After seeing a doctor 4 weeks ago discussing whether I may have Fibromyalgia and being asked questions which resulted in an "inconclusive" diagnosis I returned for a follow up appointment with her to discuss blood test results.At the first appointment she said that she was trying to rule out other causes.
Unfortunately, the appointment did not start well. While I appreciate how many patients a doctor sees, it was not a good start when she said "I haven't seen you before have I?". I told her that it was a follow up appointment with her and then she read my notes and read out "possible endometriosis". In my initial consultation we spent quite a while discussing the fact I have severe endometriosis, which due to complications resulted in me having a 50% chance of survival, an ileostomy and fistula, 11 days in intensive care and has left me with 18 cm of bowe, I was in hospital for 7 weeks. All due to the initial endometriosis.
We then went through my blood results, I have access to my notes and knew my Vir D was low and it had been listed as "abnormal, doctor needs to talk to patient, supplements needed". She never commented on the result. I mentioned it she said that it was fine and she didn't know why someone had written it. I have checked and consensus is that I need extra calcium, I tried to discuss my worry that I could have short bowel syndrome where calcium is not absorbed properly due to not enough bowel. I have regularly taken Menopause which contains calcium for years and spend plenty of time outdoors.
My face pain and headaches have been ongoing nearly every day since the beginning of September and are wearing me down, before this I would regularly get a "fuzzy head".
My headaches were worrying me so I saw someone between appointments and was given a spray for sinitis (no congestion) it has had no effect.
The doctor couldn't find my discharge letter from hospital earlier in the year when I was rushed to hospital as it was thought I had a stroke or brain tumour. I have 2 patches on my brain, but am told it could be due to age/high blood pressure or chlorestrol. My dizziness was put down to vertigo. I have had 3 times now.
The doctor has arranged for me to go for a CT scan of my sinuses, my brain scan when I checked my copy of my discharge letter from the hospital did mention a slight swelling of my sinus lining.
During my first appointment with this doctor in amongst many symptoms I did mention my "thermostat" feels like it's set incorrectly. I don't think I have got flushes as such, I often feel hot when I was previously cold and sleep with a very thin cover and with no night clothes. I am 60 years of age, I feel like this doctor has "cherry picked" this symptom. She said "I have made you an appointment with the Menopause Clinic and they will give you HRT". I am reluctant to have HRT as there is a lot of cancer in my family including my son at 17 and my Mum had a stroke at 52.
So far I had a hospital infection that very nearly killed me after an incorrect diagnosis resulted in a botched operation, been diagnosed with Psoriasis, Psoriatic arthritis, hyper mobility causing Chronic Pain Syndrome all if which I have been told now that I do not have.
Sorry for the long post, I am just feeling sorry for myself today after feeling so disappointed in the way by appointment went yesterday. The doctor never mentioned Fibromyalgia(which I maybe may not have) I just feel a lack of trust in doctors. I do appreciate how difficult it is with such a large workload I just feel unlistened too. When I rang the Fibromyalgia National Helpline earlier in the year I cried after the conversation as the lovely lady listened and explained why I was getting different symptoms, which really helped.
Unfortunately, the appointment did not start well. While I appreciate how many patients a doctor sees, it was not a good start when she said "I haven't seen you before have I?". I told her that it was a follow up appointment with her and then she read my notes and read out "possible endometriosis". In my initial consultation we spent quite a while discussing the fact I have severe endometriosis, which due to complications resulted in me having a 50% chance of survival, an ileostomy and fistula, 11 days in intensive care and has left me with 18 cm of bowe, I was in hospital for 7 weeks. All due to the initial endometriosis.
We then went through my blood results, I have access to my notes and knew my Vir D was low and it had been listed as "abnormal, doctor needs to talk to patient, supplements needed". She never commented on the result. I mentioned it she said that it was fine and she didn't know why someone had written it. I have checked and consensus is that I need extra calcium, I tried to discuss my worry that I could have short bowel syndrome where calcium is not absorbed properly due to not enough bowel. I have regularly taken Menopause which contains calcium for years and spend plenty of time outdoors.
My face pain and headaches have been ongoing nearly every day since the beginning of September and are wearing me down, before this I would regularly get a "fuzzy head".
My headaches were worrying me so I saw someone between appointments and was given a spray for sinitis (no congestion) it has had no effect.
The doctor couldn't find my discharge letter from hospital earlier in the year when I was rushed to hospital as it was thought I had a stroke or brain tumour. I have 2 patches on my brain, but am told it could be due to age/high blood pressure or chlorestrol. My dizziness was put down to vertigo. I have had 3 times now.
The doctor has arranged for me to go for a CT scan of my sinuses, my brain scan when I checked my copy of my discharge letter from the hospital did mention a slight swelling of my sinus lining.
During my first appointment with this doctor in amongst many symptoms I did mention my "thermostat" feels like it's set incorrectly. I don't think I have got flushes as such, I often feel hot when I was previously cold and sleep with a very thin cover and with no night clothes. I am 60 years of age, I feel like this doctor has "cherry picked" this symptom. She said "I have made you an appointment with the Menopause Clinic and they will give you HRT". I am reluctant to have HRT as there is a lot of cancer in my family including my son at 17 and my Mum had a stroke at 52.
So far I had a hospital infection that very nearly killed me after an incorrect diagnosis resulted in a botched operation, been diagnosed with Psoriasis, Psoriatic arthritis, hyper mobility causing Chronic Pain Syndrome all if which I have been told now that I do not have.
Sorry for the long post, I am just feeling sorry for myself today after feeling so disappointed in the way by appointment went yesterday. The doctor never mentioned Fibromyalgia(which I maybe may not have) I just feel a lack of trust in doctors. I do appreciate how difficult it is with such a large workload I just feel unlistened too. When I rang the Fibromyalgia National Helpline earlier in the year I cried after the conversation as the lovely lady listened and explained why I was getting different symptoms, which really helped.
