After over 4 years of strange symptoms that left me writhing in pain, fainting, coping with brain fog and concentration problems, digestive upsets, and more I was finally diagnosed with Fibromyalgia on December 5th of 2012, 2 days after my 27th birthday.
Hi, I'm Shi and I am a Fibromyalgia...
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Today for the very first time I had to leave work early because of my condition.
I have had a particularly bad couple weeks but even so I can usually muddle through even when I feel like I can't.
Today however was unbearable. I struggled through till lunchtime with the pain in my legs. My...
I am fighting the sleeping issue and am not doing well. My issue is that I go to bed at midnight with or without sleeping meds and am awake until the early morning at which point I am able to fall asleep. The problem is that I cannot stay in bed all day and that the sleep I get is not restful...
Hi I'm new to this site, I am the treasurer for a support group for Folkestone and surrounding towns, in Kent. We've been running for nearly 2 years, and offer advice and support to fibro sufferers and their carers.
It's great to hear from fellow sufferers and gain their insight into this...
I recently joined this site and have been looking around at the different posts. I am in such a financial strain at the moment. I have not been able to work in nearly 2 years, have gone through all my savings and have had to resort to asking family members for help. I know the stress of all...
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Just introducing myself.
Hi
I was diagnosed with CFS in 1999, following a couple of years of constant viral infections. I was given various blood tests which all came back negative. My white cells were mapped and found to be working properly in response to each infection, but still new...
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Hiya folks. Zoid here.
So glad I found this forum. I was a pretty avid ball player for nearly all my life up until a few years ago when I started having bouts of intense pain. I don't want to tell all of my story in this intro, but I am looking forward to sharing and gaining some insight and...
Protomyxozoa Rheumatica is a parasite discovered by hemotologist, Dr Steven Fry. He believes the organism may cause numerous neurological diseases, including ALS.
The following is Part I of the transcript of a recent interview with Steven Fry, MD.
Please do not expect your physician or other...
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Hi,
I've posted on here a few times before, but generally have tried to go about my life. I've been battling pain/stiffness/weakness for years and now it seems to have got worse. I had one doc allude to pls. Said I had cranial nerve damage. My neck always hurts when I turn it (95% of the...
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Could really use your insight and direction...
Knowing the ravages of ALS, I would much rather be diagnosed with Myasthenia Gravis any day (even though that DX is terrible but it is at least somewhat manageable compared to ALS). I had to go into the ER today with difficulty breathing and...
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