I'm still trying to figure it out and i need some help

[sunkacola]

I think there may be a link between your health anxiety, staying in bed and what you’re experiencing.

There is always a link between a person's state of mind and their physical health, so this is very true.
I don't think we even have any idea how powerfully our minds can and do affect our physical health. I think it's possible that if we as a species fully understood what our minds are capable of with regards to our own bodies, there'd be almost no disease left.

 

[BlueBells]

I would start with some therapy for both body and mind.

Hello @DawnC

I gather therapy has really helped you with this problem? Please let me know, as I would so like to be free of it

 

[BlueBells]

@DawnC

Hi Dawn, I just thought, are you referring to the Kegels (twatty exercises as my doc called them) to help strengthen pelvic floor? Must admit I am slack at keeping up with them, however, the intermittence appears unrelated.

Have you come across other therapies that have worked for you?

 

[JayCS]

Hi Dawn, I just thought, are you referring to the Kegels (twatty exercises as my doc called them) to help strengthen pelvic floor?

BlueBells, you're not meaning to answer me on the bladder thread here are you?

Yeah, I do try to remember to Kegel etc. in between my back exercises.

Whatever, I'm wondering what the male version for twatty would be....
Perineum would maybe be official for a diverse version?


(I was gonna ask if you fogged that up, but it might come over ... funny...?)

 

[BlueBells]

@JayCS

BlueBells, you're not meaning to answer me on the bladder thread here are you?

ahhhh...yep

I should be sure brain is in gear and fog cleared before typing lol!

 

[Auriel]

Definatly, anxiety makes it much worse (the reason I'm trying to avoid extra stressors at the minute) sometimes we need to just be in bed it's good to have a rest sometimes (all the time isn't good either)
🕉

 

[Auriel]

(twatty exercises as my doc called them)

Your Dr sounds funny bluebells

 

[BlueBells]

Your Dr sounds funny bluebells

Yeah, he was really good, but unfortunately has retired. He was the sort that even put the children at rest, they learnt going to the doc was okay.

 

[Not2Jaded]

I am amazed myself how much the level of pain varies. Sometimes it is overwhelming and other times I manage to distract from it. Key point seems to be that I need down times and quiet days and a lot of exercise to manage it, and need to actually grapple with rather than distract all the time.

 

[BlueBells]

Hi @Not2Jaded

Hi Apple, how are you finding this site? I don't really get the pain, at least, I don't think I do.

They are very supportive here.

I've learnt that some people can be totally debilitated by the pain, and it almost makes me feel guilty, and fake. But, I am learning that everyone is a bit different, heaps of similarities, heaps of differences., But, all of us afflicted in some or many ways.

@sunkacola , @JayCS and @Auriel are probably the ones I've interacted with the most, Sunkacola and Jay especially so.

Lots of hugs, good to see you.

 

[Akshay3]

Hi liaa i am from india and my symptoms are exactly like yours . I have seen many specialist doctors in last three yearsand all of them diagnosed me with fibromyalgia. There is little comfort after shifting from cold himalayan region to warm weather . I am starting ayurveda treatment next month and will share my results with you.

 

[Auriel]

@akshay330, yes please do let us know how you get on with the treatment, I've not see your name before so I'm gonna welcome you to the forum
️

 

[sunkacola]

Hi liaa i am from india and my symptoms are exactly like yours . I have seen many specialist doctors in last three yearsand all of them diagnosed me with fibromyalgia. There is little comfort after shifting from cold himalayan region to warm weather . I am starting ayurveda treatment next month and will share my results with you.

Greetings, Akshay, and welcome to the forum.
I am interested in what experience you have with Ayurvedic treatments, so please do feel free to post about this in the forum. I would like to suggest you start a new thread about it so that it will be easy to find.
I had a very small and limited experience with Ayurveda, many years ago and prior to my having fibro, but I found it surprisingly helpful for what was going on at the time. It had not occurred to me to try it for fibro.