I need to talk to people that understand me

[Chasechaser]

Hi Everyone. I'm new. I guess I have fibro. I feel terrible and I don't know what to do. I'm very tired and weak. My family doesn't understand y I'm not doing everything I used to. Most of the time they look at me like they think I'm lazy. My husband gets upset if I stay in bed to long. I'm 45 and have 2 grandkids that I want to spend Time with and my daughter needs my help. But I keep telling her I'm to tired to babysit them and I hate that. I need advise. Lots of it. I quit my job a year and a half ago. I've been to lots of doctors since then. They can't find anything wrong. The rheumatologist didn't even check any pressure points he said" try this medicine. If it helps then u have fibro." Is that the right way to diagnose someone? It does help with the other symptoms but not the tiredness. How can I get more energy?

 

[diamond]

Hi and welcome.....i would like to do a long post but my hands are playing up.......so sorry it looks like you have fibro. It's a very tough illness to get your head around and i know some rheumys don't use the pressure point test but rule out other things first and talk to youmaybe examine you and then come up with fibro.

I have posted 3 different letters on a recent thread called ' Giving in to this condition ' which might help you explain to family members what you are going through and how important their understanding is.

Please don't be hard on yourself....listen to your body...if you need rest you need rest...you are not lazy!

Maybe get a second opinion from a rheumy you have more confidence in. Can you get a recommendation from someone for a good doctor.

Stay here with us for support and you will probably get a quicker response on the main discussion threads...sometimes this one gets overlooked for a day or two.

Sorry to be late replying and welcome again.

 

[Dannyo]

Hi, I'm new to this site, but NOT Fibro. Read my new blog by Dannyo. Write back. I ve had this stuff for a Long time ! I will try to help. I Understand, I assure you ! Dan

 

[Dannyo]

I agree. Also, Fibro has no RH factor, so Dr.s will not see it. Read my new blog by Dannyo

 

[Dannyo]

Spend more time with yourself. Relax. You Cannot help others until you help yourself ! This is a Top priority !!!

 

[Chasechaser]

Thank you for the advise.

 

[Eyesup]

No that is not the right way to diagnose anything. They are not sure what causes fibromyalgia yet. There are numerous other conditions that it could be and should be rueled out first. PLEASE don't give up and just accept this crappy diagnosis with out rueling out everything you can.

I would suggest researching as much as you can, if you can enlist someone's help that would be even better as you probably aren't thinking real clear from pain. Then start approaching specialist.

Almost everyone here understands how it feels to be surrounded by people that don't understand. Our illness is invisable. If you had two broken legs you wouldn't dream of chaising around grandkids and I'm sure your daughter wouldn't ask. You need you. You need them. Take care of yourself so one day you may be able to take care of others again.

Chin up, things always seem worse when we are in the dark. It will get better.

 

[sureimsore]

I don't do meds, so I can't advise you, other than trying something like a cup of coffee or tea. It effects everyone differently, for me its a benefit.
How was your last blood panel, any vitamin deficiencies? I would talk to your doctor about it, but maybe B-12 shots would help. I know the fatigue stinks, but if your pain is gone, and no headaches, abdominal issues, that's half the battle won for now! Also, have they tested your for EBV? I came up positive for a current infection 2months ago, knocked me down for quite a while.

 

[kml122]

Wow I feel the exact same way!!! It really sucks when you have people, especially family, that do not understand what you are going through!!! What I would like to know is how I can find Willow's "Giving in to his condition"...I am not familiar with forums and am not sure how to navigate! Thank you!