venting

  1. MizzDeeDee

    Vent about new pain :(

    I'm having some real neurological problems. It first started sometime ago with me taking a nap with my daughter and waking up to my knees being numb. Then it was my knees being numb, and my left thigh numb. This is in addition to my normal aches and pains. Last night, I was in so much pain that...
  2. Khaleesi

    New here

    Hello everyone! I am glad I found this group. I have been feeling lonely in this road. I was diagnosed on July of this year. After many tests it finally came to fibromyalgia...they ran many, many tests since they suspected Lupus first. My mom has lupus and my aunt died of renal failure due to...
  3. L

    Venting here instead of at my friends

    Or worse, my colleagues. Both groups are very supportive, but I feel like they don't need to know that I'm in pain because I slept badly, and I just had to take my earrings out because they were becoming a pain trigger. (I feel rather naked now. Large earrings are my trademark!) I keep...
  4. mariposa

    SulaBlue, Are You Okay?

    I wasn't sure where to put this post, so I chose the venting section. I'm sorry if it's the wrong area... but I'm concerned about SulaBlue. Are you here, SulaBlue? It's been ten days since you posted and I know that your state has been having all those tornado outbreaks. I hope you're safe...
  5. E

    Ugh!

    sorry in advance! So i finally got sleep after being up for 38 hours, and it was only 6hrs! WHY you ask? because my other half broke his hand and spent time in the er then had to go to work! FRUSTRATED! but on the other hand he said he understood my pain, and didn't know how i did it, he has...
  6. M

    hurting in everyway

    oh grr i just typed this long vent and the system kicked me out without posting it so I have to start all over but what's the point. I am having a rotten day after a very physically and emotionally stressful 3 days. oh well maybe i can word it better this time. Saturday my husband and I...
  7. G

    Husband has extreme fatigue

    Hi everyone. I am new to the Forum and am wondering about whether extreme fatigue is normal in PALS. My husband was Dx in 9/08 (Bulbar Onset), and he has been on Rilutek ever since. His decline has been slow and steady...with increasing fatigue, muscle soreness, etc. However, beginning only a...
  8. G

    venting fears

    Thank you, so much for starting this thread. Not only does it help us vent about our fears, but it gets others to think and offer plans, advise and support. Nspoc has some great ideas and is truly a wonderful person. I can't see anybody I know doing this for me. They all seem to have lives...
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