another note, do you know of any ways now to deal with a bad flare up? i have no idea what to do, as it feels like everything that should help makes the pain and exhaustion worse, any tips i'm happy to hear lol. thank you for taking the time to reply to my thread

 

[sunkacola]

thank you for that, it makes me feel a bit less crazy. i definitely think i should see a new doctor, they can be quite dismissive, or just want to keep doing bloods (which come up negative for any issues) and it isn't getting anywhere. perhaps i should see a rheumatologist as well, my mum has suggested i see hers now i'm over 18 and able to.

on another note, do you know of any ways now to deal with a bad flare up? i have no idea what to do, as it feels like everything that should help makes the pain and exhaustion worse, any tips i'm happy to hear lol. thank you for taking the time to reply to my thread

I recommend you take a look at this post, because there might be something there that is helpful to you.

S

Thread 'My advice for managing fibromyalgia (especially for newcomers)'

Jul 21, 2020

I am not a doctor or anything, just a person who has lived with fibromyalgia for several years now and has done a lot of research and trial and error experimentation. What follows is just basics. There are a lot of variations. You will find your own versions of everything I say, as this is not a prescription and there are no guarantees. But I believe that if you can do these things, it will improve the quality of your life.

First thing to remember is that Fibro is not a death sentence and if you learn how to manage it, it will very possibly not always be as bad as it is now.

I was at...

• sunkacola
• Replies: 29
• Forum: General discussions about fibromyalgia

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[bstu]

thank you so much