My name is Doris, I am currently 64 years old. I have been diagnosed with Fibromyalgia a while back, in in retrospect I seem to have had it since I was a child. I'm hoping to share experiences and also ways of healing.
It has been getting worse over the years, leading to my world getting really small. My main symptoms are pain, severe fatigue, depression, anxiety, some brain fog.
One of the worst things about it is that I can't trust my body to get me where it's supposed to go. For instance I love going for walks, but a lot the time I can't go for as long as I would like, sometimes every step is difficult and painful. I recognize the strong psychosomatic component in this, I think a lot of this is fear and trauma being manifest in the body.
I am not on any medication right now, I've been to every possible doctor for this, I've tried what they gave me, and nothing made a difference. In my opinion Fibromyalgia is an issue where I have to get very active myself to see what helps. I've never been able to do rigorous exercises, but I do Yoga and sometimes Qi Gong, on a mostly daily basis, as well as going for walks. One thing I have been half-assing is my diet, despite eating healthy on the one hand, it's really difficult for me to give up bread and other baked goods. I do notice a correlation between eating bread and symptoms, but the brain fog or denial plus past conditionings are very strong. I also seem to have a hard time to take supplements on a regular basis, I just get distracted and then another day goes by without taking them. I also find meditation an amazing tool to keep on an even keel and not to slip into self-pity and depression.
I have one friend who also suffers from this, she is an amazing support, she helps me to understand myself and have compassion. I am hoping to have more of a community to support each other.
It has been getting worse over the years, leading to my world getting really small. My main symptoms are pain, severe fatigue, depression, anxiety, some brain fog.
One of the worst things about it is that I can't trust my body to get me where it's supposed to go. For instance I love going for walks, but a lot the time I can't go for as long as I would like, sometimes every step is difficult and painful. I recognize the strong psychosomatic component in this, I think a lot of this is fear and trauma being manifest in the body.
I am not on any medication right now, I've been to every possible doctor for this, I've tried what they gave me, and nothing made a difference. In my opinion Fibromyalgia is an issue where I have to get very active myself to see what helps. I've never been able to do rigorous exercises, but I do Yoga and sometimes Qi Gong, on a mostly daily basis, as well as going for walks. One thing I have been half-assing is my diet, despite eating healthy on the one hand, it's really difficult for me to give up bread and other baked goods. I do notice a correlation between eating bread and symptoms, but the brain fog or denial plus past conditionings are very strong. I also seem to have a hard time to take supplements on a regular basis, I just get distracted and then another day goes by without taking them. I also find meditation an amazing tool to keep on an even keel and not to slip into self-pity and depression.
I have one friend who also suffers from this, she is an amazing support, she helps me to understand myself and have compassion. I am hoping to have more of a community to support each other.