Hello everyone, my first time posting.

[Amarie86]

My name is Annie and I have suffered with chronic migraine for 33 years. Over the years, I’ve also dealt with mild/med chronic fatigue symptoms. I’ve tried so many things over the years, diets, supplements, medications, and different healing modalities that help a little but nothing ultimately has taken the migraines away. At this point, I’m trying to manage with some of the newer migraine meds available which seem to be helping some.

Here I am today suspecting I may have Fibromyalgia. In 2022, I came down with Covid and have never really fully recovered. Extreme fatigue, and the last year and a half I developed all over body achiness, muscle stiffness, brain fog, internal pins and needles sensation, neck pain, and daily migraine/head pain. I’m pretty much housebound, able to leave my house at the most a couple days a week. If I do overdue, symptoms increase greatly. I think this is the most frustrating thing about these new/newer symptoms.

I have an appointment with a Rheumatologist next month, hoping to get some answers. I have noticed that many medications for migraine are also prescribed for Fibromyalgia, and that these two conditions can go hand in hand. Long COVID is also a factor, trying to receive help for this too. Ugh, it’s all a bit overwhelming.

So thankful to have found this forum, it helps me not feel so alone. Thank you, God bless ~

 

[sunkacola]

Greetings, @Amarie86 and welcome to the forum.
When you see the doctor, I suggest that you ask them to run tests on you for all of the various different things that could be causing your various symptoms.
You may have a case of long Covid rather than fibromyalgia, as the symptoms are very similar, or you may have chronic fatigue syndrome. Or, you may have fibro. But unless you get tested for everything you really won't know. I suggest that you don't go down the path of thinking you have fibro until you are told that by a doctor, because there are other things that are far more easily treated than fibro is, and you might have one or more of those, which could be a good thing.

In the meantime, know that you are welcome here and you can ask us questions or just vent if you want to and we will be here to help if we can.

 

[Amarie86]

Thank you @sunkacola for your words of advice. Yes it could be many things as you suggest and I probably should not try to self-diagnose myself. Looking forward to my Rheumatology appointment and getting more tests done. I’ve just been so frustrated lately and felt led to share.

 

[sunkacola]

You are more than welcome to write about your frustrations here. That's what the forum is for. We are here because we want to help each other.

 

[JamieMarc]

@Amarie86 welcome to the forums! We are so glad you joined us. I think that you will find this not only a welcoming place but a very educational and informative place.

Hugs!

 

[Amarie86]

Hello, thank you @JamieMarc for your warm welcome and virtual hugs. Reading through the posts, I can see how educational this forum is indeed.

 

[mrs muir]

Welcome Annie! How are your teeth? I used to have devastating headaches several times a week for a long time, then I found an environmental dentist who discovered that all the root canals I had were infected. I had those teeth removed and the headaches are gone. And I had a good look at those teeth after they came out, it was not a pretty sight.
I would never ever have another root canal done with what I know now. At the time I wasn't even given a choice and I had no idea what happens in the body as a result. Basically your teeth are being mummified and there are toxins produced and released into the body. There's a documentary called 'Root Cause' that explores this in detail, which dentists really don't want you to watch, considering how much income they would lose if noone would get root canals anymore.

 

[sunkacola]

Wow, @mrs muir I never heard of that before. It's especially interesting to me because I have four root canals myself, the result of a bad injury to my teeth that happened when I was very young. I wonder how common it is for a root canaled tooth to become infected, and what exactly it is that becomes infected since the root and nerve are gone from the tooth. I will have to look into this a bit to find out, I guess.

I also wonder what would be the alternative to having the root canal, which is a procedure that allows a person to keep their real tooth if it is injured and the nerve has died. In the case of an injury like that, if the tooth is not root canaled, it will turn brown and eventually will become loose and fall out. Also, the nerve in the tooth will essentially rot inside the tooth if it is not removed. I know that when I had my root canals done, those nerves were so rotten in there that when the dentist drilled into the tooth the odor was so bad that the other dentists and patients in the area all got up and left! (Sorry if that is TMI!)
I wonder what alternative the documentary is recommending for people with injured teeth.

Anyway....thanks for posting about it! It's interesting.

 

[JamieMarc]

Just want to throw in here that oral hygiene is so important. Infections in the mouth that we may not even be aware of can wreck havoc throughout our bodies. They have even been known to cause heart disease. We all should be taking good care of our teeth and practicing good oral hygiene.

I for one have never ever in my life like to floss. I always say I will to my dentist and I do it for 3 days and then stop. Finally, just this past year I bought a waterpik machine and now I floss everyday. At the first couple of uses I was shocked at how much whatever came out of my mouth. LOL. The waterpik is so much easier for me because it does not cause me pain, I don't have to struggle to get floss between very tight spaces between teeth and it is so much faster.

Just wanted to throw that in. I hope everyone is well and hugs to all.

 

[Flowergirl]

Hi Annie I have most of your symptoms and a few others (minus the headache part). I finally got diagnosed with Long Covid/ ME-C.F.S. The specialist, at the time he diagnosed me, didn't think I had fibro b/c most of my pain was localized in the lower part of my body..but now that has changed. Wishing you lots of luck and fast healing.

 

[Ian waxman]

My name is Annie and I have suffered with chronic migraine for 33 years. Over the years, I’ve also dealt with mild/med chronic fatigue symptoms. I’ve tried so many things over the years, diets, supplements, medications, and different healing modalities that help a little but nothing ultimately has taken the migraines away. At this point, I’m trying to manage with some of the newer migraine meds available which seem to be helping some.

Here I am today suspecting I may have Fibromyalgia. In 2022, I came down with Covid and have never really fully recovered. Extreme fatigue, and the last year and a half I developed all over body achiness, muscle stiffness, brain fog, internal pins and needles sensation, neck pain, and daily migraine/head pain. I’m pretty much housebound, able to leave my house at the most a couple days a week. If I do overdue, symptoms increase greatly. I think this is the most frustrating thing about these new/newer symptoms.

I have an appointment with a Rheumatologist next month, hoping to get some answers. I have noticed that many medications for migraine are also prescribed for Fibromyalgia, and that these two conditions can go hand in hand. Long COVID is also a factor, trying to receive help for this too. Ugh, it’s all a bit overwhelming.

So thankful to have found this forum, it helps me not feel so alone. Thank you, God bless ~

Hi!sorry to hear of your ongoing problems.i too have suffered with horrendous migraines but it can be a side effect of the actual medication your taking to combat it.its a vicious circle because you cannot cope with the severe pain.what meds have they prescribed?you say you have chronic fatigue could this also be a side affect from the strong meds?if the doctors have prescribed strong meds then there’s a strong possibility the meds could be making things worse.long covid is horrible and nobody really knows the full affects of what Covid has done to our bodies.i had Covid pneumonia,hospitalised for 3 days on oxygen and intravenous antibiotics.never felt the same since,recurring chest infections,tinnitus,loss of taste and smell and I have fybromyalgia really bad on top so things are pretty crap tbh.i hope the rheumatologist finds you some answers but if it’s long covid they can’t do much.i asked the doctors last time i was in with pneumonia for the 2nd time,coughing up blood.they said they haven’t got enough data to fully understand the effects and tinnitus.basically live with it and hope it gets better.i hope you have better luck xx

 

[DebMarPir]

My name is Annie and I have suffered with chronic migraine for 33 years.

Hi Annie, as you might know, migraines are one of the types of sicknesses associated with fibromyalgia. Fibro has a genetic link, as do migraines. But anyhow, if it helps I was having a migraine about every 6 weeks (after menopause) and I was put on topemax, which has helped make them less severe and less often. Today I had one waking up but killed it with Tylenol and triptan medication. Have you seen a neurologist? They also gave me another medication, reglan, which I take with magnesium, if I think I am having predromal symptoms and it can help make the symptoms sometimes go away. Wishing you healing! Just sharing my journey...