anyone have this symptom

[chestert6]

Didn't know Fibromyalgia could affect the body like this. muscle fatigue shortness of breath memory loss brain fog. tell me it gets better

 

[sunkacola]

Didn't know Fibromyalgia could affect the body like this. muscle fatigue shortness of breath memory loss brain fog. tell me it gets better

If you have read anything about fibromyalgia you will know that all those are common symptoms.
Except the shortness of breath, and I recommend if you have not done so already that you see a doctor about that.

Sadly, no one can tell you it will get better. I wish I could, but no one can predict the future.

But it's not all bad news!!
You are not entirely helpless or powerless in this situation.
It's mostly a matter of two things.
First: experimentation. You have to try everything and find out what works for you to feel better.
Second: you have to manage the condition the best you can.
Medication can help or it can hurt . The only way to find out if something works for you is to try it.

But do not rely on doctors and medications to feel better. While a medication MIGHT be helpful to you, the most important thing is how you live. What you eat, how you move, what you do to manage stress, your sleep, and many other factors, all of which seriously impact how the fibromyalgia affects your daily life.

Start with the post below. then read what others here are saying, and ask questions. We are here to help, but you are the only one who can actually do the work that we all need to do to manage this condition.

S

Thread 'My advice for managing fibromyalgia (especially for newcomers)'

Jul 21, 2020

I am not a doctor or anything, just a person who has lived with fibromyalgia for several years now and has done a lot of research and trial and error experimentation. What follows is just basics. There are a lot of variations. You will find your own versions of everything I say, as this is not a prescription and there are no guarantees. But I believe that if you can do these things, it will improve the quality of your life.

First thing to remember is that Fibro is not a death sentence and if you learn how to manage it, it will very possibly not always be as bad as it is now.

I was at...

• sunkacola
• Replies: 29
• Forum: General discussions about fibromyalgia

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[chestert6]

Thank you for your response. I have had test done for breathing and I'm cleared from the end. My activity has been cut back by 75% now. This part is a little tough. i do one thing to exert energy and then i'm not able to do anything the rest of the day. If I go out for a show or something I'm down the next day.

 

[sunkacola]

Thank you for your response. I have had test done for breathing and I'm cleared from the end. My activity has been cut back by 75% now. This part is a little tough. i do one thing to exert energy and then i'm not able to do anything the rest of the day. If I go out for a show or something I'm down the next day.

I don't know what you mean by "I have had test done for breathing and I'm cleared from the end".
What tests were run?
What did the doctor say to you about your breathing difficulties?
Is there any chance that the breathing problems are caused by anxiety?

That lack of energy is very common for people who have fibro. I, and others on the forum, have found that one of the most valuable things you can do for yourself is learn how to effectively balance and pace your life and activities.

I was always a person with more energy than I knew what to do with. Going all the time. Finding myself with chronic pain and fatigue, I had no idea how to manage it at first, and it took me some time to work it out. Now I know what I can and can't do most of the time. I know how to pace things. I know that if I want or need to do X on a certain day, I have to make sure that the day before I don't do very much and get lots of rest. If I know I will be doing a lot on a certain day I make sure that the two or three days following that day are empty of tasks or appointments so that I can rest up again. It stinks, but there's nothing I can do about it.

You will learn how to do the same. Just have patience with yourself and treat yourself kindly.

 

[chestert6]

I had a pulmonary breathing test Chest x-ray CT scan. all came back normal not issues that would cause shortness of breath. The lab work that was done all came back within normal range. I am very active as well and this is a slap in the face for me. I'm trying to pace myself.

 

[sunkacola]

I had a pulmonary breathing test Chest x-ray CT scan. all came back normal not issues that would cause shortness of breath. The lab work that was done all came back within normal range. I am very active as well and this is a slap in the face for me. I'm trying to pace myself.

Any chance the breathing problems are related to anxiety?
Or they could be from the medication you are taking?

I know all too well how it feels to be very active and then have this happen. I fully empathize, believe me.
About all I can say is that you get used to it, and you learn how to manage it to the best of your ability.

I found that practicing radical acceptance was very helpful to me, probably the most helpful thing of all.

 

[chestert6]

No to anxiety and medications. My mental state is good at least at this point. I have been tracking this for the last 2 years. It started out every 3rd month i would go down for month with all the same symptoms. then I would be back to normal for two months. Then in July of this year I was in the ER with it. since then it's been every other month until October and seems like i don't get the period away from the symptoms. Now it's all the time. They say the disease is not progressive but I would have to disagree with that.

 

[sunkacola]

Fibromyalgia itself is not progressive.
But things can get worse if not managed well or simply from the body aging, or from other things that are going on health-wise. Similarly, things can get better if one learns how best to manage it. No guarantees, of course, but it can get better.

You say "no to medications", but I cannot help but wonder how you know for sure that this is not a side effect of medication. Side effects can start at any time, even if you have been on the medication for some time, and duloxetine (cymbalta) has a lot of side effects that many people experience. I had absolutely unbearable side effects from that drug, myself.

What kinds of things are you doing to experiment and find out what might help you in terms of exercise and diet and so on? Maybe someone can offer suggestions if you give us some information on what you have tried or what your daily management techniques are at this point.

 

[chestert6]

we changed my regiment early because of depression. actually came down from
cymbalta from 120 mg to 90 and added venaflaxine at 75 mg. depression went away I felt good. I find it hard to believe that symptoms from Medication would come every three months. I have had reactions to medication that have hit after being on it for a while and it was a constant daily problem that never went away.

 

[BlueBells]

Hi @chestert6

Welcome to the forums

I certainly understand where you are coming from, and actually, I've been under such a spin lately I'm rarely on here, and when I am, one or two posts and I am flagged again.

Forums. I have found it so reassuring, uplifting and supportive being on here, and I have learnt so much about fibro and its little fun stuff. Mostly, it's finding that somewhere in the world, others are going through the same experiences, and that wipes out the feeling of aloneness with fibro. Others really understand, even if not the exact group of issues, but we all understand that.

Progressive. In one way, I would say maybe, but I tend to think that one gets tired of fighting with it (before I knew what it is) and one just gets weary and it appears the fibro is worse. Like weeding a garden. Keep at it and it's controllable (sort of) but leave it a few months, and wow, no longer a little task, and yet it is still the same weeds, not changed.

Short of breath. Yep, and I've been checked and during tests I thought I was about to have an heart attack. Results? Cardio vascular fine, and actually better after the test!

Please interact on here, it's how I'm learning to, as one member put it, dance with fibro. Very accurate description. Ans, as I note, fibro is really bad at dancing, keeps treading on toes

Hi to everyone reading, take care

 

[chestert6]

thank you for your response. Don't take this the wrong way but I'm glad you had breathing issues. I'm certain happy everything was good in that area for you. I was beginning feel like some of my symptoms were alone.
I made communion bread yesterday 5 batches. didn't thing it was a big deal just measuring and rolling out dough. It did my brain in so I sat down for three hours then worked on dinner-again didn't think it was to bad. went to bed tired but fatigued to the point that i'm dragging myself to bed. today I was in bed all day. When people tell me to keep going and fine your pace it's a little hard when fibro doesn't let up.

 

[BlueBells]

Hi @chestert6

Breathing, I do understand. That is what is so good about these forums, we find we are not alone, and even the silliest symptoms, sooner or later we find another with the same one.

I haven't read a lot, not quite up to it yet, but learning to pace oneself is a very big help (says someone who is still trying to get it right ).

I've had a big day, and I know tomorrow I'll be wiped out, and although I hope I won't be, I know the chance of getting out of my own way will be difficult enough.

There are days I barely get myself and the cats fed and watered, and I even short cut. Cats miss their wet food and have to do on dry, which I think they prefer anyway. I have the auto feeders, and that's good when I really have a bad spin. For myself, I tend to eat things not the healthiest, but I get by.

I really like that one

Take care

 

[Napaliz56]

Didn't know Fibromyalgia could affect the body like this. muscle fatigue shortness of breath memory loss brain fog. tell me it gets better

I just learned that fibromyalgia can also cause bladder issues like Interstitual Cystitis...learned the hard way, by getting it!!

 

[chestert6]

yea I read that. I don't have that but I don't have a lot of pain either. More breathing issues fatigue muscle weakness memory problems dizziness year issues hearing issue. all my testing comes back with normal limits. Didn't know you could be so health and be sick at the same time. lol

 

[Borzov1982]

In the past there was a diagnosis of "hysterical neurosis", today it does not exist because this diagnosis has been divided into different other diagnoses. One of these diagnoses is somatoform disorder. What does this mean? This means that a person experiences symptoms of different diseases, but studies cannot find the cause and confirm the presence of the disease. Or the results of the studies still cannot explain the clinical picture. The cause is in the central nervous system