Hello,
I am new here, but also have a rare disease called SYRINGOHYDROMYALGIA. It means I have a cavity in my spinal cord. It is incurable.
Before any tests were done doctors were diagnosing me with CF and Fibro. It took another several years and many tests and still no diagnosis.
I was out with...
As I said in my introductory post... I am pretty sure I have fibromyalgia, and family friends with it have all nodded and told me that it makes sense. Unfortunately my doctors haven't been able to officially diagnose it for... whatever reason. I don't know why.
My symptoms are consistent with...
Hello, it's nice to meet all of you. I'm sure my story will be familiar, as many of you are (or have) experienced similar problems. I've had "random pain" for many years, but in the last two it got bad enough that I couldn't work.
After tests upon tests coming up negative, after doctor after...
Hey everyone, I'm new to this group, I was just diagnosed with Fibromyalgia yesterday. I guess I kind of got lucky that it didn't take too long to diagnose because I'd already had a ton of blood tests, scans and specialist visits for fatigue and GI problems that started a year ago (which ended...
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Just yesterday I had an endoscopy and a colonoscopy, I went to see the gastroenterologist today to discuss the results. Well... it was a complete nightmare! This doctor I had never ever seen before left me with even more questions than answers!
It turns out I have a massive hiatal hernia, but...
After 4 months of waiting to get in, I finally got to see a rheumatologist yesterday. During the appointment the Dr said that fibro is always a secondary symptom of some other issue that she suspects that she can treat. This would be great news if there is something else that can be treated...
Hi,
I was diagnosed with fibromyalgia last November 2013. I had cancer surgery in October 2012. Prior to the cancer, I was pretty active. Since my surgery, I have never "bounced" back. That's when all of the doctor's visits, and testing came. They tested for everything, and then decided I...
Hello everyone,
I'm a 16 year old girl from Germany and here's my story:
About 2 years ago I suddenly got very sick - as in feeling like there's too much air inside my body, having constipation or diarrhea along with circulation problems.
When it didn't get any better, I went through several...
I say the journey begins, because I am just starting to understand what is possibly causing the the chronic pain and fatigue I have dealt with for the last 5 years. And what a journey it is with no end in sight... and I understand there is no end until the end.
That sounded really...
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My doctor thinks i would have pelvic congestion because other tests happen to be nonconclusive. does anyone else suffer from this? what had you been symptoms? i have bad internal pain, low back pain and leg pain...have you got any tips to relieve the pain sensation? Please assist me !