I am a 65 year old woman diagnosed with cfs in 2013 waiting to see a rheumatologist to find out if I also have fibromyalgia. I've actually been waiting to see a rheumatologist for 5 years but seem to be sent to every other clinic but rheumatology. In 1995 I had thyroid cancer and had a complete thyroidectomy. I've been prescribed 175mg of thyroxine ever since and told this cannot be increased for fear of the cancer coming back. I have always needed a lot of sleep but for the past year or so the amount of sleep I need has been getting worse. A couple of weeks ago I slept for 39 hours and it is not abnormal for me to sleep for 15 to 20 hours at a time. Does anyone else have the same problem and has anyone managed to get back into a normal sleeping pattern ie 8 hours a night instead of all day. I would be very grateful to hear from anyone who has any tips for me.