I am sixty years young, married with 2 children and a grandson that is ten whom my husband and I are raising. I was diagnosed with fibromyalgia in 2010, or I should say I am self diagnosed. When I went to my physician I told her what I thought I had, which was fibromyalgia but she would not...
I started having a flare a couple days ago, it reached full flare mode today. I've got xanaflex and percocet for pain right now. It's been 6 months since I've taken gabapentin (neurontin), I stopped taking it because I had gained nearly 100lbs and couldn't remember what I was saying half way...
There are days and even weeks where moving my head sounds like someone firing a rifle. I can feel the vertebrae shifting in the back of my throat. My doctor does not seem all that worried, but it is scary, just the same.
Every once in a while my husband gets this horrified look on his face...
I sometimes have this weird taste in my mouth, just before my IBS flares and I have a mild episode of concentration loss and irritability (almost like some of you might describe the fibro fog). It is somewhere between metal, wet dog and cow behind. (sorry a bit graphic, but this is how close I...
Isn't it wonderful to finally know what is wrong after a life time of wonder and worry? Well, psychologically, anyways. Now armed with a lot of information, the real fight can begin.
I believe I was born with Fibromyalgia, reflecting back on the many symptoms I've had surface at key moments in...
Protomyxozoa Rheumatica is a parasite discovered by hemotologist, Dr Steven Fry. He believes the organism may cause numerous neurological diseases, including ALS.
The following is Part I of the transcript of a recent interview with Steven Fry, MD.
Please do not expect your physician or other...
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Could really use your insight and direction...
Knowing the ravages of ALS, I would much rather be diagnosed with Myasthenia Gravis any day (even though that DX is terrible but it is at least somewhat manageable compared to ALS). I had to go into the ER today with difficulty breathing and...
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