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  1. H

    ME/CFS Phone Support Group

    ME/CFS weekly phone support group starting Saturdays at 8pm EST. This is a peer to peer Chronic Fatigue Syndrome/ME support group. This call is designed to support one another through the hardships of this illness by listening and sharing experiences. Join us from the comfort of your own bed...
    • Horizon
    • Thread
    • bed cfs chronic chronic fatigue syndrome diet emotions fatigue free helpful isolation men questions research sharing support symptoms treatments
    • Replies: 2
    • Forum: Chronic fatigue
  2. I

    This is what dying feels like, right?

    Diagnosed w/ FM yesterday, although I am no stranger to chronic illness. I have been off work for a couple of years w/ a diagnosis of "severe hypersomnolence" in the absence of any other concrete diagnosis. After a couple of night time studies, my insurer required more evidence that it was...
    • IsThisForReal
    • Thread
    • cfs chronic chronic illness diagnosis dying men narcolepsy night sleep testing work
    • Replies: 5
    • Forum: Chronic fatigue
  3. I

    So much shame...

    This probably goes w/o saying, but having been diagnosed unexpectedly (ystrdy) after years of searching for answers and coming up short, I feel a lot of denial, frustration and sadness. I am not naive to the realities, but there is a crazy amount of shame that comes w/ this dx for me. First...
  4. M

    Interesting testing

    I recently went to a Rumatolagist had testing and as told Lupis is ruled out, but then...I got a note from the Hospital, Lupis was possibly positive, and I was sent for yet more blood work. Part of my reasearch on blood tests said the result could be positive because of a recent injury. Well the...
  5. B

    First Pain Clinic Visit(need advice)

    I was diagnosed with fibro in February 2015. I was also diagnosed with severe anxiety and a couple other things. I currently take Cymbalta 90mg, Flexeril 10mg, Mobic 15mg, and Ambian 10mg. Ambian does not in any way help me sleep. My panic attacks and constant body pain keep me awake no matter...
  6. P

    anyone have anemia plus fibro

    Was recently diagnosed as having anemia after routine blood work with my GP. I had been feeling even MORE fatigued and made of lead prior to that ... and thought maybe it was a fibro flare. He put me on iron pills right away, and said a colonscopy is needed to see if there's any intestinal...
    • PhillyFibro
    • Thread
    • back family fibro flare flare iron lead meds men pain sick tests treatments vitamins work
    • Replies: 9
    • Forum: Chronic fatigue
  7. V

    Fear of being labeled an imposter

    I've been dealing with chronic pain increasingly over the last two years. (I think longer, but I really started noticing it a couple of years ago.) I had my first appointment with a rheumatologist and he said I have fibromyalgia, and he thinks I also have an autoimmune condition. He ordered a...
  8. V

    Newly diagnosed

    Though I've been having increasing pain (and other symptoms) over the last couple of years, I was only diagnosed with fibromyalgia last week. My rheumatologist also thinks I have Sjorgren's syndrome or some other autoimmune condition (maybe lupus). I just had blood work done today. On one hand...
    • VegAthLes
    • Thread
    • autoimmune condition diagnose diagnosed diagnosis fatigue fibro fog fibromyalgia frustrated men newly diagnosed pain rheumatologist symptoms treatment work
    • Replies: 2
    • Forum: Recently diagnosed
  9. CountryGirl

    Does anyone else take Naltrexone 4.5mg

    Well I'm new here so thought I would post. I've had fibro for several years and like many spent the first 3 screaming WHY & trying ever drug that the big pharmaceutical companies push. I tried them all and then found an amazing Dr who was willing to work with ME & let me lead my journey. For...
  10. W

    Bad Experiences Iin Childhood Lead To Adult Illness?

    I think many of us have suspected this for quite a while. I think it's often the case, as well as often being the case with traumatic events that occur after childhood, although in some cases, some who experience those may be better able to recover. I found the article interesting, and am hoping...
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