Hello everyone!

mrs muir

New member
Joined
Feb 8, 2025
Messages
7
Reason
DX FIBRO
Diagnosis
09/2009
Country
DE
My name is Doris, I am currently 64 years old. I have been diagnosed with Fibromyalgia a while back, in in retrospect I seem to have had it since I was a child. I'm hoping to share experiences and also ways of healing.
It has been getting worse over the years, leading to my world getting really small. My main symptoms are pain, severe fatigue, depression, anxiety, some brain fog.
One of the worst things about it is that I can't trust my body to get me where it's supposed to go. For instance I love going for walks, but a lot the time I can't go for as long as I would like, sometimes every step is difficult and painful. I recognize the strong psychosomatic component in this, I think a lot of this is fear and trauma being manifest in the body.
I am not on any medication right now, I've been to every possible doctor for this, I've tried what they gave me, and nothing made a difference. In my opinion Fibromyalgia is an issue where I have to get very active myself to see what helps. I've never been able to do rigorous exercises, but I do Yoga and sometimes Qi Gong, on a mostly daily basis, as well as going for walks. One thing I have been half-assing is my diet, despite eating healthy on the one hand, it's really difficult for me to give up bread and other baked goods. I do notice a correlation between eating bread and symptoms, but the brain fog or denial plus past conditionings are very strong. I also seem to have a hard time to take supplements on a regular basis, I just get distracted and then another day goes by without taking them. I also find meditation an amazing tool to keep on an even keel and not to slip into self-pity and depression.
I have one friend who also suffers from this, she is an amazing support, she helps me to understand myself and have compassion. I am hoping to have more of a community to support each other.
 
Hi there, Doris, and welcome. You've found an excellent place for support.
We're all pretty much in the same boat. Look around, read past and new posts. You'll feel amazing peace of mind and validation just realizing you're so not alone. There are people on here from all over the world, and we care about trying to help each other.
 
Hello @mrs muir I also hope you will find extra advice and support on this forum.
Its good you are taking the time to listen to your own body and trying to find what works for you at any given time. Thats hard when fibromyalgia doesnt always 'stand still' it can change and fluctuate so we need to adapt to what works best.

With regard to you not remembering to always take supplements, I use a pill dispenser, a sectioned box and put each supplement prescribed medication in hourly sections. That way I can see what I may have forgotten. Course that doesnt work with liquid supplements, but maybe if you keep the two in the same place it may give your mind a nudge?
 
Greetings, @mrs muir , and welcome to the forum.
You are doing a lot of very good things for yourself already, and I hope that this forum will help you to find more things you can do for yourself from day to day, things that might help ease some of the symptoms we all face with fibromyalgia. I wrote a post with a bunch of thoughts and suggestions, so take a look and see if there's anything there that might be useful to you, or maybe something you haven't tried yet.

As for bread.....maybe you could try going gluten-free and see if that would do the trick. I did that several years ago now, although I didn't do it because of fibro symptoms. These days it is so much easier to find decent gluten-free baked goods, mixes, breads and even whole bakeries, than it was several years ago. If you found by trying it out that going gluten free made a difference for you, then you could still enjoy the baked goods you like.
(Just be sure, if you try it, that you are meticulous about it. This means reading every single label of everything you eat because you'll b e surprised how many day to day things are made with wheat, rye, or barley in them!!)

I hope this forum proves to be useful for you.
 
Have you ever considered trying carnivore or Lion diet? Tastes so good.
 
But is this the diet you are following? Is it helping you with symptoms? Do you notice a difference?
 
Hello @mrs muir I also hope you will find extra advice and support on this forum.
Its good you are taking the time to listen to your own body and trying to find what works for you at any given time. Thats hard when fibromyalgia doesnt always 'stand still' it can change and fluctuate so we need to adapt to what works best.

With regard to you not remembering to always take supplements, I use a pill dispenser, a sectioned box and put each supplement prescribed medication in hourly sections. That way I can see what I may have forgotten. Course that doesnt work with liquid supplements, but maybe if you keep the two in the same place it may give your mind a nudge?
Thank you for that suggestion!
 
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