Bad night sweats

[marymi]

@Hayley_d I have awful hot sweats night and day. Due to not having a 'regulator'. It is very unpleasant. I also have fibromyalgia and have 2 ovaries removed. So unsure what is causing it. Also suffer from anxiety which I believe is high with lots more people than it used to be. Good luck Hayley

 

[Faustina]

Hello,
Lately, I have been sweating at night. I too wonder why. Sometimes I guess our bodies use nights as a time to 'detox', so I sweat as my body detoxes. This is only a wild guess though.
I would like to know anything you find out about this issue.
Thanks!

 

[waypat]

bbbarnard...You sound a lot like me. I try to never show that I'm hurting. I just don't want to put a damper on someone else's day. I also never showed any pain while in labor. Our youngest was born in the porta potty at the hospital because the doctor and nurses were so busy attending to the mother's who were exhibiting pain. They just wouldn't believe I was in labor because I wasn't screaming my head off. When they finally did attend to me, I had to urinate (I drank a quart of chocolate milk before I went into labor) and told the nurses, they pointed at the porta potty and said, "well, there it is." On the potty, my water broke and our son was born about 10 seconds later. Sure fooled those "professionals/experts."

 

[mand1965]

I too get terrible night sweats i definitely believe its fibromalgia causing it ive had it ten years and its horrible

 

[DebMarPir]

I don't know where you are with regard to peri/menopause. I achieved menopause a number of years ago. I'm now 57, going on 58, but started perimenopause about 43. I had endometriosis, linked to fibro, which can cause perimenopause to start sooner. But it is worth mentioning, since no one else here has said it yet, that temperature regulation problems are also linked to fibro. Many have complained of feeling too hot or too cold. I have been cracking the window during 37 degree nights to feel comfortable and am a bit fed up.

 

[Sister50]

I can totally relate.....and it's a really awful that you wake up in the night covered in sweat. My thoughts are perimenopause, or a medication, or a combination of meds. Even some supplements can cause hot flashes/night sweats. My physician gave me a very low dose of a blood pressure medication and it was fantastic. I now have substantially fewer night sweats and hot flashes and they are less intense. Not sure if I'm allowed to post the name but it's clonidine and this is considered an 'off label' use.

 

[sunkacola]

I can totally relate.....and it's a really awful that you wake up in the night covered in sweat. My thoughts are perimenopause, or a medication, or a combination of meds. Even some supplements can cause hot flashes/night sweats. My physician gave me a very low dose of a blood pressure medication and it was fantastic. I now have substantially fewer night sweats and hot flashes and they are less intense. Not sure if I'm allowed to post the name but it's clonidine and this is considered an 'off label' use.

Yes, it is totally permissible to post the names of medications or supplements that people are taking. The only thing that we don't allow on this forum is direct outside links to other places on the internet. But if you ever want to direct people to something on the internet, you can do so by telling people how to search for it, such as: "Search for XXX on YouTube" or "Search for Pain Study at Harvard Med", or something of the kind.

 

[dramaqueen]

Yes me too !! Been having a flare up since 22.02.25 . New symptoms to me are night sweats,nausea,loss of balance, no appetite ?
Can't keep awake during the day ?

 

[sunkacola]

Yes me too !! Been having a flare up since 22.02.25 . New symptoms to me are night sweats,nausea,loss of balance, no appetite ?
Can't keep awake during the day ?

You might want to review any medication that you are taking, because sometimes meds will cause this. And even if you have been taking them for a while, it's still good to take a look at their side effects and/or talk with your doctor about it because as time goes by our bodies can change and our reactions to medications can also change.
Also, ANY new symptom that you are experiencing should automatically be a reason for a visit and chat with your doctor, no matter what it is.

 

[Harpy]

I have a slightly different feeling about that. While at times it feels ironic to me when someone says I look fine, and it is most definitely annoying if I tell someone I am in a lot of pain and they say, with a dismissive attitude, "but you don't LOOK sick!", most of the time if I leave my house I try very hard not to look as if anything is wrong with me.

I got sick of my H saying I don’t look like I am in pain .
So I got two images out and showed him, I said “ you see me like this”.


And this is how I feel, constantly.

 

[SBee]

God @Harpy that actually made me cry. Its so true, how we present ourselves to others as how we really are.

Great timing, I have just got off the phone to adult social care services, after a pain clinic referred me as they were shocked at, not so much what I can do, but the things I just cant do - even some basic self care to a point. I am struggling a bit with the 'obvious signs' of how bad my health has deteriorated.

Good graphic simple images. Quite moving.

Sending good wishes to everyone on the forum.

 

[sunkacola]

Oh my gosh, @Harpy ....so many of us (all of us?) can relate to these drawings!
Sometimes a picture can take the place, as they say, of a thousand words.

 

[Harpy]

God @Harpy that actually made me cry. Its so true, how we present ourselves to others as how we really are.

Sorry if the images upset you when I first seen them a few years ago I screen captured them and they have come in handy a few times to show people who just don’t get it.

Great timing, I have just got off the phone to adult social care services, after a pain clinic referred me as they were shocked at, not so much what I can do, but the things I just cant do - even some basic self care to a point. I am struggling a bit with the 'obvious signs' of how bad my health has deteriorated.

I have been struggling with personal hygiene as well , without to much info , the D.I.S.H in my thoracic spine makes it impossible for me to twist and make it extremely painful for me to wipe, if I can , mostly I have to shower afterwards. It’s sucks big time.

 

[SBee]

Oh no @Harpy, thats ok. I think it hit me just at the time when the simple images made me admit that I really do not let on just how hard living with chronic condition(s) can be. And put bluntly, how crap it can make you feel. I suspect thats true for most of us.
You put on that little smiling face, and if people ask how you are, its generally answered with 'oh, not bad' yet rarely say how it really is...

Hence the importance of this forum. You can tell it how it really is, because we are all in the same boat to varying degrees.

My struggle atm is bathing. Can't bath or shower for last couple of years due to pain and stiffness, and weak painful hands. The pain clinic said to get adult social services involved - I had to do that for my mum, in her late 80's, so to do so for myself, in my 50's ( only just ) was a bit depressing.

I am printing these little images just to remind me not to try to hide things from myself as much

 

[sunkacola]

@SBee I am sending you a hug.