Bad day/bad week(s)

[SBee]

And @Sueb24 the physio route is something I will be asking for too. I was referred but that was in January! Still waiting... I think it was @Badger that mentioned Tai Chi and the Q one whose name escapes me. Gentle movements but very effective.

And these forms along with yoga I consider a kindness to myself.

That dr \consultant was so right. The last few months have seen you have the highest of personal and health changes. I honestly do believe everyone of us and anyone living with chronic pain are amazing. ❤

 

[Sueb24]

So I am not leaving the surgery until I have some actual plan out in place and the GP seems willing to interact.

You go girl! (As Shania would say!)

But seriously, I do hope you get some of that sorted otherwise it’s like floundering in a dish of tapioca…

 

[Badger]

the Q one whose name escapes me

Qigong, it's gentle and can be practiced while sitting down.

 

[SBee]

Thanks for that @Badger I did find a short exercise programme with Qigong from the Canadian Physiotherapist site I tend to u se. I have earmarked it to come back to.
I kind of have more trust in a physio conducting a regime that would benefit those with pain conditions.
I only do chair yoga now,but adapt it, so I don't use any pressure on my hands. On a good day I will do standing poses in the evening especially to loosen up the stiffness a little. It all makes a difference. A gradual build up is the goal, but  any movement is beneficial.

 

[sunkacola]

Sometimes I feel the need to almost stop much of the usual exercise, such as it is, to let the body rest and heal. The difficulty is always doing that enough to benefit without falling into lack of motivation and/or doing so little we risk aggregating other symptoms. Balance thing again.

I know this feeling, all too well.
Always trying to figure out the best approach....what is the right balance today and is it different from yesterday.....am I sliding into apathy or giving myself needed time to rest.....and never sure if I am making the right choice.

 

[SBee]

Well I had my meeting with my GP yesterday. Quite productive really. He definitely discussed things with me and listened to what I had to say
and ask. No need for handcuffs on either side.
I needed to have the rheumatologist diagnosis letter explained as it didn't seem clear to me. The GP interprets it as seronegative inflammatory osteoarthritis. With fibromyalgia and central sensitization syndrome. So it's all a bit of a mess.

GP agreed with how most of us feel - that having multiple conditions do impact on others. And with overlapping symptoms.

He also stated no one can understand our bodies better than us. Again, on this forum we know this. So he was very much prepared to discuss a plan with me, rather than ' dictate ' a way forward. And offer future alternatives if needed.

Hopefully the methotrexate for the inflammatory arthritis will reduce I inflammation and therefore some pain,also to try to stem further damage. Again, other meds may be altered/ added in time. He altered a med I need for hiatus hernia to try to lessen the side effects from this injection.

He will push for physiotherapy, something I asked for some 6 months ago. Apparently the physios won't touch me due to the complexity,so referred me to a CFS/chronic pain clinic for suitable physio therapy. This I hope may help somewhat with the chronic fatigue side too.

I stressed I am committed to implementing the life changes all of us on here need to do as best we can. And that a positive mental attitude is crucial ( some days are better than others , again we all here Get that )

So fibromyalgia wise I have decided to trial Amitriptyline, which I know can be good bad or indifferent. Failing that we could try gapapentin or pregabalin and to try to avoid tramadol, at least for now. I'm at a stage where I need to try to better symptoms in even small ways, hoping it all adds up to a better overall feel. Right now how it is, isn't really sustainable long term.
But I remain realistic, as @sunkacola said recently, we can do as much as we can but we will still have fibromyalgia. None of this will go away for me, but it's trying various ways to improve the quality of various symptoms and their effects.

Still mulling things over, but feel quite optimistic but as always knowing that physical symptoms have a bearing on MH so let's see how it all goes. It's a plan at least that can be altered if need be.

Btw @Sueb24 had to laugh, was in a shop prior to appt and they were actually playing our girl Shania! Knew she wouldn't let me down

 

[SBee]

Oops,did try to update on my GP appt but it needs moderators apporoving! Honest no swearing must be because of mentioning meds

 

[sunkacola]

@SBee , I really think you are approaching things in an admirable way, both in being realistic and in your resolve to manage your life with fibro in a way that will, hopefully, become sustainable. I want you to give yourself a huge amount of credit for this. You are doing really well.
And I sincerely hope that you will find success to the greatest degree possible. You deserve it.
Please let me, and the rest of us, know if we can help in any way.

PS...I have no idea why your post got kicked to moderation. Sometimes that happens and I honestly cannot figure out why, but I do try hard to get to all of the posts that go into the queue as soon as I can, but I have no control over what gets singled out for moderation. Apologies for the delay in this case because you certainly did nothing wrong in this post.

 

[Auriel]

Thank's @SBee , , Thank's @Badger (as much as I love the property i live in, there's just so many con's connected to it). Here's a one ready for you badger

 

[SBee]

Thank you @sunkacola I appreciate that reply.

I'm a person who needs to try to get the full understanding of what is going on with me, whether it's a physical condition or MH. Some people almost don't whatnot know and I strongly believe there b is no right or wrong,this is just what works for me.To gain knowledge from reputable sources, helps me to research carefully and try to find the ways I may benefit. Some things I ( or any of us try ) will fail in varying degrees.

Some days I have, and will definitely continue to have, days where so feel I just can't take it, overwhelming feelings, or just the constant relentless pain. But I need to keep trying altering lifestyles, taking necessary meds, and facing the reality none of this will go away. I just need to get to the best levels I can, and know these will alter and need adjusting, frustrating as that is. I just don't want to fight what I can't change any more. And work and adapt however evolves.There isn't a quick fix.

But without sounding like a creep, this forum has been, and will continue to give amazing array of experience, advice and crucially support. None of it will work for all of us, but some things do make a positive change even a small change. And yet I know full well I will definitely be on the venting pages again soon when it gets too much. I will crumble at times, because I know that's what I do. So then I try to wait until I feel mentally strong enough to pull myself back up. That's where the much needed support comes in.


No worries about some stuff needing moderating - anything too dodgy needs a check first for all our sakes. my guess is its picking up on medication names maybe?

Hope your dear dog is healing well.

 

[sunkacola]

Hope your dear dog is healing well.

Thank you very much; it is kind of you to think to mention this.
I am still worried about him, and he is not out of the woods yet although at this point it's reasonable to be optimistic that he will make a full recovery. It might take months, though, and he is having a hard time with the enforced restrictions on his activities.
As for me, I am trying to recover from weeks of over-stress and high anxiety and the results of that in my body, so he and I are recovering together. And I am very grateful that he is still with me.
Thanks again for thinking of him. He is my heartbeat.

 

[Badger]

so he and I are recovering together

That is wonderful to hear, I hope for your recovery, they are wonderful company and keep us going. Always happy to see us with unconditional love and reassurance. I'm grateful for my best friend as teen, our rescue dog Tess

 

[SBee]

And with all that @sunkacola , do remember to show yourself as much care and attention too.be ok x to yourself,we are none of us so good at doing that. But you both need that and of course ,in his own essential ways, he and your other animals give you you just as much, unconditionally. That as it is now it always is with such strong bonds.

@Badger totally agree. In some ways a dog and a person can somehow share more than we can with other people.

 

[sunkacola]

In some ways a dog and a person can somehow share more than we can with other people.

My dog and I are closer than I am with any human being. You are right - there's a way that it's possible to love and share life with a dog or other animal that one cannot with a human being. At least, it has been that way for me. Part of it is that the dog is never critical of how I look, doesn't care about my past or what I've done or accomplished or not managed to accomplish or any of the thousands of other things human beings judge each other for. Only that I am kind to him and we share love and a bond and communicate well. I can be fully myself with my dogs, all of the time, and they are dependably honest with me, unlike people. I don't think it's possible to share that kind of unconditional regard with a human being. And a dog brings you into the moment. My animals have been my greatest spiritual teachers.

 

[Sueb24]

Well I had my meeting with my GP yesterday. Quite productive really. He definitely discussed things with me and listened to what I had to say
and ask. No need for handcuffs on either side.
I needed to have the rheumatologist diagnosis letter explained as it didn't seem clear to me. The GP interprets it as seronegative inflammatory osteoarthritis. With fibromyalgia and central sensitization syndrome. So it's all a bit of a mess.

GP agreed with how most of us feel - that having multiple conditions do impact on others. And with overlapping symptoms.

He also stated no one can understand our bodies better than us. Again, on this forum we know this. So he was very much prepared to discuss a plan with me, rather than ' dictate ' a way forward. And offer future alternatives if needed.

Hopefully the methotrexate for the inflammatory arthritis will reduce I inflammation and therefore some pain,also to try to stem further damage. Again, other meds may be altered/ added in time. He altered a med I need for hiatus hernia to try to lessen the side effects from this injection.

He will push for physiotherapy, something I asked for some 6 months ago. Apparently the physios won't touch me due to the complexity,so referred me to a CFS/chronic pain clinic for suitable physio therapy. This I hope may help somewhat with the chronic fatigue side too.

I stressed I am committed to implementing the life changes all of us on here need to do as best we can. And that a positive mental attitude is crucial ( some days are better than others , again we all here Get that )

So fibromyalgia wise I have decided to trial Amitriptyline, which I know can be good bad or indifferent. Failing that we could try gapapentin or pregabalin and to try to avoid tramadol, at least for now. I'm at a stage where I need to try to better symptoms in even small ways, hoping it all adds up to a better overall feel. Right now how it is, isn't really sustainable long term.
But I remain realistic, as @sunkacola said recently, we can do as much as we can but we will still have fibromyalgia. None of this will go away for me, but it's trying various ways to improve the quality of various symptoms and their effects.

Still mulling things over, but feel quite optimistic but as always knowing that physical symptoms have a bearing on MH so let's see how it all goes. It's a plan at least that can be altered if need be.

Btw @Sueb24 had to laugh, was in a shop prior to appt and they were actually playing our girl Shania! Knew she wouldn't let me down

Well Sarah that all sounds very positive and a plan of action is what we all need to restore a bit of hope during such dark and painful times. I also believe that MH wise it is sometimes very difficult to swallow our pride and admit that we do need medications to help us cope with these awful illnesses.

I do hope that the waiting time for physio at your chronic pain centre isn’t too great. I know there is a long wait at the one nearest to me which is why I’m going for private physio with someone recommended by my recent consultant.

It’s trial and error with all these medications unfortunately but fingers & toes crossed you soon feel some relief.

Some friends of mine saw Shania in Hyde Park last weekend. I was well jel! ( though I did see her at Wembley many moons ago ).