fibromyalgia, chronic pain

[hamzashk2702]

Myself Hamza,25, Mumbai. 2 years back I had GRADE-3 meniscus tear in both of my knees. In 2023 March I had my left knee surgery.
Few months later I was diagnosed with ligament swelling of both of my thumbs till end of palm. Which gives very very intense pain & same issue I got in both of my shoulders.
Then post surgery 9 months in December 2023 my operated knee got again tear.Now it's October 2024 and both of knees pain so severely that if I walk few steps/times in my home I feel like my knees would cut and fall off. The meniscus tear pain is like a knife is poking from inside and with all the knee pain, my both thumbs pains extremely like I feel chopping them off as it would be better one time pain rather than all of the time. I'm only in relieve when I'm sleeping or else all of the time I'm in pain.
I've already done these tests:results
1)HLA-B27: -VE
2)S URIC ACID: 4.7
3) CRP: -VE
4) ANTICCP: -VE
5) R FACTOR : <10
6) IONIC CALCIUM : 1.06
7) VIT D,25-HYDROXY : 28.78
8) ESR : 5
9) WBCs: 7.84
10) RBC:5.38
11)HB: 15.18
12)CRP QUANTITATIVE : 1.94
13)ALINE AMINOTRANSFERSE: 23.94

fibromyalgia, chronic pain these were the final diagnosis.

So basically i can't type much on mobile/laptop neither in paper, was not able to eat for a year, pains if I sleep on either side of shoulder for a longer time, trouble while trying to sleep, can't sit down due to tear and shoulder pain if try to get up.. I apply ice pack and volini gel on hands as prescribed by doctor.
My life has stopped.Please suggest any medicine/test/doctors, ANYTHING.

 

[Radmun]

Sorry to hear about all your pain. My only advice would be to go to a University Hospital Pain Clinic. University Hospitals usually have the cream of the crop doctors. I sure hope you find relief soon. Also, when I find a doctor, I look to see where he/she went for medical school. I was fortunate to find a Harvard graduate at University of Wisconsin. Best wishes.

 

[sunkacola]

hello @hamzashk2702 .
I am surprised that the doctor you saw diagnosed you with fibromyalgia, because to me what is going on with you doesn't sound like fibromyalgia. However, please note that I am not medically trained, nor is anyone else on this forum, so this is only an opinion and may not be helpful. I do not have any idea what the test results you list mean.

I recommend that you do as @Radmun suggests, and go to see a doctor at a university hospital. Seeing a rheumatologist and a neurologist would also be a good idea.

I am sorry you are going through this, and at such a young age.

I really wish I could tell you what would work for you, but unfortunately, no one here can actually tell you what medication to take. People who have fibromyalgia report such widely varying results with medications that there's no one thing that helps everyone, or even the majority of people. One medication improves one person's life, while ruining another person's life. The only thing you can do is keep looking for a doctor who can help you, and keep trying things to see if any of them work.

 

[mikepahr]

Agree, nothing in that post sounded like Fibromyalgia

 

[Sylph]

Have you tried a tens machine?

I'm grasping at straws, but you don't get on a forum and say you want to cut off limbs because all is well.

Sometimes our nervous system and brain communicate too well, and the brain perceives small stimulus, like light touch, as pain. A tens machine can sometimes teach your nervous system to stop over reacting.

Please note, I'm not saying "it's all in your mind" at least not in the typical way. It can sometimes be a hardwire response in your brain. It may be worth a try.

Last comment, if you cut off the offending part of your body you will still have phantom pain, but there will be no chance to address it ever, so please don't.

Hang in there, I know the pain is all consuming, keep fighting, you are worth it!