I found a cure! CBD oils

[Jeremy]

Hi everyone.
I'm 50 and struggled with Fybro since 2010 and found it to be a constant background noise in my life. At times the volume would be turned up and it would make life unbearable, but I would just try and push though.

However, from October 2023 I trialed a CBD oil product without the THC hallucination causing part and noted a dramatic change.
Since I started the treatment the condition has completely gone, even with some stressful events during this time that would normally trigger it.

The original reason to use it was to manage my ADHD that has gone undiagnosed until taking my son to explore his condition and noting I shared the same traits. My Doctor noted it may help target the Fybro as well, and in fact it did!
It may not be a complete cure for everyone, but understanding how it targets your body I do believe it will at the very least mitigate it.

I also ordered the THC variant of the CBD oils too as a way to mask the pain from the condition, but in the end I never needed to use it.

Anyway, I thought it could be helpful to others to get it out there for others to trail for themselves.

Good luck everyone.
Jeremy

 

[sunkacola]

@Jeremy , thank you for telling us your experience, and I am very happy for you indeed that CBD oil has proven to be so effective for you. I hope it continues to be this good for you.

We have discussed CBD many times on this forum over the years. Most people find that it can be helpful at times, but no one has previously reported that it has been a total game changer for them, unfortunately, so I think your experience is pretty rare. I sure wish that more people, including myself, would find it as useful as you have!

I have had some mild success using CBD if it is combined with THC, but it does nothing for me on its own, except as a topical application in a rub-on format, which I have found is sometimes helpful for certain kinds of the pains I have.

CBD is one of the things I always recommend that newcomers to fibromyalgia try, because it can help, but sadly it is not a "cure" for the vast majority of us.

Once again, thanks for letting us know. To know that it has helped even one person this much is great information. We will continue to recommend to people that they give it a try.

 

[JamieMarc]

Great news @Jeremy
What is the name of the CBD oil product(s) that you used?

 

[sunkacola]

I should actually add that the CBD For Life Rub that I use also has a lot of other ingredients, such as eucalyptus oil, camphor, peppermint oil, and clove oil among others, so who knows what is actually doing the job of easing muscle aches. But, personally, I don't really care because if it works I don't argue with success.

 

[sunkacola]

@Jeremy I would also be interested to know the name of the CBD oil you are using.
***Please note***: you are welcome to post the name/brand name, but it is against forum rules to post any outside links, so please don't post a link to the product, or that will have to be removed.
Thanks!

 

[JamieMarc]

@Jeremy @sunkacola I wanted to ask both of you what parts of your body do you apply the oil or the rub? I assume it should be applied to the specific area of pain. And if that is the case, I wonder what is the best method to get it onto your back if you have no one to do it for you?

 

[Jeremy]

Hi again.
The product is to be used orally and is called a Pure CBD Isolate. Brand 'Humacology' THC:0 CBD: 220 30 mill bottle.
I live in Australia but this product is imported from Greece.
The product also has 'terpenes' that have great calming influence that you find in aromatic plants like lavender, Basil ect..

The other point I would like to make here and may make a separate post about is the importance of self awareness to both your body and the triggers that bring on this terrible condition.

For me it took 10 years (2010) to even have a name for this condition I was suffering from spending a fortune chasing symptom ghosts with no holistic view. Once it was diagnosed, the next episodes continually got more manageable as I no longer let me anxiety make the effects worse through fear of it being something much worse, which also greatly shortened the duration.

The triggers for me were either waring myself down by not getting enough quality rest (self inflicted), but mostly it would be from some form of emotional stress event/s from relationships, or the stresses of work.
Once I became aware of the patterns I would activate countermeasures to lower my stress levels.
What works for me is the Wim Hoff Method breathing exercises, I swim twice a week 1km each (only takes 17mins), and the mindfulness of my hobbies to focus the mind on something else.
And since last October the CBD oils have had a massive impact on my ability to not be triggered by life's stresses.

I should point out, I noted that Fibro, with its over 200 possible symptoms is actually always there is some small way, but is a very low volume that is easily ignored. But once a life trigger raises stress levels the volume gets turned up.
For me the louder volume has not happened since last year. This I consider a cure for me.

I also wonder how many people with this condition like me have some other diagnosed or undiagnosed mental illness like my ADHD, anxiety, or other that is to true trigger for there Fibro?

The oils were to target ADHD and my GP thought could possibly help target Fibro too. So by greatly lowering the ADHD effect on my mind, especially the background anxiety from the condition was removed, it looks like it was a major contributor to Fibro and targeting this also prevented me from having another major episode..

In the end, I believe the most important way to deal with this condition is to get to know your own mind and what triggers it for you and what possible options are available to target those areas.
See if you possible suffer from another condition? Often it can be several linked conditions.
When I was a kid there was no name for ADHD and like most of us were told we would just grow out of it.. you just learn to live with something that is part of you. Now through the CBD oils I have a new confidence and really noticed the positive change in my work place where I am taking on more and more responsibilities and tackling what ever the world throws my way without getting too overwhelmed by it all.

I hope this is more helpful rather than just saying use CBD oils..

Be kind to yourself,

Jeremy

 

[barbara lowcock]

I am so pleased for you Jeremybut i have been takinga very strong C B D oil now for months and it has had no efect on my Fibro at all. That doesn't mean to say you all should not try it it may work for you, Good luck.

 

[sunkacola]

@Jeremy @sunkacola I wanted to ask both of you what parts of your body do you apply the oil or the rub? I assume it should be applied to the specific area of pain. And if that is the case, I wonder what is the best method to get it onto your back if you have no one to do it for you?

Yes, the CBD rub is a topical sort of thing, to be applied only to the place where it hurts. I use it on my lower back and sometimes on my legs. It's not easy to reach all the areas of one's back, but I am fortunate to have made a point of staying flexible, so I manage on my own to reach my lower back. If the pain were higher in my back, I wouldn't be able to reach it. Amazon sells applicators that will help y ou to put it on parts of your back that you cannot reach. I searched for "lotion applicator for back" and there were several.

 

[JamieMarc]

Thank you for your great post @Jeremy
I'm just going to say ditto to everything you wrote. I am of the same mind as you, and to answer your question I was abused as a child and do suffer from anxiety and PTSD, and have also suffered from depression on and off throughout the years.

Like you, I practice mindfulness and breathing exercises and other things, and I try to be aware of and avoid or lessen triggers that cause stress. I have been working on mindfulness, particularly as it relates to my anxiety and PTSD, for about 10 years. I do firmly believe in the link between a hyperactive stress response and fibromyalgia.

You said it all much better than I ever could, but I am anxious to give CBD products a try, not just the one that you mentioned but @sunkacola recommendations too. I also think that natural anti-inflammatories and natural antioxidants are important for us. That is right now where my primary area of focus is, and then CBD to follow.

Thank you for your recommendation, brother. And for affirming what I believe. At least as it relates to my own unique fibromyalgia and circumstances.

Awesome post!

 

[sunkacola]

I think that many of us, at least going by what I have read on this forum over the past 10 years, have a history of high stress and/or childhood trauma. And I think it is definitely related to our having developed fibromyalgia. I know that the abuse I had in my early life affected me in many ways, and always will, even though I have worked through it thoroughly in therapy. Like @JamieMarc I am intellectually able to sluff that all off me now, but sometimes something will trigger that deep feeling of being worthless or unacceptable. Fortunately, I have skills now to deal with that when it happens.....but the very fact that it happens to us at all after all the years and the work and development of tools to manage it shows how damaging it was to our beings.

I would be curious to know, but have no idea how to find out, what percentage of people with fibro report no childhood trauma or high stress in their lives. I do know that some people say it started when they had a certain illness, or were injured in a car wreck, so things like that can trigger the onset as well. Of course, those things are also trauma to the body. And we have no way of figuring out why some people develop fibromyalgia and others do not. All part of the mystery, I guess, and of course knowing why wouldn't really help us anyway.

 

[Badger]

I'll have to find some CBD cream in the U.K. to try on my sore joints. Ibuprofen gel doesn't seem to do much for old injuries such as tennis elbow. It makes sense to me that Fibromyalgia can follow trauma and sad to think our nervous system can be left in such a state.

 

[JamieMarc]

I would be curious to know, but have no idea how to find out, what percentage of people with fibro report no childhood trauma or high stress in their lives.

I would, too @sunkacola I suspect that it would be a small percentage.

 

[sunkacola]

I would, too @sunkacola I suspect that it would be a small percentage.

Yes, I suspect so as well.